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Issue 03 | 2023Support & AdviceAdvice and details about our support groupsActivitiesFull lisngs of all our dementia friendly acviesEducationFind out more about dementiaThe power of MusicFind out how it helpsGet involvedRead about our volunteers Fundraising NewsEvent and fundraising newsDementia FriendsFind out how you can become a Demena FriendThe quarterly magazine from

Find us just aroundthe corner fromDementia Jersey, by the cows at 1aWest's Centre, St Helier, JE2 4ST 01534 733030www.corbettlequesne.comlouise.eden@corbettlequesne.comsimon.lofthouse@corbettlequesne.comanna.styles@corbettlequesne.comsarah.allchin@corbettlequesne.comPeace of mindin challenging timesWillsLasting Powers of Attorney Delegate servicesProbate servicesEstate planning Corbett Le Quesne Private ClientServices can assist you with:Cut out this voucher for 30% off a simple local Willcompleted with CLQ in June or July 2023.30% discount

ContentsPage 6The power of MusicPage 8We do like to be beside the SeasidePage 10Carers’ Support MeengsPage 14Dementia FriendsPage 17Meeng Place ProjectPage 18Dementia Friendly AcviesPage 24The Forget Me Not AllotmentPage 26Geng to Know...Page 28Volunteer SpotlightPage 32Demena Awareness WeekPage 34Lived Experience Advisory Panel (LEAP)Page 37Meet the TeamPage 30Fundraising NewsWelcome to the third issue of3I’m now back from maternity leave and it’s been wonderful to see the oce a hive of acvity as we organised a range of events for World Alzheimer’s Month (September).Highlights have been the fantasc pop-up art exhibion we held at Greve de Lecq Barracks together with partners ArtHouse Jersey which featured 30 pieces of art from our Art Exploraon Group. There has also been a urry of acvity at our new allotment site over the summer and it looks absolutely wonderful now the plants are in full bloom. A huge shout out to our army of volunteer waterers – we couldn’t maintain it without you! We also had good numbers aend the Memory Walk at the beginning of the month and waved o our intrepid trekkers as they ew to Heathrow for the rst leg of their trip to Peru to walk the Inca Trail raising money for Demena Jersey. Watch this space for the locaon of next year’s internaonal challenge! Finally a big shout out to volunteer Suki Brewer who is proled on page 28 who helped transform the allotment with her wonderful design and a lile plug for our ‘geng to know you’ feature on Colin Amos, who aends our meeng place project and recently rode 444 miles in the Demena Jersey cycle challenge, smashing the 100 mile target. You’re our hero Colin!Claudine SnapeCEO – Demena Jersey Demena Jersey, de Carteret House, Hilgrove Street, St Helier, Jersey JE2 4SLTelephone: 01534 723519Email: info@demena.jeHours: 10.00 - 14.00 Monday to Fridaywww.demena.jePublished byDid you Did you know?know?Dementia has physical, psychological, social and economic impacts, not only for people living with dementia, but also for their carers, families and society at large.

4Find out more about our latestfundraising on page 30.Fundraising

The Power of Music Samares Manor tripAcvies Volunteer SpotlightGeng to knowArt Exhibion Read about the transformave eect of music on the mood of people with demena and nd out more about our weekly Musical Memories sessions.Find out more on Page 7.We had a lovely (if slightly wet) trip to Samares with aendees of our weekly Meeng Place Project group in memory of a group member who passed away earlier in the year. Find out more on Page 17.Demena Jersey oers a range of regular acvies for people living with or aected by demena and their carers. Find out more on Page 18.Meet Suki Brewer who designed our beauful Forget Me Not allotment plot.Find out more on Page 28.This issue we’re geng to know Colin Amos who aends Demena Jersey acvies.Find out more on Page 26.Our weekend art exhibion at the beginning of September featured painngs by our art groups inspired by the seaside and was a smash hit!Find out more on Page 8.In this issue5

