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A Z I N E F O R M E N T A L H E A L T H R E S E A R C H T R A N S L A T I O NQ2Sept 2023Lost in TRANSLATIONThis front cover piece is an original artwork that has been drawn by theAboriginal Co-Design Lead in The ALIVE National Centre, MuruworiGumbaynggirr man Phillip Orcher.Medium: Black craft paper, gold and pink pigment ink pen

Lost in Translation ZINE Q2 September 2023Cover ImageMr Phillip OrcherEditorKate Fowler editor_alivezine@unimelb.edu.auFeature ContributorsVictoria Palmer, Michelle Banfield, Rachel Tindall, Alan BroughAdvertisingadvertising_alivezine@unimelb.edu.auSubmissionsContact the editor to discuss editor_alivezine@unimelb.edu.auVisual AssetsCaroline TjungALIVE NationalThe Haven FoundationPublished quarterly by ALIVE National Centre for Mental HealthResearch TranslationThe University of MelbourneParkville, Vic 3052This piecerepresents pocketsof gold within thestructure of systemswith shared spacesof symmetry andculture existing asone. The directiveline within a linearstructure representsthe institutionalframe that well-being is supposedto accommodateindividuality. Thegold meetingspaces are addingindividuality to thelinear space andoccupying theempty middle withorganic layers ofenergy.www.alivenetwork.com.au

Original artwork by Kamilaroi/Gamilaraay Artist, Dennis Golding SEPTEMBER 2023We acknowledge the Traditional Custodians of Countrythroughout Australia and recognise their continuingconnection to land, waters and sky. We pay ourrespects to their Elders past, present and emerging. We are committed to working together to address thehealth inadequacies within our Aboriginal and TorresStrait Islander communities. The Uluru statement fromthe heart is a fundamental driver of our research,education program and commitment to equity andaccess.5The ALIVE National Centre for Mental Health Research Translation is funded by theNational Health and Medical Research Council (NHMRC) Special Initiative in MentalHealth GNT 2002047

CONTENTS3ALIVE National CentreCo-Directors, Sandra,Michelle and Victoriaintroduce our brand newzine to provide a spacefor discussion aboutwhat's new and makingan impact in mentalhealth researchtranslation.WELCOME6Meet the people behindthis issue's featurearticles.FEATURECONTRIBUTORS7Co-Directors MichelleBanfield and VictoriaPalmer explain why ahaving a NationalStrategy is an importantnext step towardsembedding lived-experience in mentalhealth research andwhat it means for thesector.A NATIONALSTRATEGY FORLIVED-EXPERIENCE INMENTAL HEALTHRESEARCH13A new podcast, producedby Alan Brough. Thepodcast aims to build a newcommunity and offer a newway of talking about themany different waystranslation happens and itsimportance for improvingexperiences of care andaddressing unmet needs.NEW: LOST INTRANSLATIONPODCAST2226We are revisiting Writer-in-Residence, DrR Tindall, who discussesthe importance ofbuilding tolerance andreadiness to sit withinthe grey regions of co-design.THEOPPORTUNITIESTHAT LIE WITHINTHE GREY

ALIVE NationalLiving RoadmapUpdate Writers inResidence 3325Featured Events Ready, Set,Translate 3739Calendar 42Our virtualtranslation cafe Co-Design LivingLabs NetworkImplementationand TranslationNetwork3024IN EVERY ISSUENetwork Updates Next GenerationResearcherNetworkTailored CapacityArm: Lived-ExperienceResearchCollective918CONTENTS4A new Victorian centre forcollaborative mental healthand wellbeing.ALIVE NATIONAL - A PARTNER IN THE NEWVICTORIAN COLLABORATIVECENTRE36

Dear Readers, Welcome to the first edition of Lost in Translation, a new zine forAustralian Mental Health Research Translation. Previously knownas the ALIVE Community Update, we have undergone a massiveredesign for spring with the aim of bringing you the latest inmental health research in what we hope is an engaging anddynamic format. Each quarter we will release this zine with feature articles aboutkey translational activities in the sector. This issue's feature article iswritten by Co-Directors Michelle Banfield and Victoria Palmer onwhy a national strategy for lived-experience in mental healthresearch is needed. We provide information on the process andnext steps and encourage you to get involved.We would also like to announce that the ALIVE National Centre forMental Health Research Translation is a partner of the VictorianCollaborative Centre for Mental Health along with 17 otherorganisations. We look forward to working with our new partnersto improve people's wellbeing through innovative recoveryprograms and translational research initiatives. Finally, there is a lot of debate about a constitutionally enshrinedvoice to Parliament. Our Co-Directorship is committed to the FirstNations People of Australia being recognised in our Constitutionand the establishment of an advisory body to liaise withgovernment on matters relating to Aboriginal and Torres StraitIslander people. Our position is YES. Some people will still bedeciding or feel that more is needed for treaty but this first stepwill ensure the oldest living culture of First Peoples is recognisedconstitutionally. That matters to us.We hope you enjoy our new zine for the sector and consider howyour work might contribute in the future too.6WELCOMEVictoria, Michelle & Sandra

