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R e s o u r c e H a n d b o o kR e s o u r c e H a n d b o o kA P R I L 2 0 2 2T h e A r c o f S o u t h C a r o l i n aT h e A r c o f S o u t h C a r o l i n a03040609101112 Our HistoryWhat is I/DD?Diagnosed with I/DD?From Early Intervention toCase Management ServicesThe IEP & Transition ServicesIs Your Child Almost 18 Years Old?Your Adult Child with a Disability is21 Years OldFor People with Intellectual & Developmental Disabilities 131415161723How to Apply for SSIMedicaid Home & Community-Based WaiverCLTC & Community Choices WaiverMedically Complex Children's (MCC) WaiverWhat Parents of Children with Disabilities Should KnowThe Adult's Guide to Disability Programs, Services &Resources in South Carolina

Resource Handbook For People withIntellectual & Developmental DisabilitiesThe Arc promotes and protects the human rights ofpeople with intellectual and developmental disabilitiesand actively supports their full inclusion andparticipation in the community throughout theirlifetimes. The Arc of South Carolina is an affiliate of TheArc's national network of more than 600 state and localchapters. www.arcsc.orgthearc@arcsc.org The Arc of South Carolina1202 12th StreetCayce, South Carolina 290332

OUR HISTORYThe Arc was built as a grassroots organizationaround kitchen tables, as individuals and theirfamilies organized and fought for their rightsand full inclusion in the community. For nearly 70 years, The Arc has been at theforefront of the fight for the civil rights andinclusion of people with intellectual anddevelopmental disabilities (I/DD) and theirfamilies, playing a leading role in major victoriesin civil rights, community living, education,income security, and other important issues.We have fought to close institutions and makelife in the community possible. We have openedthe school doors for students with disabilities tobe included in the classroom alongside peers without disabilities, and we have advocated foraffordable health care access.We are at the table for every major public policyfight and advancement impacting the lives ofpeople with disabilities. Today, advocates across the country continue toadvocate and share their stories about what itmeans to live every day with a disability and whatis possible with proper supports and services. Their stories and activism transform legislationand numbers into real-life impact. Through them,the mission of The Arc comes to life anddemonstrates the importance of building a futurethat includes us all. 3

Intelligent quotient (or I.Q.) is between 70-75 orbelowSignificant limitations in adaptive behaviors (theability to adapt and carry on everyday life activitiessuch as self-care, socializing, communicating, etc.)The onset of the disability occurs before age 18What are intellectual and developmental disabilities? Intellectual disability is a below-average cognitiveability with three (3) characteristics:Intelligence refers to general mental capability andinvolves the ability to reason, plan, solve problems,think abstractly, comprehend complex ideas, learnquickly, and learn from experience.Studies show that somewhere between one (1) percentand three (3) percent of Americans have intellectualdisabilities. There are many causes of intellectualdisabilities, factors include physical, genetic and/orsocial.The most common syndromes associated withintellectual disabilities are autism, Down syndrome,Fragile X syndrome and Fetal Alcohol SpectrumDisorder (FASD).Common causes occur from genetic conditions (Downsyndrome and Fragile X syndrome are examples),problems during pregnancy (a pregnancy of themother who drinks alcohol while pregnant can result in(FASD), problems at the time of birth, health problemssuch as whooping cough, measles or meningitis andexposure to environmental toxins like lead or mercury. 4The impact of having an intellectual disability variesconsiderably, just as the range of abilities variesconsiderably among all people. Children may takelonger to learn to speak, walk and take care of theirpersonal needs, such as dressing or eating. It may takelonger to learn in school.As adults, some people are able to lead independentlives in the community without paid supports. A smallpercentage will have serious, lifelong limitations infunctioning. However, with early intervention, anappropriate education and supports as an adult, allcan lead satisfying lives in the community.Sometimes intellectual disability is also referred to asdevelopmental disability which is a broader term thatincludes ASD (autism spectrum disorders), epilepsy,cerebral palsy, developmental delay, fetal alcoholsyndrome (or FASD) and other disorders that occurduring the developmental period (birth to age 18).The major differences are in the age of onset, theseverity of limitations, and the fact that a person with adevelopmental disability definition may or may nothave a low I.Q. While some people with intellectualdisability will also meet the definition of developmentaldisability, it is estimated that at least half do not meetthe requirements for the developmental disabilitydefinition.For more information, visit the resources section of ourwebsite and click on "About I/DD." Or visit our parentsite The Arc of the United States. Additional informationcan also be found at the American Association onIntellectual and Developmental Disabilities.

