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Issue 02 | 2023Support & AdviceAdvice and details about our support groupsActivitiesFull lisngs of all our dementia friendly acviesEducationFind out more about dementiaDementia Awareness WeekFind out what we have planned for this year’s event in MayInformationUseful informaon Fundraising NewsEvent and fundraising newsDementia FriendsFind out how you can become a Demena FriendThe quarterly magazine from
Find us just aroundthe corner fromDementia Jersey, by the cows at 1aWest's Centre, St Helier, JE2 4ST 01534 733030www.corbettlequesne.comlouise.eden@corbettlequesne.comsimon.lofthouse@corbettlequesne.comanna.styles@corbettlequesne.comsarah.allchin@corbettlequesne.comPeace of mindin challenging timesWillsLasting Powers of Attorney Delegate servicesProbate servicesEstate planning Corbett Le Quesne Private ClientServices can assist you with:Cut out this voucher for 30% off a simple local Willcompleted with CLQ in June or July 2023.30% discount
ContentsPage 6Reducing the risk of demenaPage 8Informaon for family membersPage 10Carer Support GroupsPage 14Dementia FriendsPage 16Meeng Place ProjectPage 18Dementia Friendly AcviesPage 22Geng to know...Page 24Volunteer SpotlightPage 26Demena Awareness WeekPage 32Lived Experience Advisory Panel (LEAP)Page 34Book ClubPage 35Consumer CornerPage 28Fundraising NewsWelcome to the second issue of3It gives me great pleasure to welcome you to our spring edion of Demena Maers.As well as updates on our usual therapeuc acvies, Carer’s Support Groups, Demena Friends and Meeng Place Project groups, this edion highlights our plans for Demena Awareness Week, starng on 21st May (page 26).In our rst edion we featured some of our sta and volunteers, and we connue to do so in this edion with Wendy, our Interim Lead Demena Advisor (page 13) and Dan, our Community Educaon and Meeng Place Project Co-ordinator (page 15). Our Volunteer Spotlight this month is Mary Osmond (page 24).Whatever your interest in the charity, we hope there’s something for everyone in this edion.All good wishesWendyWendy BuckleyInterim CEO - Dementia JerseyDementia Jersey, de Carteret House, Hilgrove Street, St Helier, Jersey JE2 4SLTelephone: 01534 723519Email: info@dementia.jeHours: 9.00 - 14.00 Monday to Fridaywww.demena.jePublished byThere are over 100 types of demena. Alzheimer’s disease is the most common type of demena contribung to 60-70% of all causes. (WHO)Did you Did you know?know?
Jersey Charies Commission number 42 • Patron Dr Karen KydFind, Like and Share us onCycleCycle ChallengeChallengeSummer Summer CycleCycle ChallengeChallengeSummer Summer Cycle 100 miles in June and help raise money to support people in Jersey living with dementiaWhether you’re an avid cyclist or enjoy a leisurely weekend ride, this is a great opportunity to explore Jersey by bike or movate you to hit the gym bikes while raising vital funds. You have 30 days to complete your miles so you can take this challenge at your own pace. Queson is, will you be doing it in 30 days or 30 hours?Registraon fee: Adult £15.00, Child £7.50Individual fundraising target: £100To nd out more and to register, scan the QR Code or visit www.demena.je/100MileCycleJUNE2023
Reducing the risk of dementiaDementia Awareness WeekAcvies Volunteer SpotlightGeng to knowCarers’ Support GroupsWhile it is not possible to prevent all dementias, we now know that it is possible to reduce the risk of geng dementia, possibly by up to 40%, and that in the majority of cases, dementia is caused by a mix of risk factors. Find out more on Page 6.We’ll be celebrang Demena Awareness Week from 22nd - 28th May. We have a number of events and acvies planned to help raise awareness of demena and the support available to those living with and aected by demena in Jersey.Find out more on Page 26.Dementia Jersey oers a range of regular acvies for people living with or aected by demena and their carers.Find out more on Page 18.Meet Mary Osmond who has been volunteering regularly with Dementia Jersey since 2021.Find out more on Page 24.This issue we are geng to know Ronnie who is one of our Dementia Jersey acvity aendees.Find out more on Page 22.Demena Jersey currently run ve Carers’ Support Groups. These free, friendly, supporve groups are open to anyone supporng or caring for a relave or friend with demena. Find out more on Page 10.In this issue5
ReducingReducingthe risk of dementiathe risk of dementiaWhile it is not possible to prevent all dementias, we now know that it is possible to reduce the risk of geng dementia, possibly by up to 40%, and that in the majority of cases, dementia is caused by a mix of risk factors.Some of the risk factors, like our age, our genecs, and our gender we can’t change, but other things we can. We have become familiar with the health messages associated with reducing our risk of geng cancer and diabetes for example, and while we know that some people will get ill even by following a healthy lifestyle, we also know that these illnesses are less likely if we take certain acons. The same is true for demena and, as with these other condions, it is important to take acon even in our 30s or 40s.The risk factors that we can’t change are our age, our genecs, and our gender. As we get older the likelihood of geng demena increases and although extremely rare, some types of demena are caused by genec factors. We also know that more women get demena than men, and this is not explained only by the fact that women tend to live longer than men. As demena is so common, many of us will have a relave with demena, but this does not mean that we will get it too. The good news is that most of us won’t.6