MICHELLE BANFIELDMichelle researches effectiveservices and policy forimproving care andoutcomes in mental ill-health. Michelle is the headof the Lived-ExperienceResearch Unit at the Centrefor Mental Health Research,which aims to increase theinvolvement of mentalhealth consumers and carersin the research process andconduct research relevant totheir needs. Michelle leadsthe Safe Space peer-ledevaluation and lived-experience research.Co-Director ALIVE NationalCentre for Mental HealthResearch TranslationFEATURE CONTRIBUTORS7VICTORIA PALMERVictoria trained in thehumanities and arts, and is aparticipatory design,experience co-design andmixed-method researchpractitioner. They are also thehead of the Co-Design LivingLabs program. Together withCo-Directors Michelle andSandra, they lead a team foran MRFF funded flagship inALIVE National, PEACE to co-create preventative,experiential, arts, culturalevidence models forbigaagarri, a Gumbaynggirrword used with permissionmeaning danger/threats towell-being.Co-Director ALIVE NationalCentre for Mental HealthResearch Translation

Alan has appeared in fourfeature films, is a regularpresenter on ABC radio, hasguest starred in numeroustelevision shows and is aknowledgeable teamcaptain on the popularmusic quiz show, Spicks andSpecks. Adding to this, Alanwill now be producing andco-interviewing withMuruwori Gumbaynggirrman, Mr Phillip Orcher forour very own podcast. Turnto page 22 to find out more.FEATURE CONTRIBUTORS8Rachel is a mental healthnurse and ProgramImplementation Manager atBarwon Health MentalHealth Drugs and AlcoholServices. They have extensiveclinical, research and projectmanagement expertise andis a strong advocate for lived-experience participation at alllevels of mental healthservice reform, design anddelivery. Rachel was ourinaugural Writer inResidence and hascontributed this issue’sarticle.RACHEL TINDALL ALAN BROUGHDirector of Nursing andProgram ImplementationManager, Barwon HealthMental Health, Drugs andAlcohol ServicesActor, comedian, televisionand radio presenter, writer,director, singer, musicianand author.

NEXT GENERATION RESEARCHERNETWORKNETWORKUPDATE9ANNUAL FUNDING GALAXY Q&A EVENT Securing research funding as an early careerresearcher (ECR) in mental health is no easyfeat. It can be difficult to know where to startand where to turn to for help. In order tosupport our ECRs, each year the NextGeneration Researcher Network (NGRN) holdsan Annual Virtual Funding Q&A event whereECRs are given an opportunity to ask theexperts all their burning questions. The event theme is “Hitchhikers Guide to theGalaxy”, premised on the fact that the fundinguniverse is enormous and we could all do witha guide to help us through it. Delving into the Early Career Cosmos

10EXPERT PANELISTSA/Prof Gregory Armstrong A/Prof Carly Johnco A/Prof Miriam Forbes Dr Justin Chapman Dr Catherine Brasier Dr Lou Farer The University of Melbourne Macquarie University Macquarie University Griffith University La Trobe University Australian National University After each event, insights gained from the experts arecompiled into a trusty “guidebook“, a continually updated,live-resource for ECRs to use whenever they feel the need.We are pleased to announce that as of 2023, this invaluableresource will also be made available to the public.This year’s event was held on the 30th of August and thepanel comprised of six experts in the field, all with recentgrant successes and who kindly gave up their spare time toshare their brilliant insights with us.

