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A Z I N E F O R M E N T A L H E A L T H R E S E A R C H T R A N S L A T I O NQ1June 2024Lost in TRANSLATIONThis edition’s front cover is an original artwork that has been drawn by the Aboriginal Co-Design Lead in The ALIVE National Centre, Muruwori Gumbaynggirr man Phillip Orcher.

Lost in Translation ZINE Q1 June 2024Cover Image by Muruwori Gumbaynggirr Co-Design Lead Phillip Orcher.EditorKate Fowler editor-alivezine@unimelb.edu.auFeature Contributors:Elise DettmanAlyssa MiltonInformation Sharinginfo-alivezine@unimelb.edu.auSubmissionsContact the editor to discuss editor-alivezine@unimelb.edu.auVisual AssetsPhilip OrcherDennis GoldingCaroline TjungPublished quarterly by The ALIVE National Centre for Mental Health Research TranslationThe University of MelbourneParkville Vic 3052Title:Interconnectednessthrough light anddark. Artist’s description:This piece representsthe good (light) thatcan emerge fromnot so good (dark)sharedconnectedness's isneeded as one isneeded to exist withthe other.2The ALIVE National Centre for Mental HealthResearch Translation is funded by the NationalHealth and Medical Research Council (NHMRC)Special Initiative in Mental Health GNT2002047

Original digital artwork by Kamilaroi/Gamilaraay artist Dennis Golding JUNE 2024We acknowledge the Traditional Custodians of Countrythroughout Australia and recognise their continuingconnection to land, waters and sky. We pay ourrespects to Elders past and present. 3

CONTENTS4A greeting andintroduction from ourCentre Co-Directors.Welcome06Meet the people behind thisissue's feature articles.FeatureContributors07A brief summary of thepresentations and activitiesthat took place during thisyear’s annual symposium inCanberra.2024 Symposium Recap08A Call to Action for theGovernment to (re)formnational mental health andwellbeing and an outline ofthe actions we need to youto do to make this happen.Casting the Net for WhatMatters and For Whom12

5IN EVERY ISSUECalendar Network Update 26Ready, Set,Translate Virtual CafeTranslationConversations2429Roadmap Update 23The current MWMFramework is lackingwhen it came tomeasuring what mattersto priotity populations.Prof Victoria J Parkerspeaks to HealthServices Daily to unpackthe issues.Measuring WhatMatters14Summary of symposiumevents through the eyesof a lived-experienceresearcher.SymposiumReflections16The practice of deep,inner listening and quiet,still awareness connectsus and nurtures ourspiritual wellbeing.Dadirri19Harnessing a co-production approach tobuild a framework forthe design and deliveryof early psychosisfunctional recoverygroups.Project CODE20ResearchOpportunities28Want to make adifference to mentalhealth policy andcontribute to importantresearch in the mentalhealth space? Find outabout the latestresearch opportunitieshere.

Dear Readers, It’s now getting close to the middle of the year and coldertimes are upon the South Eastern regions of Australia. For theNational Centre though June, represents our first quarter of theyear and in this Special Issue we shift the conversation inmental health research translation towards consideration ofthe policy and practice arrangements that are needed forHolistic Formations of the mental health care ecosystem. Theneed for holistic approaches is becoming clearer and clearer inthe face of the deeply tragic events in April in Bondi and acrossthe globe. These were difficult times for everyone and were onthe top of sad losses in the sector as well. Having had a busy March and April with releasing the Call toAction to (re)form national mental health and wellbeing andthen shaping up the Actions to the Call, the Centre has startedefforts for systems transformation with a commitment to fivefoundations co-created from the material shared at the 2024Symposium. These foundations include: Everyone can be an agent of change1.Deep listening for change is essential2.Maintain the whole in all things with a focus on the local3.Holistic wellbeing is the main outcome4.Connectedness and hope are critical ingredients5. We look forward to research organisations, universities andresearch sectors also undertaking to support the creation ofthese foundations to grow research efforts that arecontemporary and fit-for-purpose with embedded lived-experience at the heart. You can find out more about thesefoundations and their related implementation actions inside.Happy reading, 6WELCOME Sandra Eades, Victoria J Palmer &Michelle Banfield.