Modifiable Modifiable RisksRisksthe risk of dementiathe risk of dementia7Alcohol consumpon – this should be kept to a minimumSmoking – if you smoke, stop smokingDiet – this should be ‘Mediterranean’, including fruits, vegetables, nuts, seeds and shBlood sugar, blood pressure and cholesterol – check these and maintain them within healthy limitsHearing and eyesight – have these checked regularly and wear hearing aids and glasses if prescribedPhysical acvity – keep as acve within the limits of any pre-exisng health condionHead injury (oen called chronic traumac encephalopathy) – avoid any head injuryBrain smulaon – keep exercising your brain and learning new thingsWeight – keep your weight within healthy limits, neither underweight nor overweightStress – noce what causes you stress and work at keeping this to a minimumSleep – helps clear our brains of unhealthy proteins so maintain good sleep paernsSocial interacon – this is perhaps the best type of cognive smulaonEmoonal well-being – take noce of how you are feeling and manage stress, depression or anxietyThese are things we can all do to improve our brain health and are also benecial for a person already diagnosed with dementia to help minimise further decline.Help us support those living with demena in Jersey with a monthly donaon to Demena Jersey. To donate, visit www.demena.je/donateDonateReducing the risk of dementiaThere are many things we can change to reduce the risk of dementia. These are called our modiable risks and include;
InformationInformationfor families and friends of people with dementiaWe know that supporng or caring for a person with demena can be dicult and that you will probably need support yourself and reliable sources of informaon. We hope this arcle is helpful, but you might also nd useful informaon from the Alzheimer’s Society UK and Demena UK’s websites.8How Demena Jersey can help youDemena Jersey oers a range of informaon and support opons for people supporng or caring for a person with demena. Please see our website for further detailsOur support services include a drop-in service where you can have a brief chat with a member of our team, make an appointment with a Demena Advisor for a longer chat, nd out about our acvies and support groups, or pick up useful leaets.A Demena Advice service for you to talk with an expert advisor about any aspects of caring for a person with demena. They can also let you know about any other sources of help or benets available for you or the person with demena.We oer a choice of support groups at various locaons and mes. See page 10 for more informaon.A good range of therapeuc acvies for you to aend
9together with the person you support or care for.A Demena PathwayA guide to the stages of demena, likely symptoms and the services available to you and the person with demena as demena progresses.Coming soonWe will be rolling out our new updated course for carers, The Demena Informaon Programme, which will be packed with useful informaon. More details will be available soon.Other sources of help and supportWe highly recommend the informaon provided by both the Alzheimer’s Society UK and Demena UK. In parcular, you should nd the Alzheimer’s Society UK’s booklet, Caring for a person with demena: A praccal guide, to be a good source of help. This is available online and is free to order by post. Some of the detail it contains about legal issues, benets and how to access care, is UK specic, so please do ask our Demena Advice team, if necessary, to clarify any of these details for Jersey.The Alzheimer’s Society UK and Demena UK also have a range of other informaon booklets and leaets on most subjects related to demena, all of which are available online and some are available from the Demena Jersey oce in St Helier.These booklets and leaets are excellent sources of informaon but as most people do nd that it is really helpful to talk to someone else about the dicules they are experiencing, please do get in touch with us. It’s good to talk and we are here to listen.Demena Jerseyde Carteret House, Hilgrove Street, St Helier, Jersey, JE2 4SLTel: 01534 723519Email: info@demena.jeThe Alzheimer’s Society www.alzheimers.org.ukDemena UKwww.demenauk.orgAlternavely, you may prefer to call Demena UK’s Helpline on 0800 888 6678, or email them at helpline@demenauk.org.Demena Jersey also provides a whole range of other therapeuc and social acvies for people with demena to enjoy along with a relave or friend. These include, Splashchat a swimming group (followed by good coee and chat), an art group, music groups, including our most popular Musical Memories, a Pétanque club, a walking group and our Fun ‘n’ Games groups East and West. Because we know it is so important for people with demena to keep acve and to enjoy a good social life, we are always in the process of designing new acvies – so – watch this space for news or let us know what you might like us to do next!Staying active and meeting othersUseful informationPeople living with demena and their carers have an equal right to respect and inclusion, and to diagnosis, quality care and treatment.Did you Did you know?know?