TOPICSBuilding a track record with minimal resources Staying hopeful and persistent How to find out about opportunities such tenders,contracts and consulting work How to meaningfully collaborate and include lived-experience researchers Maintaining work-life balanceQuestions were submitted both in advance and during thesession via SLIDO. Themes that arose this year included: Watch this space for the release of our 2023 guidebook. Alink to a recording of the event will also be included in theguidebook, in case you missed it.If you’re not yet a member of NGRN, join here and keep upto date.11The NGRN co-leads hosted the event with Dr Caley Tappproviding the opening address and a recognition of lived-experience from Ian Muchamore. Amy Coe and Bec Cooperled question time and Dr. Vicky Stewart provided theclosing words. Dr Lou Farer, was our “intergalactic panellist”and shared an insightful recording about her careertrajectory as well as many useful tips.Click here to watch the event andview other ALIVE National videos

NEW ZINELOST INTRANSLATIONWelcome to the first edition of the Lost in TranslationZINE. This ZINE is dedicated to bringing you thelatest news in mental health research translation.Each issue will contain a variety of articles andinsights from the across the mental health research,policy and practice sectors through a central theme,giving you the opportunity to skim through for aquick network update or linger a bit longer and findout more about a topic of interest.This zine is for you. It’s about elevating andamplifying the conversations about translationalresearch in Australia. Within the ALIVE NationalCentre we're changing conversations and puttingnew practices into evidence. We do not accept thatresearch translation should take 17 years to reachpolicy and practice (what's called T3), and we want tosee community translation (what's called T4) as thehighest priority for setting research agendas foraction. We welcome short submissions from lived-experience researchers, researchers, educationalinstitutions, policy makers, service professionals,industry organisations, peak bodies and relevantassociations. If you are interested in contributing to the nextedition of the zine, please contact the editor forfurther details on how to submit your article. 12editor_alivezine@unimelb.edu.au

Click here to helpshape the NationalStrategy for MentalHealth ResearchTranslation.GET INVOLVEDA NATIONALSTRATEGY FORLIVED-EXPERIENCEIN MENTAL HEALTHRESEARCHOver the past two decades, we have seen aslow but noticeable increase in the activeinvolvement of people with lived-experience in mental health research. There is no question that this is necessaryand very positive but it does come 13MICHELLE BANFIELD AND VICTORIA JPALMERWHAT IS IT AND WHY DO WE NEEDONE?

with some uniquechallenges. As we bringlived-experience intoformalised knowledgecreation processes, weneed to tease out and payspecific attention to theissues this may create orenhance.Research, particularly inacademic settings, comeswith a set of well-knownchallenges in powerstructures, job insecurity,isolation and constantcritique.These are ongoingchallenges to confidenceand self-esteem faced byall researchers. Wesupport our early careerresearchers to developand thrive in thisenvironment through 14capacity-buildingschemes such as theALIVE Next GenerationResearch Network. However, what about theneeds of people withlived-experience, whomay have careers as lived-experience researchers, but alternately may becontributing to researchin other ways such as co-design or advisorygroups? We need to ensure that allof these contributors aresupported to navigate thechallenges of the researchenvironment,acknowledging that theremay be additionalsensitivities whilst notbeing patronising orpaternalistic. The NationalStrategy willprovidestructure andguidance toresearchsectors,governmentand policywho arelagging inprovidingsolidconditions,careerpathwaysand modelsfor integratedresearchapproaches.

In particular, openidentification as someonewith lived-experience isdesigned to reducestigma but paradoxically,it can actually increase therisk of discrimination andundermine perceptions ofcompetence. Broad lived-experienceguidelines, such as thosedeveloped for the peerworkforce in services,provide some principleson which this balancemay be based but theyare not specific enough tothe research environmentto provide the necessarystructure and guidance tothe government, policyand all research sectors. The National Strategy forLived-Experience inMental Health Researchwill fill this gap. The aim isto co-create the principlesand processes that areneeded to progressembedded lived-experience in mentalhealth research. This willensure that there is clarityon capacity buildingneeds and career pathwaydevelopment of lived-experience researchersand others engaging inresearch design andtranslation.15The process and timeframe for thedevelopment of theStrategy is detailed on thefollowing page . We willbe working with membersof the ALIVE Lived-Experience ResearchCollective and with lived-experience and researchcommunities morebroadly to scope thelandscape and co-designthe Strategy over the next18 months. If you are interested inplaying an active role inshaping the NationalStrategy, click the link onpage 13 to participate.

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Click hereif youwould liketoparticipatein thesurvey orlearn moreabout theTLCproject LIVED-EXPERIENCE RESEARCHCOLLECTIVETHE LONG CONVERSATION PROJECTWho are the researchers that are usinglived-experience to conduct research?Where they are located (geographically andin which types of research organisations)?What principles, values and methods guidetheir work?The Long Conversation is a nation-wideflagship project of the ALIVE Lived-ExperienceResearch Collective. In this project we aim toexplore:Essentially, we want to know the who, what,where and how of lived-experience mentalhealth research in Australia. RESEARCHCOLLECTIVEUPDATE18

