Return to flip book view
Issue 01 | 2023Dementia NewsLocal and International news Support & AdviceAdvice and details about our support groupsActivitiesLisngs of all our dementia friendly acviesEducationFind out more about dementiaInformationUseful informaon EventsEvent and fundraising newsThe quarterly magazine from
Welcome to the first issue of2As Interim CEO it gives me great pleasure to welcome you to our rst quarterly magazine in this format. We’ll sll be providing a smaller bullen on the months where there is no magazine, which will be sent out electronically.I’m ‘holding the helm’ while Claudine, our CEO, is on maternity leave, having safely welcomed Sebasen into the world on 6th December.As we said goodbye to 2022 and start 2023, we said goodbye to our Patron Lady Dalton, but we are delighted to share with you that Dr Karen Kyd (wife of the Lt Governor) has agreed to be our Patron (see our news secon from Page 5), we’ve also welcomed new Trustees and new sta who introduce themselves to you in these pages.We’ve got updates on all our usual therapeuc acvies, carer’s support groups, Demena Friends and Meeng Place Project groups, as well as sharing plans of a new iniave for people who now nd themselves without their loved one who had demena.In our next quarterly magazine we’ll be introducing a classied secon and adversing from relevant organisaons.If you would like to support us nancially either through regular giving or fundraising, check out pages 24 to 29 for more info.Whatever your interest in the charity, happy reading.All good wishesWendy BuckleyInterim CEO - Dementia JerseyDementia Jersey, de Carteret House, Hilgrove Street, St Helier, Jersey JE2 4SLTelephone: 01534 723519Email: info@dementia.jeHours: 9.00 - 14.00 Monday to Fridaywww.demena.jePublished byContentsPage 6Dementia Jersey NewsPage 4Dementia Jersey - What we doPage 8What is dementiaPage 10Carer Support GroupsPage 12Dementia FriendsPage 14Meeng Place ProjectPage 16Dementia Friendly AcviesPage 20Geng to know...Page 22Volunteer SpotlightPage 24Fundraising Review 2022Page 34Book ClubPage 35Consumer CornerPage 30Lived Experience Advisory Panel (LEAP)
Dementia Jersey...Who we are and what we doActivitiesDementia Friends Fundraising reviewMeet JoniCarers’ support groups3Hearing the diagnosis of demena for the rst me can be daunng and overwhelming in itself, without the added informaon overload of knowing the next steps to take; whether that be making changes to your home, professional care or legal help. Find out more on Page 4.Dementia Jersey oers a range of regular acvies for people living with or aected by demena and their carers. These acvies are incredibly popular and include art classes, musical memories, swimming, walking, Pétanque, games and a few others that may interest you. Find out more on Page 16.Our Dementia Friends programme aims to change the way people think, act and talk about dementia.Find out more on Page 12.We have been incredibly busy behind the scenes with fundraising acvies during 2022. Find out more on Page 24.Joni Hawel is our featured acvies aendee in this issue. She also took part in this year’s 50 Mile Challenge.Find out more on Page 20.Each month Demena Jersey host Carers’ Support Meengs aimed at family and friends who are caring for someone with demena. Our carers have told us how helpful these meengs are and have welcomed the friendship and support from their fellow carers. Find out more on Page 10.Dementia Jersey, de Carteret House, Hilgrove Street, St Helier, Jersey JE2 4SLTelephone: 01534 723519Email: info@dementia.jeHours: 9.00 - 14.00 Monday to FridayIn this issuePage 6Dementia Jersey NewsPage 4Dementia Jersey - What we doPage 8What is dementiaPage 10Carer Support GroupsPage 12Dementia FriendsPage 14Meeng Place ProjectPage 16Dementia Friendly AcviesPage 20Geng to know...Page 22Volunteer SpotlightPage 24Fundraising Review 2022Page 34Book ClubPage 35Consumer CornerPage 30Lived Experience Advisory Panel (LEAP)
Dementia Jersey How we can help you...What we doHearing the diagnosis of dementia for the rst me can be daunng and overwhelming in itself, without the added informaon overload of knowing the next steps to take; whether that be making changes to your home, professional care or legal help.You don’t have to make this journey alone, the Dementia Jersey team are here to help you make sense of all this informaon.We have Dementia Advisors who are available to provide expert advice to help you along the way, support groups to help you connect with others, and smulang acvies to help the person living with demena.4Advice and SupportThe Demena Advice team oer a range of support opons including a drop-in service, private appointments and support groups.Our Demena Advisors are trained, experienced professionals and are knowledgeable about all aspects of demena including the types and symptoms, health services in Jersey, Social Security benets, the Long Term Care Scheme, Powers of Aorney, capacity and much more. The Demena Advisors can provide you with useful informaon, help you understand the condion beer and oer suggesons for how to support or care for someone with demena. They can also signpost you to other sources of help or support.A Demena Advisor will usually be available for a brief chat in our oces, can arrange to see you privately, and will welcome you to our support groups.Carer Support GroupsBecause we know that some of the most valuable support we receive in life comes from others who have experienced life events similar to our own, Demena Jersey oers dierent opportunies for people to meet for mutual support and encouragement and to share knowledge and experiences.Help us support those living with demena in Jersey with a monthly donaon to Demena Jersey. To donate, visit www.demena.je/donateDonate
5We have a choice of in-person and support groups available throughout each month. These are at various mes and in dierent locaons including dayme and evening meengs at comfortable locaons around the island.These free, friendly, supporve groups are open to anyone supporng or caring for a relave or friend with demena. They are informal opportunies to meet others over a cup of good coee.Our Demena Advisor team aend these meengs and will be happy to chat with you too.To arrange to speak with a Demena Advisor privately or to nd out more about our support groups, please Tel: 723519 or Email: info@demena.jeDementia Friendly AcviesWe oer a range of smulang acvies for those living with Demena including art, swimming, walking, Pétanque, Fun ‘n’ Games and Coee ‘n’ Connect.Our groups are very popular so please contact us to check that we have spaces. For further informaon about the following acvies, please contact our Acvies and Volunteer Coordinator, Susie Kelly.Dementia Educaon We provide educaonal talks and workshops on all aspects of demena, which can be tailored to your requirements. These are aimed at raising awareness and increasing understanding, knowledge and support of the disease.We hold monthly Demena Friends sessions at the Jersey Library, and also provide Demena Awareness sessions at businesses and schools.You can nd further details regarding all of our services at www.demena.jeDementia has physical, psychological, social and economic impacts, not only for people living with dementia, but also for their carers, families and society at large.Did you Did you know?know?How we can help you