1 8We hope that you willfind the information onthe following pageshelpful as you discoverresources,organizations andpeople that can helpaddress the disability-related questions andconcerns you mayhave. Although all of theinformation presentedhere can be found onour website, we havecompiled much of itright here to help yousave time as youattempt to locatedisability resources inSouth Carolina.Use this ResourceHandbook to help youfind the informationyou need to locategovernment and localdisability programs,services andinformation needed tobe able to fullyparticipate in andcontribute to allaspects of communitylife. 5

If your child's doctor has told you to "wait andsee," but you feel uneasy about that advice,talk with another doctor to get a secondopinion and call the number below for a freeevaluation to find out if you can get free orlow-cost services that can help. If your child is under age 3, call BabyNet at866-512-8881 or make your referral onlinehere: babynet.scdhhs.gov/prebabynet.If your child is age 3 or older, call the localpublic elementary school (even if your childdoes not attend school there) to inquireabout an evaluation. You do not need adoctor's referral to have your child evaluatedfor services. You can say, "I have concernsabout my child's development and I would liketo have my child evaluated through theschool system for preschool specialeducation services." If the person whoanswers the phone is unfamiliar withpreschool special education services, ask tospeak with the Special Education Director. Suspect that your child is not meetingdevelopmental milestones? WHAT'S NEXT? BASIC INFORMATION IMPORTANT FACTSCall to make an appointment with your child'sdoctor, and be sure to tell the doctor's staffthat you're calling because you haveconcerns about your child's development. Before the appointment, complete the CDC'sDevelopmental Milestones Checklist andwrite down your questions or concerns to takewith you to the doctor's appointment. During the doctor's appointment, show thecompleted milestones checklist to the doctor.If your child is missing milestones, point themout and share any other concerns you mayhave. If your child is not missing anymilestones, but you still have concerns, tell thedoctor about them. Ask the doctor if your child needs furtherdevelopmental evaluation. If so, ask for areferral and call right away. If you havedifficulty getting an appointment, let thedoctor know. As a parent, you know your child better than anyone else. If your child is not meetingthe milestones for his or her age, or if you think there could be a problem with the wayyour child plays, learns, speaks, acts and moves, talk to your doctor and share yourconcerns. Don't wait. Acting early can make a real difference. Resources You May Find Helpfulcdc.gov/ActEarly msp.scdhhs.gov/babynet ed.sc.gov/districts-schools/special-education-servicesfamilyconnectionsc.org/education/early-learners6

The South Carolina Department of Disabilities& Special Needs (SCDDSN) provides servicesto children from birth to three years of agethrough a contract with South Carolina FirstSteps. First Steps in the state's lead agency forPart C services under the Individuals withDisabilities Education Act (IDEA), the law thatgoverns how states and public agenciesprovide early intervention, special education,and related services. Infants and toddlers,birth to age 3, with disabilities and theirfamilies receive early intervention servicesunder IDEA Part C. Services can includespeech-language therapy, occupationaltherapy, physical therapy, assistivetechnology, health services and more. TheSC/EI will work with your family to create anIndividualized Family Service Plan (IFSP)to layout the supports and services your child willneed. If ever unsatisfied with your current SC/EI andwould like help finding another one, contactddsn.sc.gov/contact. Your child has been diagnosed with anintellectual and/or developmental delay ordisability (IDD). (AGES 0-3 YEARS) WHAT'S NEXT? BASIC INFORMATION IMPORTANT FACTSFor children eligible for IDEA/Part C, the IntakeCoordinator will document your child'seligibility, provide your family with a copy ofthe evaluation results. You will then be askedto provide the Intake Coordinator with yourtop three choices for servicecoordination/early intervention providers.The Service Coordinator/Early Interventionist(SC/EI) is the person who works inpartnership with your family to coordinateneeded services. They will ensure that yourfamily will have access to a full array ofservices including medical, social,educational, or other needed services through4 key components: Assessment, CarePlanning, Referral and Linkage and Monitoringand Follow Up. The SC/EI will partner with your family to helpempower you to learn to eventually be able tomake decisions and coordinate your owncare and services. Resources You May Find Helpfulddsn.sc.gov/about-us/divisions/children-and-family-services/early-intervention-manualscdhec.gov/health/finding-heathcare/getting-help-people-disabilitiesssa.gov/disability/disability_starter_kits_child_factsheet.htm scdhhs.gov/eligibility-groups/disabled-childrenuscmed.sc.libguides.com/cdr When you learn that your child has a disability, it's important to realize that you'renot alone. It's now time to get prepared as possible to be able to negotiate thechallenges that await your family. Collect as much information as you can aboutyour child's disability, about the services that are available, and about the thingsyou can do to help your child develop to the fullest extent possible. 7