i-LEARN SERIESWe’ve also been busy building the capacity of ourLived-Experience Research Collective byprogressing plans for the second module of the i-LEARN series. i-LEARN is a three-part, virtual learning studio thatintroduces people across Australia with an interestin integrated lived-experience and appliedresearch to principles, practices and processes tosupport mental health research translation.Module 1 explored practices, models andprinciples. Module 2 will look at processes, powerand decision-making. Module 3 will provideresearch workforce training and guidance. Staytuned for more updates. Click hereto helpshape theNationalStrategyfor Lived-Experiencein MentalHealthResearch.NATIONAL STRATEGY FOR LIVED-EXPERIENCE INMENTAL HEALTH RESEARCHDuring July, we also announced the developmentof a National Strategy for Lived-Experience inMental Health Research.You can read more on pages 13 - 17 on how thestrategy will fill the gap that exists betweencurrent lived-experience guidelines and thestructure and processes that are necessary forintegrated and embedded lived-experiencemental health research. 19Our first survey was recently launched in July andby the time this zine was released, more than 100people have helped start the conversation tolocate Australian mental health or suicideprevention researchers who use lived-experienceto inform their work and/or are currently inidentified, lived-experience research roles.

Ethics and privacy principlesAgency and choiceLanguageSafe data storageThe different types of research methodologywhere lived-experience can be embeddedand how to do it wellWhat is peer review and how does ithappen?Critical appraisal versus review – what is thedifference?How to critically appraise a research paper Topics discussed:ORIENTATION TO APPLIED RESEARCH FORLIVED-EXPERIENCE RESEARCHERSWe recently held a one-day course on theOrientation to Applied Research for Lived-Experience Researchers. A total of 77 peopleattended the course, which was delivered as ahybrid event at The University of Melbourne with31 people participating on campus and 45 peoplejoining virtually via Zoom. Our team of presenters included: A/Prof MichelleBanfield, Prof Victoria Palmer, Dr Jennifer Bibb,and Dr Julia Dray from ALIVE, and partners DrKatie Lamb and Fiona from the Safer FamiliesCentre of Research Excellence (CRE). 20

Remember to check the mindset and safetyof both researchers and co-designparticipants. Self-reflection questions forresearchers are important.Rigour, respect and accountability areimportant privacy principles to apply inresearch and are embedded within mostorganisation’s Codes of Conducts. Don’t force your research into a designwhere it doesn’t belong. Quantitative andqualitative designs can be about creatingmeaning as well as collaborative processes.Lived-experience involvement should beconsidered a critical ingredient across allstages of research.Sometimes the only way to learn how tocritically appraise research is to give it a go. Top take-home messages:21Katie and Fiona also walked us through the newFamily Violence Experts by Experience Frameworkand explained the processes they took to co-produce the framework with victim survivors fromthe WEAVERs lived-experience group andresearchers from The University of Melbourne'sSafer Families Centre.

PODCASTLOST INTRANSLATION“The word 'translation' comes,etymologically, from the Latin for'bearing across'. It is normallysupposed that something alwaysgets lost in translation; I cling,obstinately to the notion thatsomething can also be gained.” Salman Rushdie, ImaginaryHomelands: Essays and Criticism1981-1991No matter how hard we try,whenever we strive to connect withanother person or group of people,we risk losing something betweenthe idea we have in our head and thecommunication of that idea.It’s the same in research, we try toidentify the ideal model of care orapproach to changing the course ofpeople’s health outcomes orpreventing mental ill-health, andsomewhere along the way, things getlost in translation. Maybe it is asRushdie says, that they can also befound.22ALAN BROUGH AND VICTORIA JPALMER

How do we go about finding agreater language, a sharedlanguage? A language in whichwe can have greaterconversations and devise agreater plan? A way torecognise that translation is allaround us - not just bearingover information and evidencefor people to stick into practice.Let me introduce you to the"Lost in Translation" podcast. Anew series curated by the ALIVENational Centre for MentalHealth Research Translation andproduced by me, Alan Broughwith co-interviewing by PhillipOrcher.The Lost In Translation podcastaims to build a new communityaround translational researchfor implementation of holisticwell-being. In lots of ways thiswill be very [un]podcast like!Through the podcast, we willlisten to the stories, advice andlived-experience of the world’soldest continuous culture. 23Somewhere between the trial ideal that followed all the goldstandard protocols andprocedures, and the messyrealities of complex lives andservice settings, somethinginevitably gets lost in translation.If we will listen “with our earswide open” to the First People ofthis land, we might just be able totranslate some of that ancientknowledge into some of ourcontemporary solutions, whilefollowing appropriate processes.Join us on World Mental HealthDay 10th October 2023 for theunique launch of the Lost inTranslation Podcast and its sisterZine! LAUNCH DETAILSWhenWhereTime10 October 2023Brunswick Town Hall233 Sydney Rd,Brunswick 12:30pm - 3:30pmWhatClick to see theexciting eventsand activitiesplannedRegisterClick orscanhere