MusicThe power ofPopularity of Demena Choirs.Choirs made up of people with demena are becoming increasingly more popular, not least because of the two-part documentary, Our Demena Choir Sings Again, which aired on the BBC in October last year. The programme focused on actress Vicky McClure, whose gran was diagnosed with vascular demena at the age of 75 and lived with the disease unl her death in 2015. Inspired by her memory, the Line of Duty star fronted a moving two-part documentary, Our Demena Choir Sings Again. They even recorded a single at the iconic Abbey Road Studios and performed at a music fesval!The series not only highlights the importance of music therapy, but raises awareness of the challenges facing people aected by demena today. Right now, too many people aren’t geng the support they need, when they need it, which is having a direct and negave impact on the health and quality of life of people aected by demena.6

The power of7The power of music for people with demena Many people have a special connecon to music and this can be parcularly powerful for people with demena. Evidence suggests music can improve someone’s mood, behaviour and wellbeing. Listening to favourite songs can bring back old memories and feelings. Many people with demena are sll able to enjoy music and to sing even when they start to lose their language abilies. While the search for a cure connues, we all must work together to support people aected by demena today so they can live meaningful lives. Music is a wonderful way to do this. Research shows that musical memory is oen retained when other memories are lost; music can help people to recall memories due to the nature of preserved memory for song and music in the brain.There are lots of ways for people with demena to enjoy the power of music. For example, you can buy special radios and music players designed for people who have demena. Playing music and singing can smulate conversaon and reminiscence for a person aected by demena. And at Demena Jersey we run Musical Memories - a weekly singing group for people with demena and their carers. Every Friday we sing well loved songs, play musical instruments and engage in musical acvies. Find out more on our website www.demena.je/acvies

8On the weekend of 2nd/3rd September Demena Jersey proudly exhibited artworks created by our Art Exploraon group inspired by reecons of being Beside the Seaside at the ArtHouse Jersey Greve de Lecq Barracks. The exhibion kick-started our 2023 campaign for World Alzheimer’s Awareness month in September. We do like to be We do like to be beside thebeside theSeaside

9Help us support those living with demena in Jersey with a monthly donaon to Demena Jersey. To donate, visit www.demena.je/donateDonateThe pop-up exhibion featured 30 pieces of art created by people living with demena, their carers and our volunteers. Alongside the artwork we were lucky to have a team of volunteers on hand to serve tea and homemade cake in the beauful seaside seng.We treated our arsts along with invited guests to a private breakfast viewing on the Saturday morning before the show was open to the public. 150 people visited our exhibion over the two days and we were delighted to raise £451 from tea room donaons. It’s safe to say we all enjoyed a wonderful couple of days ‘beside the seaside’.We do like to be We do like to be beside thebeside the

Each month we host a range of Carer’s Support Meengs aimed at family and friends who are caring for someone with demena. Meengs take place in a variety of venues and at dierent mes. They are held in a relaxed seng and include refreshments and the chance for you to meet with other carers. Demena Advisors are on hand at each meeng for an informal chat and to answer any quesons. You’re welcome to join all or just one of the sessions and you can invite another family member or friend to join you if you wish. Our carers have told us how helpful these meengs are and have welcomed the friendship and support from their fellow carers. Our demena advisors are also available for one-to-one appointments. Carers’ SupportCarers’ SupportMeetingsMeetingsDemena is the fastest growing disease on the island and the Government predict that cases will double by 2036.Did you Did you know?know?10

Carers’ Support Carers’ Support MeetingMeeting East EastVenue: Holme GrownWhen: First Wednesday of the monthTime: 11:00 - 13:00Event Cost: Free (Refreshment orders taken at table and seled at ll on your way out).Carers’ Support Carers’ Support MeetingMeetingVenue: Monterey HotelWhen: Held quarterlyTime: 19:00 - 21:00Event Cost: Free Carers’ Support Carers’ Support MeetingMeeting Evening Evening Venue: Coopers Castle QuayWhen: Second Wednesday of the monthTime: 19:00 - 21:00Event Cost: Free (£3.00 charge for refreshments.Please bring cash).Carers’ Support Carers’ Support MeetingMeeting West WestVenue: CommunicareWhen: Fourth Wednesday of the monthTime: 14:00 - 16:00Event Cost: Free (£3.00 charge for refreshments.Please bring cash).Carers’ Support Carers’ Support MeetingMeeting Town TownVenue: Radisson HotelWhen: Third Wednesday of the monthTime: 11:00 - 13:00Event Cost: Free (£3.00 charge for refreshments.Please bring cash).Demena Jersey currently run ve Carers’ Support Groups. To nd out more and book your place please contact the oce.These free, friendly, supporve groups are open to anyone supporng or caring for a relave or friend with demena. They are informal opportunies to meet others over a cup of coee. Our Demena Advisor team aend these meengs and will be happy to chat with you too.Booking in advance is required.For the date of the next meeng and to book your place please contact the oce. Tel: 01534 723519 Email: info@demena.je Sign up to our email updates about our Carers’ Support Groups GUEST SPEAKER11

