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EP3 INTEGRATED HEALTH NETWORKS
                                 By Marsali Hancock and Elinela Perez LLM

EP3 FOUNDATIONEmpowering People with Data, Privacy, and PersonalizationEP3 Foundation, a 501(c)3 nonprofit, is amulti-sector community of standardsorganizations, industry leaders, researchers,and government agencies committed toprivacy-preserving data sharing.

WHO WE AREOur missionImprove  health,  education,  and  wellnessby empowering people with data, privacy,and personalization.

EP3 FoundationJACK LEWIN, MDChairman of Board
MARSALI HANCOCKCEO & PresidentJOHN TEETERChief InformationOfficerCARLOS BUSTAMANTEChair StanfordDept. BMDSMOLLIESHIELDS-UEHLINGFormer CEO, SafeBio-PharmaLEE BARRETTExec. Director,EHNACALEX CARLISLEChairman & CEONADPHJOY PRITTSChief PrivacyOfficerPATRICIA HAMMAR Chief ComplianceOfficerJIM NASRTechnical FellowJONATHAN HARECEO, WebshieldJIM ROUTHChairman, NH-ISAC

“Hiding within those mounds of data isknowledge that could change the life of apatient, or change the world”- Atul Butte, UCSF“Information is the oil of the 21st century, andanalytics is the combustion engine.”- Peter Sondergaard, Gartner Research

PROMISE OF ANALYTICS“Big data is not about the data,”
-Gary King, Harvard University, makingthe point that while data is plentifuland easy to collect, the real value is in the analytics.

The internet was designed for two-way, global communication in self-healing, decentralized network. It was never designed for to be private or secure. The EP3 Foundation and our community of industry, policy and compliance leaders create the additional trust- protocols and credentials required to protect data and establish vendor-neutral, trusted networks. TRUST PROTOCOLS “The internet is a design philosophy and architecture expressed in a set of protocols..” - Vint CerfProtocols are the rules and standards that allow people to use the network and talk to each other.

Data Dams1-in-5 youth currently have or at somepoint will have a serious mentaldisorder. Over 75 % of mentaldisorders begin before the age of 25.Maria, a 12-year-old, is depressedand anxious over her schoolperformance. She self-medicates.While intoxicated, she is sexuallymolested by older teens.Maria joins the 1-in-4 teenscontracting a sexually transmitteddisease in the U.S. every year.1-in-4 teens contract a sexually transmitted disease every year.The U.S. has the highest rate of STD infection in the industrializedworld. Young people account for 50% of all new STDs.

HEALTHCARESUBSTANCE USE MENTAL HEALTH REPRODUCTIVE HOW CAN WE OVERCOME DATA SILOS TO IMPROVE OUTCOMES?CalHIPSO

UNLOCKDATA SILOSPOPULATION HEALTHIncrease patient and healthcare system rights and privacy. Establish HIPAA accredited statewide networks.CALIFORNIA BETA DEPLOYMENTSGive the right people the right information at the right time to improve patient safety and health outcomes. Enable policies and proprietary legacy systems to receive and provide privacy protected, actionable health data. CANCER RESEARCHIdentify potential candidates for clinical trials, starting with CancerPROVIDERSImprove patient outcomes by giving health care providers timely, actionable information.

PRECISION MEDICINEIncrease access to privacy protected, comprehensive health data. Common demographics and coding spanning data setsPUBLIC AND POPULATION HEALTH ACTIONABLEHEALTH DATAEstablish open framework and trust models to unlock data silos and provide real-time, actionable information. Give the right people the right information at the right time to improve patient safety and health outcomes. EP3 Beta deployments provide new, open frameworks, data architectures, and technologies that support privacy preserving data exchange.PUBLIC HEALTHImprove core public health reporting, Meaningful Use, situation awareness and surveillance.EMERGENCY RESPONSEProvide first responders and clinicians access to lifesaving health information and personalized decision support, and contribute timely information back to public health systems.

LOCATION5. HUMAN BEHAVIORS2. NETWORK3. DEVICE4. APPLICATIONThe location of information collected sets the regulatory and data governance requirements.Different types of networks have different spectrum, risks and policy requirements. NETWORKUnique device identifiers, ports and other device features impact privacy.DEVICEAPPLICATIONOperating systems, app platforms, and third party access impact privacy and access. BEHAVIORSUser’s choices on connected devices, social networks, platforms, activities, human and data networks 1. LOCATIONCRITICAL ATTRIBUTE PROVENANCE

CalHIPSO INTEGRATED NETWORKCalifornia Association of Public Hospitals and Health Systems California Medical Association California Primary Care Association EP3 FoundationPing IdentityWebshieldPerspecta

● Allow CHC patients and clinicians to participate in clinical trials.● Bring clinical trials into CHC with CHC electronic health record (EHR)● Enable diverse clinical trial patients population and assist CHCs to identify and engage patients in trials● Utilize EHR data for management of patient panels.● Improve CHCs capacity to aggregate and report patients’ data.● Provide security and identity credentials to exchange data MANAGEMENT SERVICES ORGANIZATION AND CLINICALLY INTEGRATED NETWORKCHC