And the 2022 Mike Tomkinson Award goes to...Each year Dementia Jersey presents the Mike Tomkinson trophy to an individual, or individuals who have made a signicant contribuon towards supporng people with dementia.6The 2022 award was presented to two very worthy recipients – Ann and Frank Morel, for their fantasc work in raising awareness of Dementia Jersey and our need for funds. The story of Ann’s demena journey and the transformaon in her quality of life with the support of our Art Exploraon group was the leading story in our Monthly Giving fundraising appeal in May 2022. Ann and Frank also appeared in Jersey Water customer’s bill inserts over the summer as part of the fundraising appeal and are also featured as the lead case study in our revised strategy for Dementia Jersey (2023—2025). They are regular aendees at our weekly art group, Coee and Connect and Ann aends our Meeng Place Project for people with a recent diagnosis of demena. Frank also helped us set up our Pétanque group.Thank you Ann and Frank for your connued support.NewsAnnee Tomkinson awarding the trophy to Ann and Frank with our Chairman Chris Renouf
7Meet our new PatronDr Karen KydCarers’ Tea PartyJoni’s 50 Bus ChallengeWe’re delighted to welcome our new Patron, Dr Karen Kyd – wife of Jersey’s new Lt Governor His Excellency Vice-Admiral Jeremy Kyd. We’re so grateful to have her support.On the 28th January Dementia Jersey held a Carers’ Tea Party at the St Brelade’s Bay Hotel to show our appreciaon for the dedicaon and long hours they all apply to looking aer family members with demena.The tea party was very kindly sponsored by the Jersey Freemasons, who wanted to provide funding specically for an event that would ensure carers are recognised and thanked for everything they do.Joni Hawel, one of our acvies aendees wanted to take part in our January 50 Mile Challenge but was unable to do the distance walking so came up with the 50 Bus Challenge, where she would take 50 bus trips during January. Joni had not been on a bus since the 1950s, she’s loved the experience and has raised almost £500 in sponsorship so far.News
What is dementia?Demena is a term used to describe the symptoms of many disorders that aect the brain. It is not therefore one specic disease. Because there are so many causes of demena which aect people dierently, and which change over me, no two people will experience demena in the same way.8There are more than 55 million people world-wide with demena, and about 1,600 in Jersey. Because demena mainly aects older people and because we can now expect to live well into our 80s or 90s, it is more common than even 100 years ago. This rise in numbers is also in part due to people having beer access to medical care and there being beer ways of diagnosing demena. There is also signicant evidence that life-style factors may be inuencing the increase in the number of people with demena, so there is a renewed focus on brain health and risk reducon strategies.Although the risk of demena increases with age, younger people in their 30s – 60s can also have demena. The term ‘younger onset demena’ is used for any form of demena under the age of 65.What causes dementia?There are many dierent condions that can cause demena, which we somemes think of as the types of demena.The most common types are, Alzheimer’s disease, Vascular demena, Lewy body disease, Frontotemporal demena, and alcohol acquired demena (somemes called Korsako’s syndrome). While quite a lot is known about the changes that are happening in the brain with these condions, why people develop demena is mostly unknown, apart from some types of Vascular demena and alcohol related demena.Anyone can get demena but the likelihood of having demena increases with age. We also know that our health and lifestyles, and for a very small number of people diagnosed, genes may be a cause.Demena occurs when nerve cells in the brain are damaged. These cells carry messages between dierent parts of the brain and to other parts of the body and as more nerve cells are damaged the brain becomes less able to work properly.Alzheimer’s diseaseAlzheimer’s disease, which is the most common type of demena, is a physical disease of the brain. This occurs when brain neurons are damaged by the build-up of proteins around them (called amyloid and tau),
9which then aects the way they transmit messages. These changes may aect the whole of a person’s brain or just part and are progressive.Vascular dementiaVascular demena is the second most common type of demena which can aect any part of the brain. There are 4 types of vascular demena with dierent causes, but all are related to the ow of blood in the brain and the resulng damage to brain cells because of this.Lewy Body diseaseLewy body disease is a type of demena caused by Lewy bodies which are clumps of protein that build up in the nerve cells and reduce the levels of some important chemicals needed to send messages across the brain. This then leads to the death of nerve cells. Many people with Lewy body disease also have the build-up of the other proteins that cause Alzheimer’s disease.Frontotemporal dementiaFrontotemporal demena is one of the less common types and was known as Pick’s disease. This is the name given to damage in the front (frontal) and side (temporal) parts, or lobes, of the brain. As more nerve cells are damaged and die, these lobes get smaller and lead to more specic symptoms.Alcohol related dementiaThis type of demena is usually caused by the toxic eect of the alcohol damaging nerve cells and blood vessels in the brain, and because excessive alcohol can lead to reduced levels of vitamin B1 (also called thiamine) which is essenal for good brain health. Further to this, a person who regularly drinks too much alcohol is at higher risk of repeated head injury which can cause lasng damage to the brain.There are many other brain condions that can lead to demena. You can nd out more about these via the Alzheimer’s Society UK website at alzheimers.org.uk.There are over 100 types of demena. Alzheimer’s disease is the most common type of demena contribung to 60-70% of all causes. (WHO)Did you Did you know?know?