ALYSSA MILTONSenior Research Fellow, The University of Sydney, and Director of Knowledge Transfer,ARC Centre of Excellence forChildren and Families over theLife Course.FEATURE CONTRIBUTORS7ELISE DETTMANElise is a lived-experiencecollaborator in the ALIVE NationalCentre at The University ofMelbourne. She has lived-experience of mental health fornearly two decades and has beeninvolved in the Co-Design LivingLabs Network for seven years. Elise joined the Co-Design LivingLabs in 2017 after being aparticipant in the CORE study atThe University of Melbourne. TheCORE study looked at serviceimprovement of mental healthservices using co-design.Alyssa is an early careerresearcher, health psychologistand ALIVE Next Generationresearcher focusing onimplementation science, serviceimprovement and participatoryresearch approaches. Alyssa is leading multiple researchprojects, including an MRFF grantto support young people’stransition from Early Interventionin Psychosis Services at the timeof discharge. Lived-Experience Researcher, The University of Melbourne.

8One hundred and thirty people gathered over thesymposium to review Roadmap progress and to co-createa Call to Action using the World Cafe method. The eventfocused on the deep cultural changes that are needed todeliver holistic mental health. The motif of a net was selected intentionally and wovenduring the symposium. The net is a cultural symbol forAboriginal communities - read more about creating thenet in our coverage of the Call to Action in coming pages. 2024 ANNUAL SYMPOSIUM14-15 MARCH 2024OLD PARLIAMENT HOUSE, CANBERRANGUNNAWAL & NGAMBRI COUNTRYEVENT RECAPMain Hosts: ALIVE National University Partner Host: Australian National University Viewonlineimagegallery

DAY ONE: SCALING DEEP9Katie Lamb, Phillip OrcherMaking the netHamish Lindop, Tammy PotiniHAMISH LINDOP and TAMMY POTINIHamish and Tammy introduced theaudience to two successful communityhealth and wellbeing projects that wererecently delivered in Aotearoa/NewZealand:Manawatahi – a Participatory City Pilot,and Kia Ora Te Whānau Hubs Initiative. PHILLIP ORCHER and KATIE LAMBPhillip and Katie gave an update onexisting ALIVE National initiativesincluding the PEACE program and itsmain body of work, the BigaagARi project.The PEACE program aims to co-createnew health knowledge for preventionusing citizen science and establish a lived-experience-informed measuringframework that accommodates holisticpractices. The BigaagARri project is atrauma-violence-informed digital platformthat can help people stay engagedthrough virtual and augmented reality.Click here for more information.For a detailed reflection on both of theseinitiatives click here.Katie also spoke about a new project thatseeks to develop a holistic health andwellbeing measurement framework basedon trauma and violence informed careprinciples.

DAY TWO: HOLISTIC AT SCALE10Experiential weavingAssembling the netJon GlasbyJON GLASBYJon spoke about the role of the IMPACTcentre in improving long-term healthoutcomes for adults in the UK. The centreaims to build capacity and skills in thehealth workforce through incorporatinglived-experience and co-production intoeverything they do.HOLISTIC PLATFORMSFollowing Jon’s presentation, attendeeswere allocated into four immersive(creative arts) groups. Group one started with a hot drink and achat about Daddiri then headed over tovisit the Tent Embassy. Group twoexplored the gardens at Old ParliamentHouse with Michelle Banfield. Group three got creative using photoexpressions with Nicola Bell, and groupthree wove some colourful magic withVictoria Palmer. For a detailed reflection on this initiativeclick here.STATIONS OF CHANGEIn World Cafe style, attendees were invitedto visit eight themed tables in a bid todetermine what the missing ingredientsare in the government’s new “MeasuringWhat Matters Framework”. Ideas wererecorded on paper and collated at the endof the session.