The South Carolina Department of Disabilities &Special Needs (SCDDSN) provides an array ofservices that you can read more about here. Ifyour child is age 3-6, a Service Coordinator/Early Interventionist (SC/EI) will coordinateservices with a person-centered planningapproach, which is built upon the vision ofwhat the individual would like to do in thefuture. The most important services to meet anindividual's lifelong needs are obtainedthrough entrance into a Medicaid serviceprogram. Be sure to have your SC/EI discusswith you the different Medicaid programs, howto apply, and the waivers available to helpindividuals remain in their own home. If yourincome prohibits eligibility, apply for the KatieBecket Waiver, which allows for Medicaidcoverage, regardless of parents' income. Be sure to contact the South CarolinaDepartment of Education's Office of SpecialEducation Services to begin the specialeducation assessment process. Your child has been diagnosed with anintellectual and/or developmental delay ordisability (IDD). (AGES 3 AND UP) WHAT'S NEXT? BASIC INFORMATION IMPORTANT FACTSResources You May Find Helpfulscdhec.gov/health/finding-heathcare/getting-help-people-disabilitiesed.sc.gov/districts-schools/special-education-servicesed.sc.gov/scdoe/assets/file/programs-services/173/documents/ParentGuideNov12.pdfed.sc.gov/districts-schools/special-education-services/parent-resources/disability-resources Now that your child has received a diagnosis, it's important to take one step at atime. You will need to learn about the systems of supports available, what to donext, and connect with the services your child needs. You are your child's greatestadvocate so be sure to let your voice be heard. Prepare to actively participate inyour child's care, services and school. There will be many agencies andorganizations to contact for help once yourchild receives a diagnosis. Be sure to call theSouth Carolina Department of Disabilitiesand Special Needs (SCDDSN). It's the agencythat plans, develops, oversees and fundsservices for South Carolinians with severe,lifelong disabilities such as autism, traumaticbrain injury, spinal cord injury and conditionsrelated to each of these 4 disabilities. Torequest eligibility, call 800-289-7012,Monday-Friday, 8:30 a.m. to 5:00 p.m. Besure to have the following informationavailable: your child's full name, date of birth,social security number, Medicaid number (ifMedicaid eligible), home address, phonenumber, and email address (if available).You will be asked several questions and willneed to select 3 Intake Service Providersfrom a list of available providers in SouthCarolina. The Intake Provider will help youthrough the eligibility process at no cost toyou. DDSN will contact the Intake ServiceProvider(s) you choose and you will benotified in writing of eligibility status.8

Provide as much information as possible tothe CM. If you don't understand something,let your CM know. Always ask about anything that is not clearto you. They will explain any topics or issuesto you.CMs provide lots of information andresources. it helps to use a folder to keepall the information organized and in oneplace. Make a note of questions to ask andput them in the folder. Case Managers assist families by identifyingand addressing needs and concerns,coordinating resources, providing informationand support, creating and developingopportunities, monitoring and evaluatingservices, constructing lifelong plans, assuringplan achievement, and educating thecommunity. Some tips for working with your child's CaseManager (CM) include: Good communication is key to ensuring thatyour questions and concerns are resolved. Transitioning from Early InterventionServices to Case Management Services. (AGES 6 AND UP) WHAT TO EXPECT BASIC INFORMATION IMPORTANT FACTSResources You May Find Helpfulddsn.sc.gov/about-us/divisions/intellectual-disability-and-related-disabilities/case-managementapp.ddsn.sc.gov/public/directory/landing.doapp.ddsn.sc.gov/public/ratings/listing.do?serviceId=6&countyId=ddsn.sc.gov/contact In South Carolina, Early Intervention Services last from birth until 6 years of age. Once a childturns 6, they will need to transition from Early Intervention Services to Case ManagementServices. Case Management Services are intended to ensure that individuals who are eligiblefor DDSN services have access to a full array of necessary services that will enable them tolive in community settings (i.e., their home, a group home, etc.) rather than in institutionalsettings. Case Management Services are provided bytrained professionals, called Case Managers,who have knowledge of the medical, social,educational, and other services that areavailable. Case Managers learn about eachindividual's specific needs. Case Managersassure that services are appropriate,effective and, as needed, make referralsand/or link people to appropriate serviceproviders. Case Managers are employed by Disabilityand Special Needs (DSN) Boards andcontracted service provider agencies thathave been qualified by DDSN as providers ofCase Management. Those who will receive Case ManagementServices must choose a service provider fromamong those available. You can find aService Provider here. Learn more about aCase Management provider here. If ever unsatisfied with your current Case Managerand would like help finding another one, contactddsn.sc.gov/contact. 9

SC Vocational RehabilitationSC Department of Mental HealthSC Department of Disabilities & SpecialNeedsRehabilitation CounselorSocial Worker/ Case ManagerEmployment Agency Staff Independent Living Center StaffDisability Support Staff from aPostsecondary SchoolPerson knowledgeable about AssistiveTechnologyPerson knowledgeable about SocialSecurity Income (SSI) and Medicaid Personal Care or Health Care ProvidersAn advocate from an AdvocacyOrganizationAnyone you feel might be beneficial to theplanning processThe outside adult service agencies that shouldbe involved in transition planning could includethe following: Other agency representatives who could beinvolved may include: The Individualized Education Program(IEP)and Transition Services. (BEGINS BEFORE THE STUDENT'S 13TH BIRTHDAY) WHAT TO EXPECT BASIC INFORMATION IMPORTANT FACTSResources You May Find Helpfuled.sc.gov/districts-schools/special-education-services/oversight-and-assistance-o-a/indicator-13-modulesites.ed.gov/idea/files/postsecondary-transition-guide-august-2020.pdfwrightslaw.com/info/trans.faqs.htmsites.ed.gov/osers/2020/10/pathways-to-partnershipstransitionalliancesc.org If a student has an IEP, school districts must provide transition services to prepare studentswith disabilities to move from school to post-school life. The activities must be based on thestudent's needs, preferences, and interests, and are used to help students get ready forcollege, technical school, work, adult education, adult services, independent living, andparticipating in their community. Transition services start when the student turns 13, butplanning must begin before their birthday. The IEP must include these transition services. Transition planning works best when studentsare actively involved. Family members andother adults also play important roles in thislong-term planning. Teachers,administrators, and support agencies workwith the student and family to reach theirgoals. IDEA has been an important law for studentsreceiving special education and relatedservices. As a parent, you can do much tohelp your child with a disability move throughtheir transition years. You can becomefamiliar with the federal regulations and theprocedures used in South Carolina and yourchild's school district. Appropriate transition services will enableyour student to develop the skills needed forindependent living. With knowledge of IDEA,you and your child can become strongerself-advocates, and you can help your youngadult develop skills needed for the future. 1 0