What’s new with Carers’ Support Meetings10We connue to oer our weekly group carer meengs with Holme Grown, out East as a new venue. By oering a choice of locaon we hope it allows more carers to aend at least one meeng a month.In February we launched our new monthly e-calendar. Carers can now sign up to receive either an email, or postal invite, and booking is just a click or a call away. We also send out an individual reminder the week before a carer meeng in case you missed our calendar invite.Aending a meeng is free and we try to keep the refreshment prices to a minimum.Dementia Jersey Carers’ SupportCarers’ SupportMeetingsMeetingsTo ensure we are oering carers’ the very best support we will be sending out a brief survey giving carers a chance to share their thoughts and to let us know how we are doing.Look out for this towards the end of the April.
11Carers’ Support Meeting Monterey Hotel, St HelierCarers’ Support Meeting Radisson Hotel, St HelierCarers’ Support Meeting Holme Grown, St ClementCarers’ Support Meeting Communicare, St BreladeCarers’ Support Meeting Coopers, Castle QuayWhen: Held quarterlyTime: 19.00 - 21.00Event Cost: Free There is a £2 charge for refreshments (please bring cash).For date of next meeng and to book your place please contact the oce.When: Held once a monthTime: 11.00 - 13.00Event Cost: Free There is a £3 charge for refreshments (please bring cash).For date of next meeng and to book your place please contact the oce.When: Held once a monthTime: 11.00 - 13.00Event Cost: Free There is a £1.50 charge for Tea and £2 for Coee (Please bring cash).For date of next meeng and to book your place please contact the oce.When: Held once a monthTime: 14.00 - 16.00Event Cost: Free There is a £2 charge for refreshments (please bring cash).For date of next meeng and to book your place please contact the oce.When: Held once a monthTime: 19.00 - 21.00Event Cost: Free There is a £2 charge for refreshments (please bring cash).For date of next meeng and to book your place please contact the oce.Demena Jersey currently run ve Carers’ Support Groups. Details, dates and mes are listed in the boxes below.These free, friendly, supporve groups are open to anyone supporng or caring for a relave or friend with demena. They are informal opportunies to meet others over a cup of good coee. Our Demena Advisor team aend these meengs and will be happy to chat with you too.How to join our Carers’ support groupsTo book your place at one of these sessions, or for further informaon on dates, LEAP discussion and speaker topics please contact us. Tel: 723519 Email: info@demena.je
In March we held our rst meeng for the year. Demena Jersey welcomed well-being expert Tina Hesse. Tina has a huge range of experience and topics she is able to share at meengs. On this occasion she spoke about the importance of self-love and suggested, if we only do one thing following her session, we’ll start being kinder to ourselves.The evening was a very relaxed event over tea, coee and great cake, with ample me for carers to catch up and share ideas.Meet the team12Our Carers’ Support Meengs with Guest Speaker are aimed at family and friends caring for someone living with demena and feature guest speakers presenng on a broad range of subjects.Support GroupSpotlightSupport Group Guest Speaker Sessions The next Speaker evening planned at the Monterey Hotel is Thursday 1st June, 19:00 – 21:00 and we welcome new and current carers to contact us if they would like to join.For further informaon please contact info@dementia.je or call us on (01534) 723519
Meet our Interim Lead Demena AdvisorWendy MunnI have gained knowledge and experience in Domiciliary and Live-in Care, Care Home Management and completed an NVQ level 3 in Adult Care and RQF 5 in Leadership and Management for Adult Care.What I love about my jobI am passionate about assisng people with demena, their families and friends. By working in Domiciliary and Live-in Care I realised that more needs to be done to bring awareness and change to the growing number of people living with demena. In order to do this one has to be involved from the beginning of someone’s journey and that is why I am excited to be part of the Demena Jersey team and rmly believe that together we can make a signicant dierence.Did You KnowI love spending me outdoors in nature, am a passionate year-round cold water sea swimmer and enjoy cycling round the island. I have an extensive travel “barrel” list and hope to do more travel in the future. On colder days I enjoy re-purposing furniture and building puzzles.Having worked as an accountant for 25 years it was me for a career change. In 2018 I relocated from South Africa to the UK where my journey as a live-in Health Care Assistant began. When I relocated to Jersey to care for my rst demena client, I realised I had found my dream job and home.Meet the teamSupport when you need it mostSupport when you need it mostDemena Jersey are here to point you in the right direcon and oer every support we can to people with dementia, and their family, friends and carers.Email: info@demena.je Tel: 01534 72351913
14DementiaDementiaFriendsFriendsAt Demena Jersey, part of our mission is to improve understanding and awareness of demena throughout the island. By helping people understand this complex and oen misunderstood condion, we hope to make our community more demena friendly. Helping, caring for and protecng people is at the heart of a strong island community. This is why our educaon programme is designed to involve everyone from local businesses and government services to community groups, schools and families. Demena Friends Jersey awareness sessions can be booked for small groups, secondary schools and workplaces. This internaonal iniave teaches you what it’s like to live with the challenges of demena and then helps you turn your new understanding into posive acons. Also available are our ‘Young Person’s Demena Awareness Sessions’ or an informave ‘Lunch & Learn’ session for those who want to learn more about the work of Demena Jersey in general. All our sessions are free of charge, and we have something for everyone. Contact Demena Jersey today to nd out how our educaon programme can help you or your organisaon become more demena aware. Sign up to become a Dementia FriendFor further informaon or to book a training session please Email: info@demena.je or Tel: 01534 723519.Dan recently held sessions with the students at Beaulieu School and team members from Hawksford.