Each month we host four Carers’ Support Meengs aimed at family and friends who are caring for someone with demena.10Meengs take place in a variety of venues and at dierent mes. They are held in a relaxed seng and include refreshments and the chance for you to meet with other carers. Demena Advisors are on hand at each meeng for an informal chat and to answer any quesons. You’re welcome to join all or just one of the sessions and you can invite another family member or friend to join you if you wish. Our carers have told us how helpful these meengs are and have welcomed the friendship and support from their fellow carers. Our Demena Advisors are also available for one-to-one appointments. Dementia Jersey Carers’ SupportGroups
Demena Jersey currently run four Carers’ Support Groups. Details, dates and mes are listed in the boxes below.These free, friendly, supporve groups and are open to anyone supporng or caring for a relave or friend with demena. They are informal opportunies to meet others over a cup of good coee. Our Demena Advisor team aend these meengs and will be happy to chat with you too.To book your place at one of these sessions, or for further informaon on dates, LEAP discussion and speaker topics please contact us.Email: info@demena.je Tel: 72351911Carers’ Support Meeting (morning) Carers’ Support Meeting (aernoon)Third Wednesday of each monthTime: 11.00 - 13.00Free | + small charge for refreshmentsFor details on the venue and to book please contact the oce.Quarterly on a ThursdayTime: 19.00 - 21.00Free | + small charge for refreshmentsFor details on the venue and to book please contact the oce.Carers’ Support Meeting (morning)Carers’ Support Meeting (with Guest Speaker)First Wednesday of each monthTime: 10.30 - 12.00Free | + small charge for refreshmentsFor details on the venue and to book please contact the oce.Fourth Wednesday of each monthTime: 14.00 - 16.00Free | + small charge for refreshmentsFor details on the venue and to book please contact the oce.Help us support those living with demena in Jersey with a monthly donaon to Demena Jersey. To donate, visit www.demena.je/donateDonateDonateHow to join our support groups...People living with demena and their carers have an equal right to respect and inclusion, and to diagnosis, quality care and treatment.Did you Did you know?know?Carers’ support groups
12DementiaFriendsOur Dementia Friends programme aims to change the way people think, act and talk about demena.Specially trained Demena Champions deliver face-to-face awareness sessions to small groups, schools and in the workplace aimed to help people learn about what it is like to live with demena and asks them to turn that understanding into acon by helping others around them. This may be as simple as telling others about Demena Friends or vising someone they know living with demena, every acon counts.Each session includes 5 key messages on demena as well as acvies to enhance people’s understanding of demena. With increased awareness and further understanding, local people can beer support those living with demena.Our Community Educaon and Meeng Place Coordinator, Dan Du Heaume, works across the island to raise awareness The Outpaents Department at Jersey Hospital invited us to deliver a Demena Friends session in January.
and understanding about demena. He works with many dierent groups of people, of all ages, in schools and colleges, businesses, care homes and care agencies, in order to provide specialist training on demena.All our sessions are free of charge however if you would like to make a donaon to support the work of Demena Jersey, this would be gratefully received.13Become a Dementia FriendFor further informaon or to book a training session please Email: info@demena.je or Tel: 01534 723519.Jersey Care College held a Demena Friends session as part of their RQF qualicaonThe team from Highvern became Demena Friends in 2022Dementia education
14The Meeting PlaceProjectAt Demena Jersey we understand that geng a diagnosis of demena is dierent for everyone. For some people this can be daunng and emoonally overwhelming, whilst other people have described some sense of relief that they nally have answers for the symptoms they have been experiencing.Many people with demena want to nd ways to cope with these symptoms, look for ways to stay healthy and smulate their memory and thinking skills.Dementia Jersey’s special programme that oers people the opportunity to share experiences with others in a similar situaon.