If your child has not been enrolled in Medicaid,it's time to apply now. Be sure to enroll in aMedicaid Waiver Program and/or get on thewaiting list as soon as possible. If your child has not been involved with the SCDepartment of Disabilities & Special Needs, it'snow time to get involved. If your child does not already have one, applyfor an Identification card. Investigate ABLE Accounts. It's an investmentaccount available to eligible individuals withdisabilities. At age 18, a person is presumed eligible tovote. Your child can register to vote here. Find information on Registering for SelectiveService.Learn about The Arc and the Center for FuturePlanning. Learn about The Arc's Free Financial PlanningResources. Your Child with a Disability is Almost 18 Years Old. WHAT TO EXPECT BASIC INFORMATIONResources You May Find Helpfulable-sc.org/get-support/supported-decision-makingwww.ssa.gov/disabilityhealthcare.gov/people-with-disabilities/coverage-optionsapply.scdhhs.gov/CitizenPortal/application.do As the parent of a child with special needs, you face many challenges that other families donot. For example, when your child turns 18, he or she may still be enrolled in school forseveral more years while their peers are starting college or working. When your child with adisability turns 18, they become an adult who is legally responsible for their choices andactions and parents can lose the ability to make decisions for their adult child. Don't waituntil your child with special needs turns 18 to begin planning- start early! It is a milestone in every parent's life when achild turns 18. The child is now an adult, andwhile many responsibilities now shift from theparent to the child, parents still want to beinvolved in helping their young adult makedecisions. There are many legal issues that aparent and child should consider before thechild turns 18. For parents of special needschildren, parental involvement can be criticaland, depending on the disability, necessaryfor continuation of care. The following is a partial list of resources andinformation for you to consider when youhave a child who is about to turn 18. Pleaseclick the links to learn more. There are Alternatives to Guardianship &Supported Decision Making.Youth Who Receive SSI Benefits as ChildrenMust Reapply for Adult SSI Benefits at Age18. If your child hasn't been receiving SSI,they can apply now. 1 1

Learn about Special Needs College Programsin South Carolina. Research Residential Habilitation Services. Look into Vocational Rehabilitation Servicesand other employment programs.Find information about Job Seeker Resourcesfrom Hire Me SC.Learn about Independent Living for All fromAble SC. Research Day Services in South Carolina. Look into getting a break from caregiving byvisiting the South Carolina Respite Coalition. Learn about Kinship Caregiving. Download Your Legacy of Care: Providing forYour Special Needs Child Today, Tomorrow &Always- by Donald Bailey with J. William G.Chettle. Visit The Arc's Center for Future Planning. Your Adult Child with a Disability is 21 Years Old. WHAT TO EXPECT BASIC INFORMATIONResources You May Find Helpfulhomeschoolingsc.org/special-needs-college-programs-scddsn.sc.gov/about-us/divisions/intellectual-disability-and-related-disabilities/residential-habilitationscvrd.netable-sc.org/get-support/employment-programshiremesc.org As parents, we hope for our children to grow up and, as difficult as it may be for usemotionally, fly the coop to live on their own as full-fledged, independent adults.However, if you have a child with special needs, these concerns run much deeper, andthat goal may seem out of reach. This is why parents should start to consider whathappens to their children with special needs, no matter how young they may be, wellbefore they turn 21. Will your child continue their education? Will they live on their own? What about getting a job? Will your child need integrated and/orsupported employment?Will your child need to continue workingon increasing independence to whateverextent is possible? How will he or she participate in thecommunity? What happens if you are no longer able tocare for your child? Life is full of transitions, and one of the moreremarkable ones occurs when our kids areready to leave high school and go out intothe world as young adults. One of the first things to consider is what willyour child with special needs do aftercompleting high school. You may find the following links to resourceshelpful as you plan for your child's futureafter high school. 1 2