15Dan with ocers from the States of Jersey Police force aer another successful Demena Friends session at the Police HQ.Dementia educationMeet our Educaon and Meeting Place CoordinatorDan Du HeaumeAer training as a teacher, Dan moved into the charity sector, working for some of the UK’s biggest environmental charies and the oldest health charity in Nonghamshire. He brings a wealth of experse in community engagement, teaching and project management to his roles at Demena Jersey. What I love about my job I love working with people and organisaons who want to help others and give back to their community. That’s why I’m so thrilled to be part of the team at Demena Jersey. I’m so proud of the sta and volunteers who help deliver The Meeng Place Project each week. The way it supports people to live a rich and full life aer diagnosis is amazing, and the peer support the members give each other is inspiring! It’s also fantasc to meet and work with so many people on the island who want to learn more about demena and help us with our mission to make Jersey more demena friendly. Did You Know Dan has a busy family life with 3 young kids and a cat. He enjoys music, playing drums and guitar, skateboarding, juggling and gardening. He also helps to teach the demena module as part of the Health & Social care course at Highlands College. Dan joined the team in January 2021 and is responsible for the community educaon programme and delivering ‘The Meeng Place Project’, the charity’s agship community-based support programme.
16The Meeting PlaceThe Meeting PlaceProjectProjectAt Demena Jersey we understand that geng a diagnosis of demena is dierent for everyone. For some people this can be daunng and emoonally overwhelming, whilst other people have described some sense of relief that they nally have answers for the symptoms they have been experiencing.Many people with demena want to nd ways to cope with these symptoms, look for ways to stay healthy and smulate their memory and thinking skills.Dementia Jersey’s special programme that oers people the opportunity to share experiences with others in a similar situaon.
17This is why we’ve created The Meeting Place ProjectThe project oers varied sessions that provide an opportunity to share experiences and talk with other people in similar situaons. We also explore ways to smulate memory and thinking skills, build self-esteem and keep our bodies healthy. Currently we host three Meeng Place Projects each week, all are morning sessions running from 10:00am – 12:30pm on the following days.MondaysThursdays andFridays Wondering whether this group is right for you?The Meeting Place Project is:• A group for people with mild symptoms of demena.• A place to meet others with dementia for advice and support.• Learn about symptoms and ways to manage them.• Take part in brain smulang acvies, including language and number games, discussions about living with dementia and light physical exercise.How to sign up to the Meeting Place ProjectA diagnosis of demena and a good level of independence is required to join the Meeng Place Project.Suitability for the group will then be explored through a follow-up face-to-face meeng.Membership is reviewed periodically and due to the progressive nature of dementia there may come a me when members no longer qualify for the group; in this situaon people will be consulted and supported into other acvies oered by Dementia Jersey if they wish to do so.For an informal discussion and to apply to aend please contact Demena Jersey at info@dementia.je or call us on01534 723519Meeting Place Project
18Dementia FriendlyDementia FriendlyActivitiesActivitiesDementia Jersey oer a range of regular acvies for people living with or aected by dementia and their carers. Our groups are very popular so do please contact us to check we have spaces. For further informaon about any of our acvies, please contact our Acvies and Volunteer Coordinator, Susie Kelly: Email: susie@demena.je or Tel: 01534 723519
Time: 11.00 - 12.30Venue: St HelierJoin us every Tuesday for a cuppa and an opportunity to talk with other clients, carers and our volunteers. Coee & Connect provides a great seng for those living with demena and those caring for someone with demena, to take a break and connect with others who are going through the same journey. Share stories or just listen and share some laughter.Free | + £3 for refreshmentsThis activity is currently at full capacity. Please email susie@demena.je to be added to the waing list.Fun ‘n’ Games Out WestCoffee & ConnectSplashchat19Dementia FriendlyDementia FriendlyThe full list of Dementia Jersey weekly acvies are listed on the following three pages.TuesdaysTuesdaysMondaysTime: 14.00 - 15.30Venue: St BreladeJoin us for fun ‘n’ games every Monday aernoon in St Brelade. Jigsaws, painng & colouring, dominoes, Bingo and cards! Or bring along your portable cra and join our knit & naer corner.Free | Refreshments includedBooking in advance is required.Time: 10.30 - 11.30 Venue: St HelierSplashchat is a weekly social swimming group jointly run by the Occupaonal Therapists, the Memory Assessment Service, Demena Jersey and the AquaSplash. A 30 minute swim is followed by the opportunity to join the Coee and Connect group aerwards.Free | + £3 for Coee & ConnectBooking in advance is required.Weekly activities