12Following your feedback on the meeng me at Holme Grown, we have changed the start me and now we’re seeing numbers increase week on week as the session increases in popularity, which is great. At the beginning of October, we have our quarterly speakers evening at Monterey Hotel with a focus on Long Term Care and we’ll also have a talk from Oxygen Therapy Jersey on the potenal benets for people with demena. 29 Carers enjoyed an amazing Carer Recharger Day on the 9th of September with funding we received from a very kind benefactor. The day started with a coach tour, and a private escorted tour to Judith Queree’s garden, followed by a three course lunch at the Hotel Chrisna aer which we had some fun playing Musical Bingo, delivered by Will Davey.If you would like to nd our more about our carer’s support meengs, please contact our Lead Demena Advisor, Wendy Munn on wendy@demena.jeWhat’s new with carer’s supportWhat’s new with carer’s supportMeetingsMeetingsCarer’s day out

13DementiaDementiaFriendsFriendsAt Demena Jersey, part of our mission is to improve understanding and awareness of demena throughout the island. By helping people understand this complex and oen misunderstood condion, we hope to make our community more demena friendly. Helping, caring for and protecng people is at the heart of a strong island community. This is why our educaon programme is designed to involve everyone from local businesses and government services to community groups, schools and families. Demena Friends Jersey awareness sessions can be booked for small groups, secondary schools and workplaces. This internaonal iniave teaches you what it’s like to live with the challenges of demena and then helps you turn your new understanding into posive acons. Also available are our ‘Young Person’s Demena Awareness Sessions’ or an informave ‘Lunch & Learn’ session for those who want to learn more about the work of Demena Jersey in general. All our sessions are free of charge, and we have something for everyone. Contact Demena Jersey today to nd out how our educaon programme can help you or your organisaon become more demena aware. Sign up to become a Dementia FriendFor further informaon or to book a training session please Email: info@demena.je or Tel: 01534 723519.Dan recently held sessions with the students at Beaulieu School and team members from Hawksford.

14DementiaFriendsBelow is a roundup of Demena Friends and awareness sessions run by Dan, our Educaon and Meeng Place Coordinator. Sign up to become a Dementia FriendFor further informaon or to book a training session please Email: info@demena.je or Tel: 01534 723519.Do you know the dierence between Alzheimer’s, vascular demena and frontotemporal demena? Come along to the library and join one of our monthly Demena Friends sessions and learn the answer! Contact info@demena.je for more info and to book a space.Young person’s demena awareness session at St Michael’s school July 2023Children in Years 1 and 2 learnt all about demena and helped to make the island a more demena friendly place!

Dementia educationDan also delivered Demena Friends session for sta at RBSI, Government of Jersey Customer & Local Services, BCR Law and Andium Homes.Above: RBSILe: Andium HomesAbove: Government of Jersey Customer & Local ServicesLe: BCR LawAbove: Government of Jersey Customer & Local ServicesPeople living with demena and their carers have an equal right to respect and inclusion, and to diagnosis, quality care and treatment.Did you Did you know?know?

