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GSD The Way To Be Title by Josiah Ridley GSD Story by Laurie Fiske To my children Haylee GSD and Alec and to all the families affected by GSD know that you are not alone and may there be a cure some day soon Illustrations by Ivy Cohen GSD To my parents who made living with GSD much easier Edited by Dr David A Weinstein Catherine E Correia A special thanks to Dr David A Weinstein and all of his caring support for GSD patients around the world

My name is Alice I have glycogen storage disease called GSD for short It means that my body processes sugar differently 1

This is my big brother Steve He doesn t have GSD 2

Because I have GSD I can not have treats made with sugar but there are lots of treats that are sugar free 3

Like sugar free cookies sugar free candy and my favorite sugar free chocolate ice cream 4

I love to run swim play soccer and basketball just like Steve 5

Sometimes doing these things make me feel tired and yucky 6

My Mom Dad check my blood sugar levels to make sure I m okay 7

I take cornstarch mixed in water to help keep me from feeling yucky and to keep my blood sugar okay 8

I get a check up once a year from my doctor He makes sure my Mom and Dad know how much cornstarch to give me 9

Even though I have GSD I can do lots of things with all of my friends 10

And just like them when I grow up I can be a lawyer a teacher or even a doctor 11

GSD doesn t make me special I m special because I m me 12