In the SSI program, a child becomes an adult atage 18. Different medical and non-medical rulesare used in determining eligibility. The income andresources of family members (except for aspouse) are not considered when deciding whetheran adult meets the financial limits for SSI. Only theadult's (and spouse's) income and resources arecounted. Additionally, the disability rules for adultsare used when deciding whether an adult has adisability. If your child is already receiving SSI, their medicalcondition will be reviewed once they turn 18. Theadult disability rules will be used to determineeligibility. Even if your child wasn't eligible for SSI before their18th birthday because you or your spouse had toomuch income or too many resources, they maybecome eligible for SSI at age 18. For moreinformation, read Supplemental Security Income(SSI) (Publication No. 05-11000). To start your application, go to the Apply forBenefits page. Next, gather the information anddocuments you need to apply. The Adult DisabilityChecklist provides the information you need tocomplete the application. HOW TO APPLY FOR SOCIAL SECURITYBENEFITS WHEN YOU HAVE A CHILD WITH ADISABILITYBENEFITS FOR CHILDREN BENEFITS FOR ADULTSChildren younger than age 18 can qualify if theyhave a medical condition or combination ofconditions that meets Social Security's definition ofa disability. Their income and savings or otherresources must fall within the eligibility limits. Theamount of the SSI payment is different from state tostate because some states add to the SSI payment.Your child's income and resources are consideredwhen deciding eligibility. Income and resources offamily members living in the child's household arealso considered. You will need to provide detailed information aboutyour child's medical condition and about how itaffects the child's ability to perform daily activities.Your child's doctors, teachers, therapists, and otherprofessionals who have information about yourchild's condition will need to send information aswell. The Disability Determination Services office maytake 3-5 months (or longer) to determine eligibility.After approval, the law requires that they reviewyour child's medical condition from time to time toverify that their disability still meets their criteria,even if your child's condition is not expected toimprove. The Social Security Income (SSI) program is a needs-based program that provides monthlypayments to adults and children with a disability or blindness who have income and resourcesbelow specific financial limits. Resources are assets or things that you own. This program is paidfor by general tax revenues, not from the Social Security trust funds. The benefit amount is basedon Federal and State laws which take into account where you live, who lives with you and whatincome you receive. *Click here to compare SSI and SSDI. Resources You May Find Helpful Social Security Disability Benefits Starter KitContact your local Social Security office or check the status of your application by calling 800-772-1213.Learn about how to Appeal a Decision.Once approved, you must report certain changes. Here is a list of those changes. Information about Reporting Wages for SSI. 1 3

To participate in a waiver program, a personmust be: -diagnosed with an Intellectual Disability or aRelated Disability -eligible to receive Medicaid or alreadyqualified for Medicaid-require the degree of care that would beprovided in an ICF/IID; therefore, meet ICF/IIDLevel of Care criteria-be given the option of receiving services inhis/her home and community or in an ICF/IIDand choose to receive services in his herhome and community-have needs that can be met by theindividual waiver-allocated a waiver slot-informed of the alternatives covered by thewaiver, and choose to receive the waiverservices, and choose among qualifiedproviders*Click here to read about requirements for theHead and Spinal Cord Injury Waiver (HASCI).*For details on how to apply for these waivers,contact your case manager. MEDICAID HOME AND COMMUNITY-BASEDWAIVER SERVICES (HCBS)BASIC INFORMATION IMPORTANT FACTSThe Intellectual Disability/RelatedDisabilities (ID-RD) WaiverThe Community Supports Waiver, and The Head and Spinal Cord Injury (HASCI)Waiver The Home and Community-Based Services(HCBS) Waiver Program was established in1981 and allowed States to elect to furnishunder Medicaid, as an alternative toinstitutional care, a broad array of servicesthat are otherwise not covered under theMedicaid program. The South Carolina Department of Disabilitiesand Special Needs (DDSN), on behalf of theSouth Carolina Department of Health andHumans Services (DHHS), operates threeHCBS Waiver Programs. They are: The South Carolina Department of Health and Human Services (DHHS) offers home andcommunity-based waivers programs for persons who are eligible for nursing home care but whoprefer to receive services in the community. Through a process of case management and anindividualized service package, waiver clients are able to successfully remain at home at a cost toMedicaid that is substantially less than the cost of institutional care. Resources You May Find Helpful Medicaid Home and Community-Based Waiver ServicesID-RD Waiver Info Sheet (SC.0237) Community Supports Waiver Info Sheet (SC.0676)HASCI Waiver Info Sheet (SC.0284)*Information retrieved from scdhhs.gov. Please refer to their site for the most current information. 1 4

Adult Day Health Care (ADHC) - Medicallysupervised care and services provided at alicensed day care center. Transportation toand from the home is provided within 15 milesof the centerRespite Care - Temporary relief for the client'scaregiver by admission to an in-patientfacility (nursing home or hospital) orcommunity residential care facility (CRCF)Personal Emergency Response Systems(PERS) - Provides an electronic device whichenables high risk individuals to secure help inthe event of an emergencyLimited Incontinence Supplies - Provideslimited supply of diapers and underpads*For a list of more Community Long TermCare programs and/or services, please clickhere to visit them online. COMMUNITY LONG TERM CARE (CLTC)COMMUNITY CHOICES WAIVER PROGRAMBASIC INFORMATION...CONTINUEDServices offered in the Community ChoicesWaiver include:Personal Care I - Provides assistance withgeneral household activitiesPersonal Care II - Helps with activities such asbathing, dressing, preparing meals,housekeeping, and observing health signsAttendant Care - A client-directed service toprovide personal care assistanceCompanion - Services that provide short-term relief for caregivers and neededsupervision of clientsEnvironmental Modification - Pest controlservices and minor physical adaptation to thehomeHome Delivered Meals - Regular or specialdiet meals delivered to the client's homeResources You May Find Helpful Community Choices Waiver Reports and StatisticsCommunity Choices Waiver DocumentApplying for Waiver ServicesApplying to Become a Provider of Community Choices Waiver Services*Information retrieved from scdhhs.gov. Please refer to their site for the most current information. Community Long Term Care (CLTC) offers programs to help individuals who want to liveat home, need assistance with their care, and are financially eligible for Medicaid. CLTCcan help individuals remain at home and avoid unnecessary or premature nursing homeplacement. CLTC services are available for persons age 18 years or older who are unableto perform activities of daily living, such as bathing, dressing, and toileting due to illnessor disability, and meet the same level of care needed to enter a nursing facility. 1 5