Time: 14.30 - 15.30Venue: St HelierMeet at Coopers Coee for a gentle 30-minute walk around the marina followed by a refreshment break at Coopers. Our route is in an accessible locaon away from busy roads and over at terrain with regular seats for those who would like a quick break and take in their surroundings.Free | + Cost of refreshments at CoopersBooking in advance is required.Art ExplorationWalk ‘n’ TalkPétanque in the Park20WednesdaysThursdaysSession 1: 10:00 –11:15 Session 2: 11:30 - 12:45Venue: St PeterThis art therapy programme is specically designed for people with demena and members of their families and carers.Join us and explore your creavity! Free parking.Free | Refreshments includedBooking in advance is required.Time: 10.30 - 12.00Venue: St MarnAny budding Pétanque players please join us! St Marn Village Green is a great venue for a walk too so we hope to get people acve either by playing Pétanque, having a walk (or both!) and joining us for a drink, which we serve at the Pétanque terrain. We also run indoor Pétanque sessions during the winter months.Free | refreshments includedBooking in advance is required.WednesdaysWeekly activitiesDue to popularity we are now holding two session
Time: 15.30 - 17.00Venue: St HelierMusical Memories is a weekly singing group for people with demena and their carers. Join us as we sing well loved songs, play musical instruments and engage in musical acvies.Most of all we have fun and share laughter with an aim to:• Smulate memory • Increase communicaon• Encourage social networks • Rusty voices welcome!Free | refreshments includedThis activity is currently at full capacity. Please email susie@demena.je to be added to the waing list.Fun ‘n’ Games Out EastMusical MemoriesNew Activities team member21FridaysThursdaysTime: 14.00 - 15.30Venue: Caldwell Hall (New Venue)Join us for fun ‘n’ games every Thursday aernoon.Jigsaws, painng & colouring, dominoes, Bingo and cards! Or bring along your portable cra and join our knit & naer corner.Free | Refreshments includedBooking in advance is required.For further information and to register your interest to join one of our dementia friendly activities, please contact our Activities and Volunteer Coordinator, Susie Kelly: Email: susie@dementia.je Tel: 01534 723519Want to sign up for one of our activities?Weekly activitiesHelen Toole joined Demena Jersey as the new Acvies & Volunteer Assistant at the beginning of March to assist Susie in delivering our weekly acvies. Having an extra pair of hands means we’re able to increase the number and type of weekly acvies we oer. As part of this planned acvies expansion we’ve been able to oer an addional Art Exploraon session on a Wednesday morning (see page 20) and we’re busy preparing our new allotment ‘Forget-Me-Not Plot’ in St Clements. Welcome to the team Helen!
22Getting to know...
Ron loves holidaying and in the last 20 years he has cruised to many places including Europe, Canada, China, USA, Dubai and India (to name but a few!).A stonemason by trade Ronnie knocked down and rebuilt the family home where he and Jane sll live 36 years later. He worked in the evenings and at weekends using friends and tradesmen he had met.Ron has always recycled even before it was fashionable and used granite salvaged from a p in St Ouens and reused bricks from the original coage to build his family home.A claim to fame is coming 2nd to Ian Woosnan in a golf match at La Moye Club where Ronnie has been a member since hanging up his football boots aged 38.Ron loves his family and now has two granddaughters, Ella, aged three and Amber, four months, who he adores.you may (or may not) know about Ronnie:5 Facts23Getting to knowNazarenno, (Ronnie), was born in Malta, moved to London aged ve and nally seled in Jersey in the late 1960s. Ronnie lives in St Helier with his wife Jane.They’ve been married for 38 years, and have two children, Danielle and Anthony.Ronnie enjoys aending; The Meeng Place Project, Coee & Connect and Musical Memories.Ronnie was diagnosed with Alzheimer’s disease in 2016.In each issue of Dementia Maers we are taking some me to put the person before the demena. This issue we are geng to know Ronnie who is one of our Dementia Jersey acvity aendees.Meet activities attendeeRonnie Apap12345
24Volunteer Spotlight