15This is why we’ve created The Meeting Place Project.The project oers varied sessions that provide an opportunity to share experiences and talk with other people in similar situaons. We also explore ways to smulate memory and thinking skills, build self-esteem and keep our bodies healthy. Currently we host three Meeng Place Projects, all are morning sessions running on Monday, Thursday and Friday, 10:00am – 12:30pm.MondaysThe Salvaon Army, Minden Place – parking Minden Place car park.Thursdays Communicare, St Brelade – parking available on site.Fridays Samares Methodist Church, Green Island – parking Green Island car park.Wondering whether this group right for you?The Meeting Place Project is:• A group for people with mild symptoms of demena.• A place to meet others with dementia for advice and support.• Learn about symptoms and ways to manage them.• Take part in brain smulang acvies, including language and number games, discussions about living with dementia, and light physical exercise.How to sign up to the Meeting Place ProjectA diagnosis of demena and a good level of independence is required to join the Meeng Place Project.Suitability for the group will then be explored through a follow-up face-to-face meeng.Membership is reviewed periodically and due to the progressive nature of dementia there may come a me when members no longer qualify for the group; in this situaon people will be consulted and supported into other acvies oered by Dementia Jersey if they wish to do so.For an informal discussion and to apply to aend please contact Demena Jersey at info@dementia.je or Tel: 01534 723519Meeting Place Project
16Dementia FriendlyMeet our Activities and Volunteer CoordinatorSusie KellyActivitiesDementia Jersey oer a range of regular acvies for people living with or aected by dementia and their carers. Our groups are very popular so do please contact us to check we have spaces. For further informaon about any of our acvies, please contact our Acvies and Volunteer Coordinator, Susie Kelly: Email: susie@demena.je or Tel: 01534 723519Having worked with volunteers locally at Jersey Library and before that the Jersey Opera House, Susie was the Events Manager at HSBC. Susie and her family moved to Jersey in 2014 aer having spent over 12 years working in the UK at Opera North Leeds. Susie is CIPD qualied and passionate about working with people.My Dad in the UK, lived with Alzheimer’s for over 3 years, so I am thrilled to work at Demena Jersey. I am a real people person and love meeng new people and organising engaging acvies and events. I love how the range and number of acvies has developed and look forward to expanding the service even more in 2023, to help make a dierence to those living with demena in Jersey. Aending acvies and working with all our wonderful volunteers and spreading a lile bit of sparkle has to be the best part of my job.Susie joined Dementia Jersey in November 2021 and is no stranger to working with people and organising events.
Time: 11.00 - 12.30Venue: St HelierJoin us every Tuesday for a cuppa and an opportunity to talk with other clients, carers and our volunteers. Coee & Connect provides a great seng for those living with demena and those caring for someone with demena, to take a break and connect with others who are going through the same journey. Share stories or just listen and share some laughter.Free | + £3 for refreshmentsThis activity is currently at full capacity. Please email susie@demena.je to be added to the waing list.Fun ‘n’ Games Out WestCoffee & ConnectSplashchat17Dementia FriendlyThe full list of Dementia Jersey weekly acvies are listed on the following three pages.ActivitiesTuesdaysTuesdaysMondaysTime: 14.00 - 15.30Venue: St BreladeJoin us for fun ‘n’ games every Monday aernoon at Communicare St Brelade. Jigsaws, painng & colouring, dominoes, Bingo and cards! Or bring along your portable cra and join our knit & naer corner.Free | Refreshments includedBooking in advance is required.Time: 10.30 - 11.30 Venue: St HelierSplashchat is a weekly social swimming group jointly run by the Occupaonal Therapists, the Memory Assessment Service, Demena Jersey and the AquaSplash. A 30 minute swim is followed by the opportunity to join the Coee and Connect group aerwards.Free | + £3 for Coee & ConnectBooking in advance is required.Weekly activities
Time: 14.30 - 15.30Venue: St HelierMeet at Coopers Coee for a gentle 30-minute walk around the marina followed by a refreshment break at Coopers. Our route is in an accessible locaon away from busy roads and over at terrain with regular seats for those who would like a quick break and take in their surroundings.Free | + Cost of refreshments at CoopersBooking in advance is required.Art ExplorationWalk ‘n’ TalkPétanque in the Park18WednesdaysThursdaysTime: 10.30 - 12.00Venue: St PeterThis art therapy programme is specically designed for people with demena and members of their families and carers.Join us and explore your creavity! Free parking.Free | Refreshments includedThis activity is currently at full capacity. Please email susie@demena.je to be added to the waing list.Time: 10.30 - 12.00Venue: St MarnAny budding Pétanque players please join us! St Marn Village Green is a great venue for a walk too so we hope to get people acve either by playing Pétanque, having a walk (or both!) and joining us for a drink, which we serve at the Pétanque terrain. We also run indoor Pétanque sessions during the winter months.Free | refreshments includedBooking in advance is required.WednesdaysWeekly activities
Time: 15.30 - 17.00Venue: St HelierMusical Memories is a weekly singing group for people with demena and their carers. Join us as we sing well loved songs, play musical instruments and engage in musical acvies.Most of all we have fun and share laughter with an aim to:• Smulate memory• Increase communicaon• Encourage social networks.Rusty voices welcome!Free | refreshments includedThis activity is currently at full capacity. Please email susie@demena.je to be added to the waing list.Fun ‘n’ Games Out EastMusical Memories19FridaysThursdaysTime: 14.00 - 15.30Venue: St MarnJoin us for fun ‘n’ games every Thursday aernoon at St Marn’s Public Hall.Jigsaws, painng & colouring, dominoes, Bingo and cards! Or bring along your portable cra and join our knit & naer corner.Free | Refreshments includedBooking in advance is required.For further information and to register your interest to join one of our dementia friendly activities, please contact our Activities and Volunteer Coordinator, Susie Kelly: Email: susie@dementia.je Tel: 01534 723519Want to sign up for one of our activities?Weekly activitiesListening to or engaging in music, for example, by singing, dancing or playing instruments can help people with demena develop and maintain relaonships with others and improve their well-being.Did you Did you know?know?