11Capturing what mattersCasting the netDiscussing what mattersThe eight themed table topics for theWorld Cafe included:Station 1: From the past for deep listeningStation 2: Planetary health for innerexperiencesStation 3: Belonging for friendshipStation 4: Beyond services forinterconnectionStation 5: Shift treatment for responsivecareStation 6: Planned environments for spiritStation 7: Sense of policy safety for systemwellbeingStation 8: Experiential knowledge forholistic impactsHOLISTIC SYSTEMS AT SCALEUsing the conversations and ideas thatwere generated during the World Cafe:Stations of Change activity, a Call toAction. The physical net that was hand created byeveryone in attendance during thesymposium was cast into the air on thegrounds of Parliament House.

View theMWMFrameworkhereMEASURINGWHAT MATTERS14UNPACKING SOME OF THE ISSUESDuring the symposium, attendees were askedto consider the Federal Government’s 2023National Wellbeing Framework calledMeasuring What Matters (MWM) anddetermine whether it did actually measure whatmattered to them. The consensus was that the MWM Frameworkwas clearly lacking when it came to measuringwhat mattered to priority populations, such asthe LGBTQIA+ community and First Nations andTorres Strait Islander people. A Call to Action wascreated asking the government to [re]formnational mental health and wellbeing andconsider the implications of this for the MWMFramework.Following the symposium, ALIVE NationalCentre Co-Director, Professor Victoria Palmermet with journalist, Harriet Grayson from HealthServices Daily to unpack some of the issuesraised.

Read the originalinterview here.According to Professor Palmer,the MWM Framework uses datafrom existing datasets toformulate the key priorities formeasuring the wellbeing ofAustralians. She says when newpolicies rely on existing datasets, itis important to acknowledge whois NOT being counted and takenote of the methods being usedto measure what matters. “By continuing to measure what isalready there, we risk overlookingvulnerable populations like theLGBTQIA+ community as well asthe First Nations and Torres StraitIslander people,” said ProfessorPalmer.One of the main problems withthe new MWM Framework is thatrather than addressing the 15disparities in mental healthoutcomes for Aboriginal andTorres Strait Islander people, itrelegates the issue back toexisting policies such as “Closingthe Gap”, which have alreadyfallen behind. “Our First Nation communities,who are the leaders in wellbeing,are not being heard... it’s a hugemissed opportunity.” she said.Professor Palmer says improvedfunding and resourcing is neededto build relational mental healthsystems that deliver holistic,trauma-informed models of care.And that rather than scaling up,we should be focusing on scalingacross and connecting the thingsthat already exist. It’s about capacity building andcommunity action at a localisedlevel. That’s where you see the realchange happening.This interview was originallypublished by Health Services Dailyand has been summarised withpermission.

SYMPOSIUMREFLECTIONS16ELISE DETTMANLived-Experience Researcher, The Universityof MelbourneOn the 14th and 15th March 2024, I attended(online) the ALIVE National Centre Symposiumon the topic of holistic formations and these aremy online reflections.The first keynote speakers were Hamish Lindopand Tammy Potini from New Zealand. Hamishspoke about Manawatahi – a Participatory CityPilot. Manawatahi is a hub that supportscommunity to co-create participation projectssuch as gardening, collaborative cooking andinclusive community morning teas. Here, thecommunity is encouraged to reclaim the libraryand community centres and make the spacestheir own over time. The staff in these areas need to be organisedenough to allow for some level of structure aswell as facilitating community creativity.Participatory cities are are not meant to growinto businesses or grow too large. Instead, the

Read more aboutthe ManawatahiProject onHamish’s Blog.plan is to set up as manyindividual cities as possible. Theyrelate to holistic formations in thatthey allow and encouragebelonging, friendship in sharedactivities, care of the planet andexperiential knowledge. Next, Tammy spoke about the KiaOra Te Whānau Hubs Initiative.Alongside Paula Green, a localMāori artist, the NZ communityworked together to co-create abeautiful mural and ‘values stairs’. Their initial question was – ‘Howdo we create a space that createswellbeing?’ They then exploredwhat values would hold and guide17the space to learn about andshare Māori knowledge. Thevalues of learning, play andenvironment shone through. Oneof the aims was to increase socialcohesion between the diversecommunity members. The muralthey created is complete yet some spaces have been deliberately leftopen to allow for continuedchange and updates.Thinking about holisticformations, these projects focuson belonging, cultural awareness,experiential knowledge for impactand a sense of owning the space. My hope is that these co-createdhubs continue to shine andspread throughout community,leaving a sense of communityownership and belonging in theirwake.