IMPLEMENTATION ANDTRANSLATION NETWORKIMPLEMENTATION BRIEFS - SERIES ONE:STIGMAImplementation Briefs are developed by a teamin the Implementation and Translation Network(ITN) within The ALIVE National Centre. Thesebriefs are short, practical documents that aim toinform at-scale delivery of mental health carethrough implementation science.Implementation Briefs are developed on thepriorities from the ALIVE National - ANU Lived-Experience Annual Survey 2022. The first brieffocuses on the link between mental healthstigma and physical health and is now available.Click the link on the left to read the brief.NETWORKUPDATE24Clickhere toreadPartOne of theStigmaSeries.12

WRITERS IN RESIDENCEMeet our newest writers to be invited for the Writers in Residenceprogram - a capacity building and career development initiativesupporting the next generation of mental health research leaders.SCOTT FITZPATRICK MATTHEW JACKMANFounder/PrincipalConsultant of TheAustralian Centre for Lived-ExperienceAs a Mad person and globalmental health activist,Matthew promotes humanrights, social justice andlived-experienceperspective from a publichealth and Mad Studiesdiscipline. Matthewconsults the World HealthOrganisation on lived-experience mental healthperspective and peer workpractice. 25Research Fellow, LivedExperience Research Unitat the Centre for MentalHealth Research, TheAustralian NationalUniversity.Scott's research focusses onthe social and politicaldeterminants of health,suicide and lived-experience. Scott seeks tobroaden the contemporaryethical discussion of suicideand its prevention withinthe fields of research andhealth practice and policyby examining theintersection betweenknowledge, practice, ethicsand politics.

26As an active and passionate co-designer inthe public mental health arena, I enjoyhaving conversations with diverse groups ofpeople around how to build betterconditions for co-design. A recurring themeover the last six-months has been how tobuild a tolerance and readiness to sit withinthe grey.KA McKercher describes the grey as thediscomfort of not knowing, recognising andgrappling with complexity (McKercher2020). As humans, most of us cannottolerate high levels of ambiguity anddiscomfort for long periods of time, and wedrift back to our (perceived) safe places ofcertainty. But the grey areas of co-design arewhere the magic happens (Tindall et al.2021).THE OPPORTUNITIES THAT LIE WITHINTHE GREY Building better conditions for co-designRACHEL TINDALLWRITERS INRESIDENCE"The grey areasof co-design arewhere the magichappens."R. Tindall et al. 2021

27In co-design practice, I often see thisas the space that sits between theexperiences of all involved. A spacewhere all co-designers arerepeatedly called into and a spacewhere innovation can occur. This iswhere the hard, robustconversations happen, primarilyabout how and why the opinionsand ideas of the co-designers areinfluenced by their experiences,perspectives, and knowledge.When the grey is embraced, andthe how and why behind opinionsand ideas are shared, I havewitnessed the creation of solutionsthat transcend one person. Theprocess of having theseconversations can often have moremeaningful impact than the finaldesign outcomes (Cataldo et al.2021) but it requires high levels ofvulnerability. When done well, thesetypes of conversation can facilitatethe cultural change that is nearlyalways required to sustain designand change. When done poorly,they can lead to distress and thepotential for harm.So, how do we best embrace thegrey? From my experience, thethree key requirements forfacilitating the grey are: trust,curiosity and supportive structures.TRUSTCo-designers require theopportunity to build trust witheach other before they embarkon the conversations thatrequire vulnerability. BreneBrown (2021), in her recentpodcast and her Dare to Leadwork states: “Trust is not builtin big sweeping moments. It’sbuilt in tiny moments everyday”. This makes me reflect onthe time that is needed toestablish good conditionsbefore any design activitiesoccur.