Pediatric medical day careCare coordination by a registered nurse(RN)Children's private duty nursing (Medicaidstate plan, if meets medical criteria)Children's personal care aide (Medicaidstate plan, if meets medical criteria)Pediatric medical day careDurable medical equipmentSchool serviceTransportationExamples of RN care coordination include, butare not limited to: MEDICALLY COMPLEX CHILDREN'S(MCC)WAIVERBASIC INFORMATION SERVICES OFFEREDProvide ongoing continuity of care tochildren through the use of nurse carecoordinators (these coordinators serve asliaisons between waiver participants andall medical and community serviceproviders).Decrease hospitalizations and emergencyroom visits (this effort will improve qualityof life for waiver participants and be cost-effective).Medically complex children may haveconditions that involve multiple organsystems, require the use of technology tosustain life, use a wheelchair, braces, lifts orother special equipment, use more medicalservices than the average child, such asmedical daycare, private nursing, andrehabilitative therapy, or receive care in amedical foster home. The goals of the Medically Complex Children's(MCC) Waiver are to:Resources You May Find Helpful MCC Waiver Information SC Medically Complex Children (0675.R03.00)Click Here to Make an Online ReferralFor More Information, Please Contact 803-898-2577 or 803-904-8082The Medically Complex Children's (MCC) Waiver is a statewide program to servemedically complex children from birth to age 18. Children qualifying for this program mustmeet level of care, have both chronic physical and health conditions that are expected tolast longer than 12 months, and meet medical criteria which determines the child needscomprehensive medical, nursing, health supervision or intervention. Eligible children mustbe residents of South Carolina and qualify for Health Connections Medicaid. 1 6

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Medicaid Home and Community-Based Waiver Services(HCBS) Program allows states to furnish, as an alternative toinstitutional care, a broad array of services that are otherwise notcovered under the Medicaid program. You must apply for awaiver as soon as possible (even if you think you won’t needthese services for a few years) because, at this time, there arewaiting lists. For more information, visit them online at tinyurl.com/HCBSWaiversSC or contact your case manager forassistance with applying. S.C. Department of Disabilities and Special Needs (DDSN) is thestate agency in charge of services for South Carolinians withintellectual disability and developmental disabilities (such asautism, traumatic brain injury, spinal cord injury, and fetalalcohol syndrome). For more information, including communityeducation, contact 803-898-9600 or visit ddsn.sc.gov.Medicaid/ TEFRA provides health care coverage to low-incomeindividuals, families and the disabled. For eligibilitydetermination, call 888-549-0820 or visit scdhhs.gov/Getting-Started.S.C. Department of Health & Human Services (DHHS) is the stateagency that administers Medicaid. For more information, call888-549-0820 or visit scdhhs.gov.Health Insurance Premium Payment (HIPP) helps families withthe cost of premium payments for eligible Medicaid beneficiarieswho retain their private health insurance. Call 888-289-0709(option 5, then option 4) or visit them online attinyurl.com/SCHIPPprogram.Supplemental Security Income provides financial assistance tomeet basic needs for food, clothing and shelter. It is designed tohelp aged, blind, and disabled people who have little to noincome. Call the Social Security office at 1-800-772-1213 for moreinformation or visit ssa.gov/ssi. S.C. Department of Social Services (DSS) is the state agencythat promotes the safety, permanency, and well-being ofchildren and vulnerable adults. For more information, call 803-898-7601 or visit dss.sc.gov.1 8