○ Support CalHIPSO’s vision to enable providers to use HIT to improve their practices ○ Provide security and identity credentials to exchange data while protecting privacy and confidentiality ○ Enable an interoperable system that allows health information exchanges and supports health care services and coordination. ○ Provide patients and providers the ability to access allowable health information ○ Provide comprehensive electronic medical record for consumers that can be securely shared across service providers (EHR)○ Provide a secure, real-time data system of records accessible across agencies regardless of where the patient went for care.Objectives: EP3 FOUNDATIONHEALTH COORDINATIONMEDICAL RESEARCHPOPULATIONHEALTHCLINICAL TRIALS

PROVIDERS INDIVIDUALS FEDERAL AGENCIES PAYERS PUBLIC HEALTHPHARMACEUTICAL INDUSTRYRESEARCH INSTITUTIONS DEPLOYMENT PARTICIPANTS

Our Shared Vision: EP3 DATA INTEROPERABILITY 1 EMPOWER INDIVIDUALSImprove patient ability to coordinate their own careNot limited to what it is stored in electronic health recordsAccess data from different resources (including technologies that individuals use every dayEnable Individuals to access and aggregate longitudinal data 2ENABLE PROVIDERS AND COMMUNITIESImprove patient and provider safetyIncrease efficiencyGather and aggregate comprehensive data from many sourcesProvide a common method authenticating trusted health information networks participants 3PUBLIC AND POPULATION HEALTHProvide real-time, quality data collectionDeliver real-time actionable dataProvide privacy-protected, secure access to comprehensive health information 4OPEN AND ACCESSIBLE APIsEnable open and accessible application programming interfaces (APIs)User-focused innovation to make health information more accessibleImprove electronic health record usability

EP3 HEALTH & SAFETY PRIVACY NETWORKSTRUST BLOCKCRITERIA ENFORCEMENTCREDENTIALSRESOURCESREGULATORY COMPLIANCEPAYMENT AND LICENSING IDENTITY & CYBERSECURITYINTEROPERABILITYAUTHORIZED RECIPIENTS AND PURPOSESPROVENANCEASSESSMENT METHODOLOGIES AUDIT AND CERTIFICATIONRATINGS & REPUTATIONTRUST AUTHORITIES & GOVERNANCEPOLICY INTENTENFORCEMENT REQUIREMENTSENFORCEMENT MECHANISMS CRITERIACREDENTIALS RESOURCE DESCRIPTION

RESULTS & IMPACTPROTECTprivacy and confidentialityVERIFYidentity & roles across many networksLINK privacy-protected data at granular levelsSHAREinformation only when allowedENFORCE policies automaticallyLeverage distributed ledger technologies with current data systems to:

The TNAP aligns with the 21st Century Cures Act, and addresses the ONC's requirements to provide third-party accreditation for healthcare stakeholders, including HINs, HIES, ACOS, Data Registers, Lab, Providers, Payers, Vendors, and Suppliers.Opportunities:● Enable interoperability● Support easy onboarding● Assure trusted environment where privacy and security requirements are maintainedWe set the rules that automate data governance and comply with policies, licensing, privacy and cybersecurity requirements.TRUSTED NETWORK ACCREDITATION PROGRAMNational Framework for an Interoperable Health SystemFOUNDING MEMBERS

TNAP: GUIDING PRINCIPLES PRIVACYQUALITY DATA MANAGEMENTSAFETYSECURITY● TNAP represents and demonstrates all of the guiding principles, and use cases covered in the Draft Trusted Exchange Framework issued by the Office of the National Coordinator for Health Information Technology in 2018. ● TNAP provides a standard setting bar related to the handling of healthcare data which requires each participant to follow privacy and security requirements, to use enabling technologies in a consistent way and to make information available in a consistent method to all who need it for care coordination including the patient.● Adopters demonstrate adherence to a higher standard of quality, privacy, security and confidentiality as well as interoperability and data management.

WHAT MEMBERS ARE SAYING“..The new accreditation program will continue the much-needed focus on interoperability as well as assure a trusted environment where privacy and security requirements are maintained” Lee Barrett, EHNAC Executive Director“SAFE-BioPharma is pleased to be a part of this effort to leverage standards in healthcare, which will lead to improved patient safety, privacy and, a better user experience.”Matt King, Director of SAFE-BioPharma Association“This program aligns closely with the efforts of WEDI members and workgroups to facilitate secure and trusted data exchange through blockchain and other enabling technologies”Charles Stellar, WEDI President & CEO.Quotes for illustration purposes only

EP3 COALITION ORGANIZATIONS
 

Stanford MediaX Distinguished Visiting ScholarChair, IEEE Standards for Child and Student Data governance Working Group and editorial advisor IEEE for policy newsletter.Chair, Adaptable Security, Nonprofit only security assessment and social platform designed to empower consumers and small nonprofit and businesses.MARSALI HANCOCKEP3 Foundation CEO & President Chair, Family, Adolescent, and Children Sub committee on Santa Clara County Behavioral Health Board.Commissioner with Global Information Infrastructure commission.Mhancock@EP3Foundation.org703.678.3848Info@EP3Foundation.org

YOU CAN PARTICIPATE. JOIN TODAY!Contact us at info@EP3Foundation.orgorregister for more information atEP3Foundation.org/TrustedNetworkAccreditation