25Volunteer SpotlightMeet Mary Osmond who has been volunteering regularly with Demena Jersey since 2021. I am so proud to volunteer with Demena Jersey. I got involved aer my husband Sam was diagnosed with demena 4 years ago – bucket shaking for Demena Awareness Week! I soon graduated to Pétanque and then Musical Memories. I wanted to get involved so I could help others as well as geng support for myself and learning about demena.Pétanque (in St Marn’s on a Thursday morning), was brand new last year and from a small group we soon grew to several ‘players’ of all abilies. There is always a lot of laughter and being out in the fresh air is so good - I love it. I’d been a runner and played tennis but never pétanque, but soon picked it up as we have seasoned players to help, encourage and teach.I also help at Musical Memories which is a wonderful aernoon of singing and general jollity. Song sheets mean everyone can join in and our music therapist Ma gets everyone singing and having a great me. For me, who loves singing anything from pop to church music and all in between, it’s a great start to my weekend. I feel uplied by the smiles and joy on the faces of those living with demena and friendships have been formed. Sam doesn’t come to these group acvies as he’s quite a shy man. He’s content to stay at home and has recently discovered wooden puzzles bought locally and he can sit for hours doing them. I feel he’s not only using his brain but also dexterity which is important. He surprises me on a daily basis with his skill. The family are also amazed at this newly acquired ‘hobby’.Group acvies are not for everyone, but the team at Demena Jersey are always looking for new iniaves for those living with demena and have recently acquired an allotment in St Clements. I know Sam will love this as he had an allotment for 15 years when he rered in 2002. I’ll go with him but won’t get my hands dirty – I’ll read or do my kning!Meet our activities volunteerMeet Mary Osmond Meet Mary Osmond VolunteerVolunteerInterested in volunteering? Please contact our Activities and Volunteer Coordinator Susie Kelly: Email: susie@dementia.je Tel: 01534 723519
26DementiaDementiaWe’ll be celebrang Demena Awareness Week from 22nd - 28th May (a week later than the UK), and this year we’re focusing on risk reducon and the simple steps people can take to lower their risk of dementia.Awareness WeekAwareness WeekWe have a number of events and acvies planned to help raise awareness of demena and the support available to those living with and aected by demena in Jersey.
27Free 1 hour Demena Friends lunchme sessions Become a Demena Friend! We’ll be hosng two lunchme sessions at Santander Work Café on Tuesday 23rd May (12:00 -13:00pm) and Wednesday 24th May (13:00 -14:00pm), giving islanders the opportunity to gain more of an understanding of what it’s like to live with demena and how to turn that understanding into acon to help support others living with demena.The sessions will be free to aend, and you can book your space via Eventbrite closer to the me.Bag packing Demena volunteers and corporate partners, including Radisson and Ocorian, will be on the lls at Coop Grand Marche St Helier on Thursday 25th May, bag packing to help raise money for our charity.Informaon stalls Brook StreetDemena Jersey sta and volunteers will be in town, opposite Voisins on Monday 22nd, Wednesday 24th and Friday 26th. We’ll be on hand to answer quesons about demena and the support available, as well as sharing top ps to keep your brain healthy. You will also be able to purchase some merchandise, like our much-loved branded canvas bags!Waitrose (St Saviour)Look out for Demena Jersey sta at Waitrose (St Saviour) on Tuesday 23rd May, from 10:00 -15:00. They’ll be there to answer any quesons and provide leaets about our services and support.St Clement Community MarketWe’ve kindly been chosen as the St Clement Community Market beneciary on Saturday 20th May. There will be lots of lovely stalls selling cras, jewellery, fresh baked goods and plants. We’ll be there in our purple t-shirts at our informaon stall; pop along and enjoy some community spirit!Here’s how you can get involvedHere’s how you can get involvedHelp us support those living with demena in Jersey with a monthly donaon to Demena Jersey. To donate, visit www.demena.je/donateDonateDonate
28Dementia Awareness Week 2023On Sunday 21st May, 40 islanders will be taking on the challenge of abseiling 27 metres down Val de la Mare dam. Although we no longer have spaces for this epic challenge, you can get involved by showing them some support and making a donaon towards the challenge via hps://www.demena.je/abseil2023/We all have a role to play in making Jersey a demena friendly island, and that’s what Demena Awareness Week is all about. Geng involved could be as simple as signing up to a free Demena Friends session on a lunch break or popping by the awareness stall. If you have any quesons about how you can get involved, please give us a call on 01534 723519 or email nadine@demena.je Abseil Abseil at Val de la Mareat Val de la MareThere are currently 1,600 people in Jersey living with demena. For each person with demena, seven other people – spouse, partner, carer, family and friends – are aected and need advice and support too.Did you Did you know?know?