Food Stamps (SNAP) provides assistance to low-incomefamilies (who qualify) with purchasing food. Call the Departmentof Social Services (DSS) at 800-616-1309 for more information orvisit them online at dss.sc.gov/assistance-program/snap. Women, Infants, Children (WIC) Nutrition Program provideshealth education, healthy foods, breastfeeding support, andother services free of charge to families who qualify. Call 855-472-3432 or visit scdhec.gov/health/women-infants-children-wic-nutrition-program to learn more. ABC Special Needs Child Care Voucher Program providesfinancial assistance to low-income families who need child carefor developmentally delayed children up to age 19. Call 803-898-9735 or visit tinyurl.com/ABCvoucherSpecialNeeds for moreinformation.Family Arranged Respite Coalition Voucher Program is forcaregiver relief. Vouchers are awarded to eligible familycaregivers to pay for breaks from hands-on caregiving. Visittinyurl.com/SCRespiteVoucher for more information. Transportation Reimbursement (Modivcare) provides mileagereimbursement for driving yourself or your child to certainmedical appointments. Visit modivcare.com/facilities/sc formore information.Disability Rights South Carolina protects and advances thelegal, civil and human rights of people with disabilities in SouthCarolina. Call 866-275-7273 or visit disabilityrightssc.org formore information. South Carolina Parents-Helping Families Every Day has provenprevention programs and resources that help families with theirchallenges, big and small. Visit their website at scparents.org tofind help today. S.C. Assistive Technology Program provides technology forpeople with disabilities so they can work, live, learn, and be anindependent part of the community. Visit sc.edu/scatp for moreinformation.1 9

Greenwood Genetic Center provides genetic services, diagnosticlaboratory testing, educational programs and resources, andresearch in the field of medical genetics. Visit ggc.org to learnmore. Center for Disability Resources Library lets you check out books,videos, and other materials related to various disabilities. Theyare located at the USC School of Medicine Library. For moreinformation, visit uscmed.sc.libguides.com/cdrlibrary. SC Thrive is helping people access what they need to bephysically, mentally, and financially healthy. Call 800-726-8774or visit scthrive.org to learn more.Wright Directions Family Services provides a wide range ofrehabilitative behavioral health services across South Carolina.Visit wrightdfs.com for more information.Palmetto Able Savings Plan helps you save and invest fortomorrow in a tax-advantaged ABLE account without losingfederal needs-based benefits. Learn more at palmettoable.com.Children & Youth with Special Health Care Needs (CSHCN)Program provides specialized, extensive care for children whosemedical needs may not be met solely through primary care. Visittinyurl.com/CSHCNProgram or call 855-472-3432 for moreinformation. Children’s Personal Care Aide (PCA) Program provides apersonal care aide to children under age 21 who live at home. Theaide can help your child with bathing, eating, toileting,incontinence, transferring and other activities of daily living. Formore information, visit tinyurl.com/PCAprogram or contact yourcase manager. Justice Works Behavioral Care (JWBC) offers a full range ofbehavioral health services to children and families working withthe SC Department of Social Services, Juvenile Justice, Education& Mental Health, as well as self-referrals. Call 877-525-5992 orvisit them at tinyurl.com/JusticeWorksBehavioralCare. 2 0

South Carolina Youth Advocate Program (SCYAP) promotesindividualized treatment, flexible programming, case andcause advocacy, and community-based services for at-risk orspecial needs children and their families who have emotional,behavioral, mental, and medical needs. Learn more atscyap.com or call 800- 882-5513. Child Development & Behavioral Health specializes inevaluating and treating children with developmentaldifficulties and related behavioral issues. Call them at 803-296-5437 or visit palmettohealthchildrens.org/pediatric-specialties/child-development-and-behavioral-health. Family Connection of S.C pairs parents whose child justreceived a diagnosis with a mentor family. They also provideinformation, support, education and referrals to meet theindividualized needs of referral families. Call 800-578-8750 orvisit them online at familyconnectionsc.org for moreinformation.2 1

For a list of additional service providers near you, search DDSN’sProvider/Service Directory by visiting them online atddsn.sc.gov/services/find-service-provider. The Arc of South Carolina is a statewide advocacy groupsupporting the rights of individuals with intellectual anddevelopmental disabilities and a case managementorganization that focuses on person-centered planning,inclusion, and empowering people with disabilities to makechoices about their lives. Call us at 803-748-5020, contact us byemail at thearc@arcsc.org or visit us online at arcsc.org for moreinformation. Search our Statewide Directory of DisabilityResources to locate disability resources available throughout thestate. You can find a link to it on the website under the Resourcestab. Learn about The Arc’s Free Financial Planning Resources atthearc.org/financial-planning-resources, and visit The Arc’sCenter for Future Planning at futureplanning.thearc.orgScan Me for more Information! 2 2

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S.C. Department of Social Services (DSS) is the state agency that promotesthe safety, permanency, and well-being of children and vulnerable adults. Formore information, call 803-898-7601 or visit dss.sc.gov. Transportation Services for people with disabilities. Call 803-834-2382, sendthem an email at mobility@thecometsc.gov or visit them online atcatchthecometsc.gov. Department of Health and Human Services (DHHS) is the state agency thatadministers Medicaid. For more information, call 888-549-0820 or visitscdhhs.gov. Medicaid Home and Community-Based Waiver Services (HCBS) Programallows states to furnish, as an alternative to institutional care, a broad array ofservices that are otherwise not covered under the Medicaid program. You mustapply for a waiver as soon as possible (even if you think you won’t need theseservices for a few years) because, at this time, there are waiting lists. For moreinformation, visit tinyurl.com/HCBSWaiversSC or contact your case manager forassistance with applying. Supplemental Security Income provides financial assistance to meet basicneeds for food, clothing and shelter. It is designed to help aged, blind, anddisabled people who have little to no income. Call the Social Security office at1- 800-772-1213 for more information or visit ssa.gov/ssi. Food Stamps (SNAP) provides assistance to low-income families (who qualify)with purchasing food. Call the Department of Social Services (DSS) at 800-616-1309 for more information or visit them online atdss.sc.gov/assistanceprogram/snap. S.C. Department of Disabilities and Special Needs (DDSN) is the state agency incharge of services for South Carolinians with intellectual disability anddevelopmental disabilities (such as autism, traumatic brain injury, spinal cordinjury, and fetal alcohol syndrome). For more information, including communityeducation, contact 803-898-9600 or visit ddsn.sc.gov. SC Department of Mental Health (SCDMH) gives priority to adults, children andtheir families affected by mental illnesses and emotional disorders in order tosupport recovery. Visit scdmh.net for more information or call 800-763-1024. If you or someone you know is experiencing a mental health emergency, callthe Statewide Crisis Response dispatcher at 833-364-2274 or call 911. 2 4