From my experience in the publicsector, this is very difficult when timeframes are tight and the process offinding the best people for anyproject reduces opportunities forextensive team building. However,overlooking this formative stageposes the risk of real harm to co-designers, and is therefore essential.Some of the strategies I use topromote early trust within the co-design teams I participate in andlead include: linking co-designersearly, embarking on non-designrelated activities that allow theopportunities for connection, andfacilitating spaces where co-designers get to know each otherbeyond their work personas. Wedrink a lot of coffee, eat a lot of cake,and laugh a lot.28CURIOSITYBeing in the grey requiresparticipants to enter with ahigh degree of curiosity as wellas a desire to learn. Ideas andsolutions emerge throughdialogue and there needs tobe an appetite for morequestions than answers. If co-designers enter with a sense ofcertainty or defensiveness,there is no space for creativity. In my experience, andinformed by KA McKercher’swork, the role of a‘provocateur’ is very beneficialfor facilitating this (McKercher2020, Tindall et al. 2021). The provocateur enters co-design without specificcontent knowledge orexperience, allowing them toquestion assumptions andnorms. Their core role is to be aquestioner and this opens aspace for others to questioneach other and themselves. I have found that this role alsoshifts conversations away fromdichotomies, allowing nuancesto be noticed and discussed.

R. Tindall"Ideas andsolutionsemergethroughdialogue"SUPPORTIVE STRUCTURESWhilst the grey is ambiguous, it needs to existwithin a framework of safety. Co-designersbenefit from clearly understanding the valuethey bring to the design process, their role andpurpose, and who they can escalate anyconcerns to (McKercher 2020). It is helpful tohave dedicated, named people to escalatethese concerns to. These people generally sitoutside of the immediate team but remainknown and accessible to the co-designers. Ihave also found it useful to have regularspaces where the process of co-design itselfcan be reflected on, for example throughcommunities of practice, coaching orsupervision.What other strategies do you have for buildingyour (or your teams) tolerance for sitting in thegrey?REFERENCESBrown, B. (2021). Braving trust part 1-of-2, viewed 9th July 2022,https://brenebrown.com/podcast/braving-trust-part-1-of-2Cataldo, M.L., Street, B., Rynehart, S., White, C. and Larsen, K., 2021. Rememberingradical roots: Lived experience participation movements and the risks andresponsibilities of co-design in community-led change. Parity, 34(6), pp.13-16.McKercher, K.A. (2020). Beyond sticky notes: co-design for real: mindsets, methodsand movements. Sydney, Australia: Beyond Sticky Notes.Tindall, R.M., Ferris, M., Townsend, M.,Boschert, G. and Moylan, S., 2021. A first‐handexperience of co‐design in mental healthservice design: Opportunities, challengesand lessons. International Journal of MentalHealth Nursing. 30(6), pp.1693-1702.29However, if someone is unable to specificallyundertake this role, any person within a co-design process can model these behaviours,and in doing so, facilitate a safe place forcuriosity.

Sam JoanneTomCiaCO-DESIGN LIVING LABS NETWORKWe have recently welcomed seven new co-leads to our team, bringing the total to 15 Co-Design Living Labs Network members who areco-leading our national network! This has beenan exciting time as we continue to take on thediverse contributions and leadership from ournetwork members. Meet our new members:NETWORKUPDATE30Kris Dani BrentonAmit

CO-DESIGNING A NEW MODEL OF CAREFOR FAMILIES IN SOUTHERN MELBOURNEOne of the co-designartefact installationsset up in the localcommunity. Feeling welcomeKnowing the plans ahead of timeMeeting with others who know andunderstandTrusting one anotherThe inaugural Co-Design Living Labs NetworkOpen House Event was held in June and thesecond in September. Six members attendedin-person with three others from QLD, SA andNSW joining virtually. It was a greatopportunity to meet, have a cup of tea and getto know each other. Co-designers contributedreflections to our new shared mural aboutwhat matters to them in being a member ofthe network. Contributions included: OPEN HOUSE EVENT31Our work continues with the local communityin southern Melbourne to co-design the newInfant, Child and Families Health andWellbeing Hub, in partnership with MonashHealth. More than 235 people contributed to a varietyof co-design approaches conducted withchildren, parents and caregivers, communitypartners, local primary schools and MonashHealth staff. The final model of care wasdelivered in July 2023 and staff at MonashHealth are working to implement this.Over the next few months we will continue tomeet with staff on how they are implementingthe new model. Stay tuned for more updates.Shared muralcontributions

The Alex McLeod Designer TrainingAward Program provides yearlysupport for Co-Design Living Labsmembers to be appointed to atraining position to develop their co-design skills and grow thecapabilities within the network'smembership base.Our new 2023 co-designer trainees,Josie, Rose and Gregor, recentlyattended the Lived-ExperienceResearch Collective’s one-day shortcourse "An orientation to LivedExperience Applied Research:context, method, process andpractice".THE 2023 ALEX MCLEOD CO-DESIGNER TRAINING AWARDPROGRAM 32One of the most distinctive andenriching aspects of thisexperience was the chance tolearn from other lived-experienceresearchers. A critical part of their individuallearning journeys is to reflect onhow they can bring their uniquelived-experience to mental healthresearch. Inaugural Open House Event inCarlton, June 2023.