29Fundraising - Doing it for DementiaAshley is running the London Marathon to raise money for Demena Jersey and has so far raised, £1,355. You can show Ashley some support via her fundraising page: www.justgiving.com/fundraising/ashley-grith2Bianca will be doing the White Collar Boxing with Boxinbusiness on the 13th May and has chosen to raise money for Demena Jersey in memory of her Popa. You can show Bianca some support via her fundraising page: www.justgiving.com/fundraising/bianca-saville1 We’re so grateful to all those who get involved and help us move closer to our vision of making Jersey a demena friendly island.AshleyLondon MarathonBiancaWhite Collar BoxingDave made and sold a number of decorave light ngs to raise money for Demena Jersey. He has raised over £500.Dave - Artwork SalesWe have some amazing individuals and organisaons taking on their own epic challenges and fundraising events to help raise vital funds to support the work we do. Here are just a few of them... FundraiseFundraiseIf you would like to take on your own challenge and raise funds for Demena Jersey, please contact our Income & Engagement Coordinator, Nadine.Email: nadine@dementia.je Tel: 01534 723519
It was great to see a mix of exisng and new supporters geng involved, with some going above and beyond the 50 miles! And hearing about those taking on their own version of the challenge, including one of our acvity aendees, Joni, who took 50 bus journies in January, and 33 Appleby sta members, who incorporated the 50 Mile Challenge with their internal ‘Jog into January’ iniave.This year was the rst year we had a sponsor for our 50 Mile Challenge, and we wanted to take this opportunity to thank Ravenscro for supporng the work we do by kindly sponsoring the challenge. Thank you!Thank you!50 Mile Challenge50 Mile ChallengeFundraising UpdateMore than £18,000 was raised back in January by the 250 islanders who took part in our 50 Mile Challenge. Thank you to everyone who got involved, whether it was pung in the miles or sponsoring friends and family.30
Support those living with dementia in Jersey by giving monthlyScan this QR Code to visit our donations page£5£5 £10£10 £20£20will pay for new song books for our popular Musical Memories sessions for people with dementia.will pay for plants and owers in our new therapeuc allotment site for people with dementia.will pay for a face to face support session for up to 20 carers run by our Dementia Advisors.a month a month a monthwww.dementia.jeIndividuals that give a monthly gi move us a step closer to achieving our vision of a dementia friendly island. Scan the code to nd out more.DonateDonateBy choosing to donate monthly, you’re helping to make sure we can connue to provide life-changing support to islanders living with dementia. A regular gi means we can rely on consistent support and more eecvely budget throughout the year. Dementia Jersey exists to provide advice, support and informaon to the community as a whole. Our aim is to not only help about 1,600 people living with dementia on the island, but to also raise awareness and educate people to help remove the sgma and make Jersey a truly dementia friendly island.
32Lived Experience Lived Experience Advisory PanelAdvisory Panel (LEAP)During 2023 the Lived Experience Advisory Panel (LEAP) meengs will be held quarterly. (January, April, July and November).In January the LEAP topic for discussion was “Food including the ability to eat and drink, shopping, cooking, choking, diecian, dehydraon, crockery and utensils”.A healthy, balance diet can help improve a person’s quality of life. However, common symptoms of demena (such as memory loss and dicules with thinking and problem solving) can make it more dicult to eat and drink well. Although eang and drinking dicules are common in people with demena, each person’s dicules will be unique to them and their situaon.A person with demena may struggle to recognise the food and drink in front of them. They may also be unsure how to begin eang. Comments from Panel members living with demena included “I had no appete at all when I was diagnosed, I had to work on building my appete back to normal”, “I need assistance with cung my food and prefer to go to places that are not too noisy”. Carers on the Panel discussed that most people with demena drink more water when at home because the toilet is close by. However, when going out all day and it is hot, hardly any water is consumed, and this aects the mood the next day or even up to two days aerwards.The Panel discussed the new rule in supermarkets where expiry dates on some foods weren’t going to be monitored as closely as before. Some felt that this may cause people to get sick, others commented that during the war you ate everything regardless of the expiry date. A fridge was also LEAPThe Panel discussed the new rule in supermarkets where expiry dates on some foods weren’t going to be monitored
33Lived Experience Advisory Panela luxury with most items been kept in a cellar.When the Panel members were asked about eang for Brain Health a carer commented that the Memory Assessment Services (MAS) had given them a lot of reading material but when receiving a demena diagnosis healthy eang is the last thing on your mind. People living with demena made the following comments: “Meals on Wheels deliver healthy and hearty meals for lunch, so I just have something light for dinner, like soup or crackers and cheese”, “I live alone and have always eaten well and cook for myself”, “When my partner is with me, I eat well. Now in hospital so I usually just make a sandwich”, “I eat more fruit and vegetables now”, “I eat more healthy foods and avoid alcohol” “I enjoy eang with people than alone”.Panel members expressed when going out for meals they have found that the prices have gone up a lot so prefer to just stay home and save money, another Panel member living with demena shared that they aren’t able to read and follow the menu and that an easy to read menu would be appreciated. The Panel recommended that MAS set up a separate appointment aer receiving a demena diagnosis to share informaon on healthy eang and drinking, restaurants, pubs and coee shops to have easy to read menus and more awareness on Brain Health at schools.The Jersey Demena Strategy team have been aending carer meengs and acvies to speak to both people living with demena and carers. This will ensure that all Islanders views are been included in the wring of the Demena Strategy for the Island.All LEAP reports can be found on our website, if you would like to nd out more about LEAP or speak with a Demena Advisor, please contact us on info@demena.je or call 723519.