Jon Glasby, from the UnitedKingdom, was the KeynoteSpeaker on Day Two He spokeabout the IMPACT Centre,which looks at all forms ofresearch outcomes and analyseswhat is being done toimplement best practice inadult social care across the UK.Adult social care includesservices that help adults withtheir daily living. The centre aimsto provide practical support tostaff across the country whoknow what they are doing is notthe best but do not have theheadspace to figure out betterapproaches. IMPACT has four delivery modes:Demonstrators, Facilitators,Networks and Ask IMPACT.Demonstrators focus on majorstrategic issues and long-term 18change. Facilitators lead morebottom-up, evidence-informedchange in a local service.Networks focus on complex but everyday practice issues and AskIMPACT identifies 'hot topics' and produces accessible,practical evidence guides Evidence is collected fromresearch, lived-experienceinsights and practice knowledgewith the aim of bringing thethree streams together. Almost52% of IMPACT staff say theyhave lived-experience. I’m excited that lived-experienceinsights are considered equallyalongside other forms ofresearch.

10DADIRRIDr Mirriam-Rose Ungunmerr-Baumann is a proudNgan’giwumirri woman and Elder from Nauiyu in theDaly River region of the Northern Territory. She is arenowned educator, artist, public speaker and advocatefor Aboriginal culture and art in schools. In 1988, Dr Mirriam-Rose shared the gift of ‘Dadirri’ withthe world. The word Dadirri comes from theNgan’gikurunggurr and Ngen’giwumirri languages ofthe Aboriginal peoples of the Daly River region. It is thepractice of deep, inner listening and quiet, still awarenessthat connects us and nurtures spiritual wellbeing.This profoundly relaxing and deeply calming video is acollaboration between Dr Miriam-Rose and Producerand Director, Pip Gordon of The Gathering Tree. Itsproduction was supported by DLUX Media and DjilpinArts in Katherine with original music composed byMichael Kokinos.Attendees on Day One of the ALIVE National Symposiumwere invited to reflect deeply on what deep listeningmeans and the connection to Country that it rests on. To experience deep listening for yourself, see below.THE PRACTICE OF DEEPINNER LISTENINGDR MIRRIAM-ROSE UNGUNMERR-BAUMANN AMWatchDADIRRIRead about Dr Mirriam-Rose19

20PROJECT: CODEIn 2022, our team was awarded ALIVE NextGeneration Research Network seed funding.Here, we share with you the journey andevolution of two projects that we hope will helpshape early psychosis services: Project CODE andour new MyPREP-ED initiative – an MRFF AppliedResearch in Health grant.The foundation of Project CODE lies in extensiveprevious qualitative research. Back in 2019 as partof the National Early Psychosis Youth ServicesEvaluation, we conducted semi-structured interviews with nearly 40 young people and theirsupporters across multiple Australian EarlyIntervention in Psychosis Services. ALYSSA MILTON, ELLIE BROWN, JUSTINCHAPMANHarnessing a CO-production approach to builda framework for the Design & delivery of Earlypsychosis functional recovery groups.A NextGenerationResearcherNetworkSeed Fundinginitiative

These interviews found a high levelof satisfaction with the services butalso highlighted significantchallenges during transitions suchas service entry, staff changes anddischarge. We also found that the design,communication, delivery andevaluation of functional recoverygroups varied widely, which oftenaffected the consistency andeffectiveness of these crucialsupports for young people. We, a team of early and mid-careerresearchers that includes lived-experience experts and clinicians,with the support of seasonedacademics, aimed to create a youth-informed framework for designingand delivering functional recoverygroups within early intervention inpsychosis services.21Once the project was up andrunning we used a co-production approach, workingbeside young people, peer-workers and clinicians to formthe best-practice guide forfunctional recovery groupsdelivered in early psychosisservices. Our key findings so far highlightthe importance of involving andengaging young people in thedesign and delivery of recoverygroups from the outset, usingmethods such as co-design,voting, surveys and discussionsto ensure the groups aremotivating and engaging.There is a noted emphasis onenhancing functional growthand recovery across variousdomains, including social,relational, emotional, physical,cognitive, vocational, andcreative areas. The groups needto focus on skills development,directly linked to the youngpeople's individual goals andplans. Additionally, there is a need toprioritise building social and KEY FINDINGS