20Getting to know...
Along with husband Oo, Joni ran El Tico and other restaurants and hotels in Jersey. In her day, Joni was famous for her pies and quiches and people connue to stop her now to tell her how tasty they were!‘Friendly’ is the word Joni says best describes her and her favourite song is ‘We’ll Meet Again’.Joni did yoga every day from the 1970s unl she was in her late 70s!Oo was Austrian and came from Merano, in the South Tyrol, which was always Joni’s favourite holiday desnaon. Joni enjoys aending both Musical Memories and Fun ‘n’ Games – she says bingo is her favourite as she always wins!you may (or may not) know about Joni:5 Facts21Getting to knowJoni lives in St Brelade with her friend Geraldine, son Nicky and Cairn terrier, Norman. Joni was married to Oo for 63 years unl he sadly passed away. Joni aends; Fun ‘n’ Games and Musical Memories. Joni was diagnosed with Alzheimer’s disease in 2020.She was keen to get involved with Demena Jersey’s 50 Mile Challenge this January. Unable to walk 50 miles Joni did it with a twist and challenged herself to 50 bus journeys and raised an incredible amount for the charity – we’re all so proud of you Joni!In each issue of Dementia Maers we are taking some me to put the person before the demena. This issue we are geng to know Joni who is one of our Dementia Jersey acvity aendees.Meet activities attendeeJoni Hawel12345Joni pictured on a Demena Jersey oung to Chestnut Farm in 2022, praccing yoga in the 70’s, and walking with Norman the dog
22Volunteer Spotlight
23Volunteer SpotlightKeen swimmer, both in the pool and all year round in the sea, volunteer Sue Jones shares why she chose to volunteer at SplashChat with Demena Jersey; “I’m always happy to share my swimming passion with other ‘water babies’! I spoed this wonderfully happy group of swimmers enjoying a chat one Tuesday in the 25m pool and am now proud to be part of the regular ‘SplashChat Family’. The fact that my swim hat is purple, Demena Jersey colours, indicates I was desned to volunteer perhaps!”Having cared for elderly family members, Sue is only too aware how hard it can be to witness the advancing frailty of loved ones. “There are occasions when those cared for and those who care for them can feel alone and isolated. I was fortunate to have a brilliant network of friends, neighbours and care workers who were there when I needed them most.” Sue acknowledges not everyone is so lucky. “It’s vitally important that individuals and their carers receive support which comes in a variety of ways. SplashChat extends a warm welcome to both those who swim and those who are poolside - everyone gets to chat, exchange news and then join for a coee aerwards.”Sue adds, “rerement provided an opportunity for me to join the amazing group of volunteers with Demena Jersey and Tuesday mornings at SplashChat are up there on my highlights of the week. I really value the support and advice received from my fellow volunteers when I arrived as ‘the new kid on the block’ - I look forward to the banter with everyone whilst swimming, much fun and laughter is guaranteed!” Sue and her husband Bill enjoy taking part in the Demena Jersey fundraising challenges and are currently stepping out to complete their 50 Mile Challenge this January which they have dedicated to two special cousins who sadly passed away aer their brave struggle with demena. Sue is thinking about a future swimming challenge to raise funds for Demena Jersey and says “watch this space or beer sll come and join us at SplashChat!”Meet our activities volunteerSue JonesVolunteerVolunteerInterested in volunteering? Please contact our Activities and Volunteer Coordinator Susie Kelly: Email: susie@dementia.je Tel: 01534 723519
242022 FundraisingReviewHere, Nadine, our Income and Engagement Coordinator reects on the success of 2022 fundraising and shares plans for 2023.Before I introduce our plans for 2023, I wanted to reect on the success of some of our fundraising challenges from last year and take the opportunity to thank some of our community fundraisers who not only took on some tough challenges for us but went above and beyond with their fundraising. Our 50 Mile Challenge in 2022 had over 500 sign ups and from the registraon fees and fundraising, our incredible supporters raised over £30,000. Thank you to one of our super fundraisers, Simone Sains, who started this challenge for us back in 2020. In April, we saw 9 Demena Daredevils jump out of a plane from 10,000 feet, raising £9,000 between them. For Demena Awareness Week in May, we ran various awareness and fundraising iniaves including bag packing with some of our Corporate Volunteers at the COOP, Demena Friends Sessions at Santander Work Café; had our informaon stall on the high street and launched our rst series of CIPD cered seminars. We also hosted an Aernoon Tea Party at Government House Parcipant sin the 2022 Jersey France Swim Challenge raised an amazing £12,000 for Demena Jersey
25to thank some of our key stakeholders and supporters. May also saw the launch of our monthly giving campaign. Thanks to the support from Jersey Post, we were able to run an island-wide mail drop to all residenal houses promong the work we do. The Jersey France Swim Challenge (formally Jersey Sark) kindly chose us as their chosen charity for a second year, raising over £12,000. We’re so grateful to Simon O’Donoghue and the amazing team behind the swim challenge for their connued support. In August, we launched our rst ‘100 Mile Cycle Challenge’ with some parcipants clocking over 500 miles by the end of the month. Our popular Memory Walk returned for another year running in September to coincide with Alzheimer’s Awareness Month. We saw a great turnout with over 130 islanders joining us on the 5K stretch from La Frégate to St Aubin, raising just under £3,000 from sign up fees and donaons from the general public on the day.We nished the year with beaufully designed Christmas cards by our Art Exploraon aendees which helped raise over £1,500. Fundraising review 2022The Demena Daredevils who raised £9,000 with a skydive5 year old Solly was the top child fundraiser the 2022 50 Mile challenge Parcipants in our rst 100 Mile challenge last August