Transportation Reimbursement (Modivcare) provides mileagereimbursement for driving yourself or your child to certain medicalappointments. Visit modivcare.com/facilities/sc for more information. S.C. Assistive Technology Program provides technology for people withdisabilities so they can work, live, learn, and be an independent part of thecommunity. Visit sc.edu/scatp for more information. Greenwood Genetic Center provides genetic services, diagnostic laboratorytesting, educational programs and resources, and research in the field ofmedical genetics. Visit ggc.org to learn more. Family Service Center of SC helps individuals and families in South Carolinagrow stronger, healthier, and happier. Visit fsconline.wordpress.com for moreinformation. SC Thrive is helping people access what they need to be physically, mentally,and financially healthy. Call 800-726-8774 or visit scthrive.org to learn more. South Carolina Parents-Helping Families Every Day has proven preventionprograms and resources that help families with their challenges, big and small.Visit their website at scparents.org to find help today. Disability Rights South Carolina protects and advances the legal, civil andhuman rights of people with disabilities in South Carolina. Call 866-275-7273 orvisit disabilityrightssc.org for more information. Able SC empowers people with disabilities to achieve their highest level ofindependence by creating greater access and promoting communityinclusion. Call 800-681-6805 or visit able-sc.org for more information. Family Arranged Respite Coalition Voucher Program is for caregiver relief.Vouchers are awarded to eligible family caregivers to pay for breaks fromhands-on caregiving. Visit tinyurl.com/SCRespiteVoucher for more information. IMPACT SC Self-Advocacy Council is a statewide self-advocacy group thatencourages positive change for people with disabilities through workingtogether to enhance lives while making a stand for change. Visit impactinsc.comfor more information. 2 5

Wright Directions Family Services provides a wide range of rehabilitativebehavioral health services across South Carolina. Visit wrightdfs.com for moreinformation. The South Carolina Supported Decision Making Project encourages you toexplore ALL the options before seeking guardianship for your loved one. Visitscsupporteddecisionmaking.org for more information. Palmetto Able Savings Plan helps you save and invest for tomorrow in a tax-advantaged ABLE account without losing federal needs-based benefits. Learnmore at palmettoable.com. Vocational Rehabilitation (Voc-Rehab) helps people with disabilities find andkeep employment. Visit scvrd.net. Center for Disability Resources Library lets you check out books, videos, andother materials related to various disabilities. They are located at the USC Schoolof Medicine Library. For more information, visit uscmed.sc.libguides.com/cdrlibrary. 2 6

Learn about The Arc’s Free Financial Planning Resources atthearc.org/financial-planning-resources, and visit The Arc’s Center for FuturePlanning at futureplanning.thearc.org. The Arc of South Carolina is a statewide advocacy group supporting the rightsof individuals with intellectual and developmental disabilities and a casemanagement organization that focuses on person-centered planning, inclusion,and empowering people with disabilities to make choices about their lives. Callus at 803-748-5020, contact us by email at thearc@arcsc.org or visit us onlineat arcsc.org for more information. Search our Statewide Directory of DisabilityResources to locate disability resources available throughout the state. You canfind a link to it on the website under the Resources tab. For a list of additional service providers near you, search DDSN's Provider/Service Directory by visitingthem online at ddsn.sc.gov/find-service-provider.This is not an all-inclusive list of resources you or yourloved one may be eligible to receive. SC Medicaideligibility may be required to access some of theservices listed in this brochure. Please contact yourcase manager for more information. Scan Me for More Information!2 7

803-748-5020Our Case Managers Looking for Assistance & Support? Let our teamhelp you! The Arc of South Carolina promotes and protects thehuman rights of people with intellectual & developmentaldisabilities and actively supports their full inclusion andparticipation in the community throughout their lifetimes. We Provide Person-CenteredCase Management ServicesOr email us at thearc@arcsc.orgOur team is on the frontlines to ensure that people withintellectual & developmental disabilities have the support &services they need to be fully engaged in their communities. www.arcsc.orgVisit us online at www.arcsc.org for more information.The Arc of South Carolina 1202 12th St. Cayce, SC 290332 8