34Book ClubWhether con or non-ction, reading can be a great way to increase understanding about demena, as well as providing a useful acvity with people with dementia to help stimulate and maintain connections. This issue we feature two books that are recommended by our friends at Dementia UK.The Lile Girl in the Radiator by Marn SlevinAnna and the Beast: The true story of a young mum diagnosed with demenaby Chrisne ReddallThrough descripons of events they shared, the author gives an excellent and oen humorous insight into the challenges family members face, sharing acons he took to overcome the symptoms and behaviours his mother experienced. Areas such as the atudes of the general public, the diculty of making decisions around long term care are also depicted in a sensive manner and the author shares his own emoons and thoughts with dignity.The straighorward language and honesty of the author makes it an enjoyable read for carers and health professionals alike.A mother’s honest and heart-breaking account of her family’s experience of their daughter, Anna’s, young onset behavioural variant Fronto-Temporal Demena (bvFTD). Anna’s story starts from her happy childhood, moving on to her successful career and the start of her own young happy family. Anna’s mother then charts the pain, frustraon and confusion of tackling an invisible condion; one which changes Anna’s behaviour and personality, and leads to helplessness and desperaon trying to nd the correct diagnosis.A narrave is given to the confusing emoons that family carers experience. Anna’s family’s story grants permission to others to accept the conicng emoons that early-onset demena brings into the familyThis book is a must-read for family carers supporng a loved one with young onset demena.
Big buon photo telephoneThe wooden dget widgets are designed to provide smulaon through parcular moons.Helps with: Stress and reassurance, Diculty Sleeping, Comfort.This ve pack of wooden dgets is available from the Alzheimer’s Society online shop for £55.83.They are also sold individually at £13.33 eachhps://shop.alzheimers.org.ukThe big buon photo telephone has eight photo buons, and three smaller buons without pictures that you can also programme to call numbers with just one touch. Key features:8 photo ID memory buons.Big Buon Keypad.Extra clear numbers for opmal contrast.Hands-free speakerphone.Available from the Alzheimer’s Society online shop for £54.16hps://shop.alzheimers.org.ukThis product is for indoor use. It can be posioned in a range of locaons such as in a wardrobe, under a cabinet, in a kitchen cupboard, in a bedroom, in a bathroom, in hallways, on stairs, in the shed and much more. The bright LED lights up when it senses movement. It stays on for 30 seconds aer the moon has stopped. This will light your path and avoid unnecessary injury from trips and falls in the night.It has a low power drain LED which provides a long baery life.Key Features: Wall xing bracket: 1 (can also be used free standing). Brightness: 80 Lumens output. Dimensions: 10 inches long Detecon zone: up to 5 metres & 100 degrees.Available from the Alzheimer’s Society online shop for £16.99hps://shop.alzheimers.org.uk35Consumer CornerIn each issue of Dementia Maers we will providing reviews of products and tech that are designed to help people with dementia.In this issue we have selected items recommended and reviewed by the UK Alzheimer’s Society.Get up in the night sensor lightFidget Widget ToolkitSet of 5 Sensory gadgets that help to keep hands busy and relaxed.Card HolderIdeal for use by people who have poor grip, or for small hands, the playing card holder consists of two plasc discs held together by a spring. Once sorted, the card holder will then grip the cards throughout the game. Available from the Alzheimer’s Society online shop for £3.99hps://shop.alzheimers.org.uk
Ways you can Ways you can support ussupport usOur running costs are over £500,000 per annum. We therefore rely on the support and generosity of the public and the business community. All money raised in Jersey is spent in Jersey.Donate OnlineDonate OnlineMake a donaon online via our website: www.dementia.jeDonate by chequeDonate by chequePlease make cheques payable to ‘Dementia Jersey’ and send to our office at the address below.FundraiseFundraiseRaise money through a challenge event by walking, cycling, abseiling, trekking or skydiving for Dementia Jersey; or pick a challenge of your own. Please contact Nadine for more information. Email: nadine@dementia.jeVolunteerVolunteerConsider volunteering at our events. For more information please contact our Activities and Volunteer Coordinator, Susie Kelly. Email: susie@dementia.jeContact usContact usTel: 01534 723519Email: info@dementia.jeWeb: www.dementia.jePost: Dementia Jersey, de Carteret House, Hilgrove Street, St Helier, Jersey JE2 4SLHours: 9.00 - 14.00 Monday to FridayJersey Charities Commission number 42 • Patron Dr Karen KydFind, Like and Share us onwww.dementia.je