26A big thank you to...Money raised: £2,000 Money raised: £11,445Money raised: £4,615Money raised: £1,000Money raised: £3,600 Money raised: £1,000Money raised: £196Rose - 100K Jurassic CoastGary - Inca Trail TrekSally - Channel SwimMaillard’s Memory GardenJCG Cavell House Christmas AuconSt Brelade Bowls ClubSt Lawrence Primary School Years 1 & 2 - Elf DayAmazing... Sixth time in six decades!Throughout 2022, we had some incredible individuals and organisaons taking on their own epic challenges and fundraising events to help raise money for Demena Jersey. Here are just a few of them…FundraiseFundraiseHave an idea for a Fundraising event? Please contact our Income & Engagement Coordinator Nadine: Email: nadine@dementia.je Tel: 01534 723519
27Fundraising review 20222022 Charity of the Year Partners Hello to our 2023 Charity of the year Corporate PartnersWe are extremely grateful for the support we received from our ‘COTY’ Corporate Partners last year. Not just nancially, but also through volunteering and helping to raise our prole within the community. NormansRaised over £17,314 by holding various fundraising iniaves including a 12 Parish Church Walk, Bike-a-thon and football cards. We also had some Normans sta members support us throughout Demena Awareness Week, helping with bucket collecng and bag packing at the COOP. We are thrilled to have the support from these incredible local organisaons.Fairway GroupRaised £8,000 largely through payroll giving, as well as a steps challenge, Halloween dress up day, Bingo Night, selling healthy juices and a rae. Fairway also supported us with volunteers throughout Demena Awareness Week. Jersey WaterRaised £17,000 through their hydraon staons at various large-scale events including The Boat Show, Jersey Live and The Weekender, as well as internal fundraising such as bake sales.We are so grateful for all the support we have received throughout 2022. Dementia is the fastest growing disease on the island and demand for our services is constantly growing. Without support from others, we simply would not be able to do what we do, so thank you!La Moye Golf ClubRaised over £10,000 by hosng various events during 2022 such as a Captain’s Charity Golf Day, Christmas Fayre and rae. La Moye also kindly invited us to some of their lunches and events throughout the year so we could speak to their members about the support we provide.
28What’s on for 2023Here are just some of the events and challenges that will be happening throughout 2023…Dementia Awareness WeekWe’ll host various events and acvies throughout the week to help raise awareness of demena and the support available to those living with and aected by Demena. You’ll be able to nd us on the high street a few days of the week to answer any quesons you might have about demena and the support we provide. We’ll also put on addional Demena Friends sessions during lunch me hours and be bag packing with volunteers at COOP Grand Marche St Helier.Keep an eye out on our website for further details.100 Mile Cycle ChallengeOur Summer cycle challenge will be back for its second year but this year it will be in June. If you’re looking to up your tness, discover Jersey by bike or simply just want to raise money for a great cause then look no further! You choose how and when you get your miles in, just make sure you clock 100 by the end of June. This challenge can be done on pedal, electric and on gym bikes. Registraon will open mid May.Jersey France Swim ChallengeThe Jersey France Challenge is back for another year with all money raised going towards helping support people in Jersey living with demena.If you’re looking for an epic swim challenge, look no further! The Jersey France Challenge is 14 miles and will be open to teams of 2-6 people, each compeng head-to-head to be the rst team to cross the nish line in France. A huge thank you to founder Simon O’Donoghue for his connued support.To nd out more and to register, visit www.jerseyfrancechallenge.com
29Fundraising 2023Meet our Income and Engagement CoordinatorNadine JaggerI’m so excited to have joined the Dementia Jersey team. I wanted a job where I could use my skills and experience to do more good and make a posive dierence, and this is exactly that! My role is prey sociable too which I love. It’s a great opportunity to meet wonderful people who are wanng to make a dierence, whether it’s through fundraising, volunteering or corporate sponsorship.The work the charity does is incredible, not just the acvies and support for those living with demena and their carers but also raising awareness on an educaonal level to help make Jersey a demena friendly island. It’s an excing me for the charity, and I’m so happy to be part of such an incredible team.Nadine joined Dementia Jersey in January 2022, bringing with her a lot of passion and enthusiasm. She is responsible for all things fundraising.Memory WalkOur annual Memory Walk is for those who have lost people who had demena, those with family or friends currently living with the condion or people who simply want to take on a challenge and raise money for a good cause. Pets are very welcome too!The walk will start at La Frégate and end at St Brelade’s Parish Hall. This at 5k walk is for all ages and abilies to unite together to raise awareness and funds to help support the 1,600 islanders with demena, their carers, and their family.Registraon will open beginning of September. FundraiseFundraiseHave an idea for a Fundraising event? Please contact our Income & Engagement Coordinator Nadine: Email: nadine@dementia.je orTel: 01534 723519