40community connections throughpeer coaching and personalisedplanning, supporting gradualintegration into the community.intervention that was initiallydesigned for adults leavingmental health crisis services.This intervention has proveneffective and cost-efficient in alarge-scale trial we have workedon in the UK (called the CrisisResolution team Optimisationand RElapse prevention [CORE]study). Here, our goal is toaddress the critical phase ofservice discharge in earlypsychosis services.At the heart of both projects isthe co-production approach,and evaluating theimplementation of these typesof supports using hybridimplementation-effectivenessdesigns. Through this we aim tocreate a scalable model that canenhance service provision foryoung people and theirsupporters using early psychosisservices. But of course, there is more todo…Building on the momentum fromProject CODE, our team has beenworking on addressing some of theother priority areas identified in our2019 EPYS evaluation. In particular, we wanted to supportyoung people transitioning out ofearly psychosis, as two thirds ofyoung people are not receivingsupport from adult mental healthservices when they are dischargedfrom Early Intervention in PsychosisService support. Focusing on this gap has resulted ina new project called MyPREP-ED,which is short for My PersonalREcovery Plan in preparation forEarly intervention in psychosisservice Discharge. This project hasrecently been supported by theMedical Research Future Fund aspart of the 2023 Applied Research inHealth Initiative.MyPREP-ED focuses on adaptingexisting co-designed peer-supported, self-management22

ROADMAPALIVE NATIONAL CENTRE ROADMAP2024 POCKET MAP AND CONSENSUS UPDATES23UPDATEThe updated 2024 pocketmap is here! This newedition presents thepathways of families and thepriorities of parents livingwith mental ill-health andtheir families. Click theimage to view or download.The Phase 2 ConsensusStatement: TheIntermediary Horizon -Pathways of Families andImplementation Actionsis also now available! Clickthe image to view ordownload.

THE JUST BE NICE PROJECTREADY, SETTRANSLATEPRESENTED BY JOSH REID JONESJosh Reid Jones, a social impact professional andentrepreneur, has transformed his challenging childhoodinto a purpose-driven life. As the founder of the Just BeNice project, his goal is to revolutionise the way peoplesupport each other until they achieve housing,employment and positive mental health outcomes. Joshactively engages businesses, schools, organisations, andcommunities in creating extraordinary positive change bypromoting everyday acts of kindness. Serving as a non-executive director of one of Tasmania'slargest social service providers, an RUOK Day Ambassador,and a recipient of numerous awards and scholarships forhis contributions to social impact and non-profitleadership, Josh embodies a lifelong dedication to socialprogress and equal opportunity.24

Having dynamic frameworks forchanging environments andproblemsShouldering responsibility andcoordinating efforts to ensurepeople get the help they needSplitting help at a basic level intohuman help and logistic helpNavigating silos, removingcompetitionFinding a solution with themaximum amount of agencyCommunity feedback to improvesupportsPatience, trust & good intentionsJust Being Nice to each other!The model at JBN revolves aroundthe idea of serving as a builderand support system, assistingpeople in navigating all the formsof help they need, to get the bestoutcomes possible to live a fulland comfortable life.25The Just Be Nice (JBN) Projectaims to ensure people "get thehelp they need, when they need it,for as long as they need itregardless of how they have cometo need it." It is set up to harness goodwill andresources that already exist andturn them into adequate andcomprehensive support forindividuals and communities inneed, providing equalopportunities and taking care offundamental human needs:housing, employment, andmental health, which are oftennot addressed in one place andare difficult for people to navigate. The JBN project is based on anumber of principles that include:Learn more aboutThe JBL Project

