IMPACTREPORT2018-2024www.projectlyme.org
OUR MISSIONProject Lyme’s mission is to eradicate the epidemic oftick-borne diseases through awareness and education,support of cutting-edge science, and advocacy forsolutions to end the suffering.We strive to end the epidemic of tick-borne diseases byworking tenaciously toEducate the public in innovative ways.Fund research in diagnostics and therapeutics.Advocate for meaningful solutions.Support patients through their Lyme Journey.“Together, we’re not just fightingLyme disease — we’rechampioning hope, resilience,and a future free from its grasp.Every step forward Project Lymemakes is a step closer to ahealthier tomorrow for all." Ali Moresco, Board Chair
23,926T O T A L A I R I N G S36,835,823I M P R E S S I O N SAwareness On A National ScaleLeveraging Public Service Announcements to informpeople all across the country.69S T A T I O N S36M E D I A M A R K E T S‘It Could Be Lyme’ features the stories ofRylyn and Pippa, two young childrensuffering from Lyme disease. The spotsdemonstrate the devastating toll the diseasetakes on their health and how their parentsfought tirelessly to find a proper diagnosis. Rylyn Clark and his mother, Maureen, on set.
51,000+S O C I A L M E D I A F O L L O W E R SReaching New HeightsDeveloping innovative educational content throughour website, social media, and webinars.Project Lyme shares relevant information on projectlyme.org,social media and the LymeNotes newsletter, providing updateson research, patient resources, and support opportunities in theworld of tick-borne diseases. Over the past year we have hosteda dozen information driven webinars that educate doctors andpatients on the latest in tick-borne disease.1,500,000+W E B S I T E V I S I T O R S4,000+W E B I N A R A T T E N D E E SDaily visitors to projectlyme.org according toGoogle Analytics.
Groundbreaking ResearchFunding breakthroughs in diagnostics and therapeutics.Monica Embers, Ph.D, Tulane Universitypublished “superior efficacy ofcombination antibiotic therapy” inFrontiers in Microbiology on November20, 2023. Tim Haystead, Ph.D., Duke Universitypublished “berserker molecule” in CellChemical Biology on March 21, 2024. Geetha Parthasarathy, Ph.D., TulaneUniversity published “Fibroblast growthfactor receptor inhibitors” in Frontiers inImmunology on April, 3, 2024. Michal Caspi Tal, PhD, Stanford Universityand MIT published “bacterial mimic ofCD47” in bioRxiv on April 29, 2024.Project Lyme’s research impactwould not be possible withoutour partnership with the Bay Area Lyme Foundation. Recent Publications
Continued Investment$1,900,000G I V E N T O 1 9 P R O J E C T S S I N C E 2 0 1 8Dr. Yuko Nakajima from Brandeis University is investigating theability of Borrelia burgdorferi to repair single-stranded DNAbreaks in its genome. Using CRISPR-Cas can induce genomicdamage to Borrelia burgdorferi significant enough to keep surfaceproteins from changing and evading the human immune system.Dr. Monica Embers from Tulane University is taking the resultsfrom a recent study at Duke University that developed novelsmall molecule inhibitors to eliminate Borrelia burgdorferi and isapplying this research in non-human primates. WYSS Institute and Harvard University will use lymph node chiptechnology to determine whether a specific protein mediatesimmunosuppression, and if blocking it with specific drugs canimprove the T and B cell response in Chronic/persistent Lyme. Grants in 2024
On Capitol HillMaking our presence known by underwriting importantprograms in Washington D.C. Project Lyme has granted $225,000since 2019 to Center for Lyme Action,the only bipartisan 501 c4 non-profitorganization in the country dedicatedto growing federal funding for Lyme.We also were a key sponsor of TheQuiet Epidemic, who hosted ascreening on Capitol Hill in November. Center for Lyme Actions Annual Report.Attendees at the Capitol Hill auditorium fora special screening of The Quiet Epidemic.
New York State of MindHosting press conferences, meeting the AustralianConsulate, and attending our the Annual Gala.In July, U.S. Senator KirstenGillibrand hosted pressconference in partnership withProject Lyme announcing a planfor $200 million to supportresearch and programs forLyme disease. In August, Project Lyme metwith a Senate HealthCommittee from Australia atthe Consulate General’s Office.In September, hundreds ofpeople gathered at our AnnualGala in Manhattan. Australian Consulate General in NYC.Susan Goldenberg and Kim Strotherat Gotham Hall.
The Conference CircuitSponsoring educational opportunities forstakeholders in the medical and pest control fields. 20,000+A T T E N D E E S A T T H E D R . T A L K S L Y M E S U M M I T1,000+A T T E N D E E S A T T H E I L A D SA N N U A L S C I E N T I F I CC O N F E R E N C E300+A T T E N D E E S A T T I C K A C A D E M Y
Meet-Ups: One of the best avenues of support for Lyme patients isto connect personally with other patients. Mothers Against Lymehosts Meet-Ups twice a month.Stories: Lyme disease impacts people of all ages, genders, andbackgrounds. Through our unique, intimate, and informative socialmedia campaigns, we aim to share the full range of ways in whichLyme disease impacts lives.100+M E E T - U P S1,000+A T T E N D E E SMeet-ups are an invaluable resourceproviding connection, support, inspiration,hope, and guidance to mothers caring forchildren with Lyme Disease.”Isabel Rose, Project Lyme Board MemberThe Patient JourneySupporting those who are sick.Our MethodsOur ResultsSince 2022
Our ProgramsSince 2018 Project Lymehas raised over $6 millionto combat the spread oftick-borne disease.We are eternally gratefulfor our 1,500+ donors whohave allowed us to makehundreds of distributionsto our programs. FinancialsProject Lyme’s Board ofDirectors covers all of ouroperational expenses,meaning 100% of donorcontributions directly fund ourprograms including education,research, advocacy, andpatient support. Your SupportEducation51.4%Research34.6%Advocacy9.3%Support4.7%Income2018 2019 2020 2021 2022 2023 2024$0$500,000$1,000,000$1,500,000$2,000,000As of October 2024Grant distrubtion across programs Annual revenue
Thanks For Your SupportEmerging Leader BoardOlivia AbramsAshley BakerRyan BellGrace BurnsDani DonshikLindsey FloryanceDrew GoodmanKim KatzMicaela HooMaria JohnsonAnnabel MonskyJordan PowerGeorgi PrevostiLaura RoufReema ShahExecutive CommitteeMelissa BellKim DicksteinSusan GoldenbergNan KurzmanNina LeveneAli MorescoScott MorescoIsabel Rose David RothMark WeberJennifer WeisBoard At-Large andAdvisory MembersSteve AbramsPhyllis BedfordScott BedfordDr. Robert BransfieldOlivia FlowersBob ForsterDr. Richard HorowitzDr. Jane MarkeKim StrotherBraden RawlsStaffExecutive Director- Noah JohnstonMarketing Manager- Davia SillsFrom everyone on the Project Lyme team!Visit www.projectlyme.org to learn more!
229 E 85th St. #38,New York, NY, 10028207-370-9313COVER PHOTOS: ROBERT RICH, KATHERINE BELL, AND ZITONG LU.ALL OTHER PHOTOS PORTRAY PARTICIPANTS FROM PROJECT LYME EVENTS AND PROGRAMS. © 2024 Project Lyme