30Lived Experience Advisory Panel (LEAP)The Lived Experience Advisory Panel (LEAP) brings together people with lived experience of demena to discuss subjects of concern and to make recommendaons for change. The Panel includes both people with a diagnosis of demena and those with experience of caring for someone with demena.During 2022 we held monthly LEAP meengs to discuss a range of subjects and areas of concern. The discussions were documented by one of our Demena Advisors and included recommendaons made by the Panel members. Here’s a summary of our meengs over the past months.August LEAP Topic: The island-wide Demena StrategyIn August the topic for discussion was “recommendaons for the development of the island-wide Demena Strategy and areas to be included in it”. Eighteen recommendaons came from the session with health professionals’ training being highlighted as extremely important; it was suggested that all health professionals should have a demena qualicaon. They emphasised the very specialist nature of caring for someone with demena with some Panel members drawing aenon to what they experienced as beer care with more understanding sta at St Saviour’s Hospital. The Panel expressed a hope that all those involved with the Demena Strategy would be people with excellent knowledge and experience of working with people with demena and family carers. The Panel members agreed that a major review of the provisions and standard of care in care homes was needed and they hoped that the strategy would also address this.September LEAPTopic: Driving with demenaSeptember’s sessions looked at a more praccal aspect being “driving with demena”. Some Panel members suggested that it should be mandatory for any doctor making a demena diagnosis to inform the Parish LEAP
31Lived Experience Advisory PanelHall and for them [the Parish Hall], as the issuing authority for driving licences, take appropriate acon to include any follow up acons, rather than rely on this informaon being given to the person with demena to progress. The Panel recommended that a driving test should be standardised for everyone when the diagnosis was made and then annually thereaer. Some even suggested that tests should be annually for anyone from 65 years and over. The Panel members felt this would ensure any “bad drivers” were removed from the roads and that mandatory tesng for everyone would help reduce the sgma of being tested and not being able to drive. Panel members said that a subsidised taxi service would make a signicant dierence to them being able to aend medical appointments, visit family and friends and engage in therapeuc acvies. Bus passes were also felt as benecial for those no longer able to drive.October LEAPTopic: Lasng Power of AorneyLasng Power of Aorney (LPA) was the theme for the October sessions and the consensus was that talking to a ‘person’ was preferred to compleng the process online. Here’s a quote from a Panel member “nance LPA was easy and was done online. The health and welfare LPA was done with help from a social worker. We did read up online and it was upseng to think about these things. Once we got it done and dusted, I’ve been able to put it away knowing if anything happened to one of us, it would make it easier for them.”The Panel recommended that each Parish or some other trusted organisaon was available to advise on a Law rm that doesn’t have a vested nancial interest. Members also felt that the Health and Welfare LPA needed someone
32experienced like a social worker to guide one through the quesons and the impact of decisions made.November LEAPTopic: Air travel with demenaNovember’s LEAP topic for discussion saw Panel members sharing their experience of air travel. Panel members expressed having received good service from Jersey Airport sta. It was noted that with the pandemic many people stopped travelling and have not started again, this was not necessarily related to demena. One recommendaon came from the Panel requesng Jersey Airport to have a “blue space” like other large airports and they felt this could be located by the boarding gates.December LEAPTopic: Retail shopping at ChristmasThe year ended with the LEAP Panel discussing “Retail shopping at Christmas”. Comments from Panel members living with demena included “Christmas starts too early”, “I get to see my family at Christmas, which is nice”, “Christmas shopping is spoiled because the shelves are empty”, “I take my hearing aids out so I can enjoy the carols”, “I wear my lanyard and everyone in the shops is very kind and helpful” and “Christmas isn’t what it used to be, now it is all about the gi”.The Panel discussed educang shop assistants on the sunower lanyard scheme and recommended that people have some knowledge on how to deal with people with demena. A person said they didn’t enjoy noisy Christmas pares being held in pubs and restaurants, especially if someone with demena is seated near such a group and recommended that quiet areas be made available. Carers on the Panel discussed shopping more online to avoid busy mes and not being able to leave the person they are caring for. Throughout the year we have addressed a variety of interesng topics enabling the Panel members to share their thoughts.Once each monthly report is wrien, it is shared with the relevant pares, whether that is parishes, government ocials or other businesses, contacts who may have been cited in the recommendaons. The reports are also added to our website, so if you would like to read more about a specic topic, please check out our website.LEAP during 2023For 2023 we are moving to quarterly LEAP group meengs, with subjects linked to current aairs as well as seasonal topics.If you would like to nd out more about LEAP or speak with a Dementia Advisor, please contact us on info@demena.je or call 723519.LEAP
Support those living with dementia in Jersey by giving monthlyScan this QR Code to visit our donations page£5 £10 £20will pay for new song books for our popular Musical Memories sessions for people with dementia.will pay for plants and owers in our new therapeuc allotment site for people with dementia.will pay for a face to face support session for up to 20 carers run by our Dementia Advisors.a month a month a monthwww.dementia.jeIndividuals that give a monthly gi move us a step closer to achieving our vision of a dementia friendly island. Scan the code to nd out more.DonateDonateBy choosing to donate monthly, you’re helping to make sure we can connue to provide life-changing support to islanders living with dementia. A regular gi means we can rely on consistent support and more eecvely budget throughout the year. Dementia Jersey exists to provide advice, support and informaon to the community as a whole. Our aim is to not only help about 1,600 people living with dementia on the island, but to also raise awareness and educate people to help remove the sgma and make Jersey a truly dementia friendly island.