ALIVE NATIONAL CENTRE ROADMAPINTRODUCTIONWelcome to a new section of the eZine. Each issuewill now feature an update on the progress beingmade in the implementation of the ALIVE NationalCentre Roadmap. Recently, the pocket map wasupdated, which is designed to let you see at a glancethe priorities for people. Below is some informationon how the roadmap was started.ROADMAPUPDATE33THE ROADMAP ORIGIN STORYOur Origin Consensus Statement wasformed from priorities that were sharedby 115 Co-Design Living Labs Members.These priorities became Nick’s journey inthe submission for the Special Initiativein Mental Health and shaped the visionof the ALIVE National CentreJuly 2020

34The Consensus Statement set the Centre’sresearch objectives based on memberspriorities. These priorities were combined withthe 2017 ANU ACACIA results and organisedacross three topic areas: mental health research,improvements to mental health care andexperiences and the impacts of socialdeterminants on mental ill-health. A total of 52priorities were created.Mar - Oct 202188 people conducted emotion mapping withthe 52 priorities, identifying areas where therewere shared strong feelings. These strongfeelings were then grouped to establish five keypriorities in each topic area.Feb - Mar 2022The blueprint for the co-design of the ALIVENational Roadmap for Mental Health ResearchTranslation was shared at our first symposium.Prioritised areas and emotion maps were usedto co-create the Phase 1 Consensus StatementShort Horizon Implementation Actions.Mar - Aug 2022The Phase 1 Consensus Statement Short HorizonImplementation Actions were launched to guideresearch goals and integrated knowledgetranslation strategies across the Centre and itsnetwork.Oct 2022 -Feb 2023We have completed public co-design for thePhase 2 Consensus Statement IntermediaryHorizon 2023 Implementation Actions for theFamily Pathway in the Roadmap. STAY TUNED.THE ROADAHEADThe Annual Lived-Experience Priorities Survey2022 analysis has confirmed that priorities needto be updated and noted where consensusremains. This informed the renewal of thewording alongside the discussions at the AnnualSymposium and review of progress for thePocket Map Edition 2023.Mar 2023 - NOW

35POCKET MAP 2022THE NEW POCKET MAP 2023

Barwon HealthDeakin UniversityNorthern HealthVictoria's new CollaborativeCentre for Mental Health andWellbeing research partnershipwill be led by The University ofMelbourne and the RoyalMelbourne Hospital.The centre will have a strongfocus on improving people'sexperience of the mental healthsystem by providing bestpractice treatment andsupport, as well as listening tothe voices of lived-experience,including people who usemental health and wellbeing services, their loved ones andpeople who work in the sector. Members of the newCollaborative Centre include:VICTORIAN COLLABORATIVE CENTREFOR MENTAL HEALTH AND WELLBEING 36The Bouverie Centre, La Trobe UniversityWestern HealthVictoria UniversityForensicareSwinburne UniversitySt Vincent's HospitalAustralian CatholicUniversityGrampians Health ServiceRoyal Melbourne Instituteof TechnologyGoulburn Valley HealthThe ALIVE National Centrefor Mental HealthResearch TranslationCohealthMind AustraliaUniting Vic, TasDardi MunwurroOver the next six months, theCollaborative Centre, willidentify and begin work onearly priorities for research andservice delivery opportunities.

CHRISTOPHER DOWRICKChristopher Dowrick from TheUniversity of Liverpool in the UKwill be sharing how literature,poetry and music may ameliorateour personal and vicariousexperiences of existential despairand how the creative arts canbroaden our approach to mentalhealth promotion and suicideprevention. CREATIVE ARTS - AN ANTIDOTE TOEXISTENTIAL DESPAIRMelbourne Town HallOct 31, 2023 Hybrid event, 12:00pm - 1:00pm Join us for the exciting launch ofour new podcast and zine. This isan experience not to miss. Register here to attend.FEATURED EVENTS37LOST IN TRANSLATIONPODCAST AND ZINE LAUNCHBrunswick Town Hall233 Sydney Rd, Brunswick Oct 10, 2023Time: 12:30pm - 3:30pm