26NETWORK IMPLEMENTATION ANDTRANSLATIONNETWORK43MembershipJan 202442May 2024The inaugural ITN Meet & Greetwas held on 9th May with thepurpose of giving membersgreater insight into thefunctions and deliverables ofthe network, and to encourageconversation, connection andfeedback going forward. Justin Chapman provided anoverview of the Movementstudy, which is one of twodemonstration projectscurrently being supported bythe network. Lisa Brophy thenintroduced theimplementation briefs,important bite-sizedsummaries of implementationmodels that bring togetherpathways, strategies andtheories for at-scale delivery ofmental health care. They coverissues such as stigma andbetter mental health in the workplace.This quarter, our Co-Designnetwork co-leads met andtalked about the Call to Actionalong with other co-leadsacross ALIVE National. They feltthat the call offered someimportant messages from alived-experience perspective,especially Foundations 1 andFoundations 4. It is importantthat researchers address thepriorities of the people mostimpacted by the research theyare conducting and that lived-experience is central to thedesign, planning,implementation andtranslation of mental healthpolicy, services and systems.The Co-Designer Handbook, isnow available to download.Note, you must be a memberto access this resource.CO-DESIGN LIVINGLABS NETWORK1,956MembershipJan 20241,932May 2024

215MembershipJan 2024232May 202427UPDATENEXT GENERATIONRESEARCHER NETWORKThe 2023 NGRN FundingGalaxy Guide is out now! This live document is updatedannually with insights from ourexpert panelists from each Funding Galaxy Q&A Event andtop tips on how to securefunding in mental healthresearch. View past eventshere. The 2024 Funding Galaxy Q&Aevent will be held on 08/08/241:00 PM AEST. Stay tuned!The ALIVE NGRN CapacityBuilding Funding Schemeopened on03/06/24. There aresix awards available:4 Early-Career ResearcherSeed Funding Awards (< $20,000 each)2 Mid-Career Researcher Professional Advancement& Career Expansion Awards (< $10,000 each)Between March and June, thecollective has hosted twogatherings where membersengaged with each other andbegan to develop some sharedunderstandings of whateffective lived-experienceresearch might look and feellike. These conversations havehelped to inform the impactevaluation survey for theCentre. The most recent gathering ofthe collective focused on alearning exchange aboutbecoming an investigator ongrants and fundingapplications. This conversationwill inform future capacitybuilding activities in the Centre. LIVED-EXPERIENCERESEARCH NETWORK240MembershipJan 2024255May 2024

RESEARCH OPPORTUNITIESIt is increasingly important to ensure young people getthe opportunity to collaborate and contribute to themental health programs, policies and research designedfor them. Researchers at The University of Melbourne are looking for young people aged 16-24 to complete a briefsurvey and participate in two workshops with otheryoung people and mental health researchers.PROJECT #1DESIGNING MENTAL HEALTH POLICY FORYOUNG PEOPLE WITH YOUNG PEOPLE28Interested in participating?PROJECT #2A PART OF THE CROWDHow do Australian young people aged 18-25 experienceloneliness during high school, university, initialemployment, independent living and parenthood?ALIVE National researchers are looking for young peopleto share their experiences of loneliness. Your stories willcontribute towards developing a co-designed model ofcare to facilitate connectedness.Interested in participating?Complete the EOIContact usFind out more about the projectContact usFind out more about the project

CALENDAR2024 NGRN FUNDING GALAXYPANEL Q&AAUG 8Location: TBCTime: 1:00pm AEST292024 ANNUAL LIVED-EXPERIENCETRAINING - SHORT COURSEHost: iLearn seriesTheme: Complexity ininterviewing as a lived-experienceresearcher in mental health andsuicide prevention settings.In Person Location: Level 4, Room 416Kwong Dee Dow Building(Building #263)234 Queensberry Street, ParkvilleTime: 10:00am - 4:00pm (AEST)RegisterJUL 19QUARTERLY FORUMSEP 5Theme: Seed funding projectsLocation: OnlineTime: 1:00pm - 3:00pmWORLD MENTAL HEALTH DAYOCT 10QUARTERLY FORUMDEC 4Theme: TBCLocation: OnlineTime: 1:00pm - 3:00pmQUARTERLY FORUMFEB 13 Theme: TBCLocation: OnlineTime: 1:00pm - 3:00pm2025