34Book ClubWhether con or non-ction, reading can be a great way to increase understanding about demena, as well as providing a useful acvity with people with dementia to help stimulate and maintain connections. This issue we feature two books that are recommended by our friends at Dementia UK.Inside the O’Briens by Lisa GenovaElizabeth is Missing by Emma Healey by Emma HealeyThis book follows the life of Joe O’Brien, a 40-year-old policeman and father of four. He starts to experience problems with his memory and orientaon, as well as uncharacterisc temper outbursts, and strange, involuntary movements of which he later discovers are symptoms of Hunngton’s disease – an inherited condion that causes demena. The book explores the everyday challenges faced by the whole family as they come to terms with the diagnosis. The novel navigates the moral and ethical dilemmas associated with genec illness and highlights the importance of family and ongoing support. The book is an eye-opening read, accurately portraying the unique problems that Hunngton’s Disease-aected families face.New York Time Best SellerThis book was recently made into a BAFTA award winning lm starring Glenda Jackson. The book gives a moving account of Maud’s search for her friend, who she believes is missing. She feels that no one will take her concerns seriously. The events of her search for Elizabeth become entwined with past memories of her missing sister. What I love about this book is the power of the relaonship Maud has with her granddaughter and how arming it is of the power of these types of intergeneraonal relaonships. Whilst the lm does not focus on this aspect so much, the book is well worth the read to understand how meaningful family relaonships are in the experience of demena. ‘An inspired and supremely sensive evocaon of what it is to lose that which makes us who we are’- The Times
Tilt-to-pour kettleHenro-Grip cutleryUccello’s Tilt-to-pour kele is for anyone who struggles with gripping or liing weight. You don’t have to li the kele out of its stable cradle to ll it or pour it, though you can if you want to. The kele comes in black and white, all black and all white as well as the pictured red and white version.This is a great alternave for anyone who struggles with a standard kele, with one reviewer saying “ It’s the dierence between having a cup of tea and not having one because you’re frightened.Available from the Alzheimer’s Society online shop for £49.99hps://shop.alzheimers.org.ukThis cleverly designed cutlery helps prolong independent eang. Right angled knife to make cung easier. Available as a spoon, fork or knife, and also as a le or right hand version for the spoon and fork.These have been tested and reviewed by people living with demena and their carers to make sure they are t for purpose.The new Relish radio has been designed to enable people living with demena to listen to the music that they want independently. Playing music can support communicaon and improve mood and behaviour.With three buons to pre-set to their favourites, and a fourth for your own music, it means you can easily nd the staons or playlist you love. Unique to the Relish radio, the top panel can be personalised to whatever makes perfect sense to you. Whether it’s ‘60’s Jazz’, ‘Relaxing Music’, ‘News’ or maybe even ‘My favourites’ you can name each channel yourself to make it even easier to nd and listen to what you want.Available from the Alzheimer’s Society online shop for £99.99hps://shop.alzheimers.org.ukAvailable from the Alzheimer’s Society online shop for £11.99 per fork, spoon and knife. hps://shop.alzheimers.org.ukThe Alzheimer’s’ Society shop do have alternave ranges of cutlery available on their online shop if the styling of these are not quite for you.35Consumer CornerIn each issue of Dementia Maers we will providing reviews of products and tech that are designed to help people with dementia.In this issue we have selected items recommended and reviewed by the UK Alzheimer’s Society.Products designed to make eating and drinking easier for people as dementia progressesMusic and audio
Ways you can support usOur running costs are over £500,000 per annum. We therefore rely on the support and generosity of the public and the business community. All money raised in Jersey is spent in Jersey.Donate OnlineMake a donaon online via our website: www.dementia.jeDonate by chequePlease make cheques payable to ‘Dementia Jersey’ and send to our office at the address below.FundraiseRaise money through a challenge event by walking, cycling, abseiling, trekking or skydiving for Dementia Jersey. Or pick a challenge of your own. Please contact Nadine for more information. Email: nadine@dementia.jeVolunteerConsider volunteering at our events. For more information please contact our Activities and Volunteer Coordinator, Susie Kelly. Email: susie@dementia.jeContact usTel: 01534 723519Email: info@dementia.jeWeb: www.dementia.jePost: Dementia Jersey, de Carteret House, Hilgrove Street, St Helier, Jersey JE2 4SLHours: 9.00 - 14.00 Monday to FridayJersey Charities Commission number 42 • Patron Dr Karen KydFind, Like and Share us onwww.dementia.je