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HAVEN HOMES - LONG-TERM HOUSING WITHSUPPORT FOR PEOPLE WITH SIGNIFICANTMENTAL HEALTH AND WELLBEING CONCERNS READY, SETTRANSLATEPRESENTED BY: LAURA HAYES AND NICOLABALLENDEN Hosted by the Next Generation ResearchNetworkThe Haven Foundation was first started in 2005 bya group of carers and families and became asubsidiary company of Mind Australia in 2019. Mindis one of the largest providers of communitymanaged social services in Australia. The HavenModel is a unique, integrated social support servicefor people with significant mental health andwellbeing concerns and is and is comprised of twomain components: 39

In 2019, Mind and the Australian Housingand Urban Research Institute (AHURI) lednew research called “Trajectories” onhousing and mental health. The keyfindings were that being diagnosed withmental illness increases the likelihood of aforced move by 39% and the likelihood offinancial hardship for people experiencingpsychological distress increased by 89%.These findings reinforce the importance ofa support service such as the HavenHomes.RESEARCHTHE RESIDENCESThe residences are a co-designed, builtenvironment with independentapartments as well as shared spaces topromote community and peer learning.Mind provides support into the homeswhich includes 24/7 support, a family huband opportunities for peer connection.401. The Haven Residence - long term socialhousing where residents can feel safe andsecure.2. The Mind Model - focused on recovery-oriented supports.The service operates through the NationalDisability and Insurance Scheme (NDIS).There are currently six residences in thefollowing areas: South Yarra, Frankston,Geelong, Laverton, Mooroopna, and Eppingwith five more being built. Geelong LavertonEpping

EVALUATIONTo evaluate the effectiveness of the service,Mind conducted a mirror design study,assessing the changes in hospitalisation of29 participants 12 months before and aftermoving into the haven homes. The studyfound a statistically significant reduction(of 86%) in days hospitalised (pre move toHaven Homes 53.1 days, post move in to 7.4days). Reduced hospitalisation representsbetter mental health, stronger communityconnections and more time cost offsets.Although housing and support isimportant for recovery, there is a mismatchbetween the needs of people withpsychosocial disability and how the NDISrecognise this, making it sometimesdifficult to obtain the funding. A review ofthe NDIS is currently under submission toreform the process.The Haven Homes service stands as acompelling example of an integratedsupport model for individuals facingsignificant mental health challenges,offering not only secure housing but alsofostering recovery-oriented supports andstrong community connections. 41Click here to watch the fullpresentation or to access theirwebsite, click here. FrankstonSouth YarraMooroopnaImages courtesy of The HavenFoundation.

CALENDARSEPT 26READY... SET... TRANSLATEPresenter: Maia Caryn OlsenHosted by: Lived ExperienceResearch CollectiveLocation: OnlineTime: 10:00am - 11:00am (AEST)SPECIALCONVERSATION29Speaker: Rob MillsLocation: ScienceGallery MelbourneTime: 3pm - 4pm (AEDT)42NOV 23READY... SET...TRANSLATEPresenters: Rob WhitleyHosted by:Implementation andTranslation NetworkLocation: OnlineTime: 10:00am - 11:00am(AEDT)SPECIAL WORLD MENTAL HEALTHMONTH EVENTOCT 31Presenter: Chris DowrickHosted by: Prof Jane Gunn andMental Health Care at ScaleprogramLocation: Melbourne Town HallTime: 11:40am - 1:15pm (AEDT)MAD KNOWLEDGES & USER-LEDRESEARCH WITH DIANA ROSE &MICHELLE BANFIELD28Location: Australian National UniversityResearch School of Social SciencesAuditoriumTime: 5:30pm - 7:30pm (AEST)DEC 6READY... SET...TRANSLATEPresenter: Sandra EadesHosted by: Stream AWork in PriorityPopulations ProgramLocation: OnlineTime: 12:00pm - 1:00pm(AEDT)

43ANNUAL E-NETWORKING13MAR Hosted by: Lived-ExperienceResearch Collective and NextGeneration Researcher NetworkLocation: OnlineTime: 9:00am - 4:00pm (AEDT)ANNUAL SYMPOSIUM14-15Theme: HolisticFormation - What are the policy andpractice and ecosystemarrangements of primarycare and communitysettings that areessential to embed anddeliver holistic care?Location: AustralianNational University,Canberra / OnlineTime: 9:00am - 4:00pm(AEDT)MAR ALIVE NATIONAL & BIGANXIETY RESEARCHCENTRE PARTNERSHIPEVENT16Location: AustralianNational University,CanberraTime: TBA2024 QUARTERLY FORUM #4FEB Research UpdatesLocation: OnlineTime: 12:00pm - 2:00pm (AEDT)7QUARTERLY FORUM #3DEC 7Research UpdatesLocation: OnlineTime: 12:00pm - 2:00pm(AEDT)

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