Dementia educationDan and volunteers took part in the Government’s Closer to Home event in the Royal Square in July to promote the work of the charity and spread awareness of demena to the public. Many local charies took part, it was a fantasc day and the weather was beauful too! We look forward to taking part in the next Closer to Home events to speak to even more people!Sign up to become a Dementia FriendFor further informaon or to book a training session please Email: info@demena.je or Tel: 01534 723519.We also took up the oer to set up a stall in NatWest Internaonal’s new community space at Library place

The Meeting PlaceThe Meeting PlaceSamares Manor TripSamares Manor TripProjectProjectThe project oers varied sessions that provide an opportunity to share experiences and talk with other people in similar situaons. We also explore ways to smulate memory and thinking skills, build self-esteem and keep our bodies healthy. Members of the Friday group recently took a trip to Samares Manor in memory of a group member who passed away earlier in the year. It was a fantatsic way to celebrate his life and it was lovely to share stories of him over a slice of cake and cup of tea in the café there. We had such a good me we might make it an annual event!For an informal discussion and to apply to aend please contact Demena Jersey at info@demena.je or call us on 01534 723519.17

Dementia FriendlyDementia FriendlyActivitiesActivitiesDemena Jersey oer a range of acvies each week for people living with or aected by demena and their carers. Our full list of acvies can be viewed on the following pages. These group acvies are very popular so please contact us to register and to check that we have spaces.For further informaon and to register your interest please contact our Acvies and Volunteer Coordinator, Susie Kelly: Email: susie@demena.je or Tel: 01534 72351918

Fun ‘n’ GamesFun ‘n’ Games Out WestOut WestTime: 14:00 - 15:30Venue: St BreladeEvent Cost: Free - refreshments includedBooking in advance is required Join us for Fun ‘n’ Games every Monday aernoon at Communicare St Brelade.Jigsaws, painng and colouring, dominoes, Bingo and cards. Or bring along your portable cra and join our knit and naer corner.Coee & ConnectCoee & ConnectTime: 11:00 - 12:30Venue: St HelierEvent Cost: Free + £3 for refreshmentsBooking in advance is required Join us every Tuesday for a cuppa and an opportunity to talk with other people living with demena, their carers and our volunteers. Coee & Connect provides a great seng for those living with demena and those caring for someone with demena, to take a break and connect with others who are going through the same journey. Share stories or just listen and share some laughter.TuesdaysMondays19Weekly Activities

20Did you Did you know?know?Time: Session 1 - 10:00 - 11:15Time: Session 2 - 11:30 - 12.:45 Venue: St PeterEvent Cost: Free - refreshments includedBooking in advance is required This art therapy programme is specically designed for people with demena and members of their families and carers. Join us and explore your creavity! Free parking.Art ExplorationArt ExplorationWednesdaysTime: 10.30 - 11.30 Venue: St HelierEvent Cost: Free + £3 for Coee & Connect Booking in advance is required Splashchat is a weekly social swimming group jointly run by the Occupaonal Therapists, the Memory Assessment Service, Demena Jersey and the AquaSplash. A 30 minute swim is followed by the opportunity to join the Coee & Connect group aerwards.SplashchatSplashchatTuesdaysIn 2022 we had over 6,500 aendances at our groups and acvies, more than ever before.Weekly Activities

21Time: 14:30 - 15:30Venue: St HelierEvent Cost: Free - refreshments includedBooking in advance is required Meet at Coopers Coee for a gentle 30-minute walk around the marina followed by a refreshment break at Coopers. Our route is in an accessible locaon away from busy roads and over at terrain with regular seats for those who would like a quick break.Walk ‘n’ TalkWalk ‘n’ TalkPétanque in the ParkPétanque in the ParkTime: 10:30 - 12:00Venue: St MarnEvent Cost: Free - refreshments includedBooking in advance is required Any budding Pétanque players please join us. St Marn’s Village Green is a great venue for a walk too so we hope to get people acve either by playing Pétanque, having a walk, or both. Join us for a drink which we serve at the Pétanque terrain.We have indoor Pétanque sessions planned for the winter months.WednesdaysThursdaysWeekly Activities

22Weekly ActivitiesFun ‘n’ GamesFun ‘n’ Games Out EastOut EastTime: 14:00 - 15:30Venue: St ClementEvent Cost: Free - refreshments includedBooking in advance is required Join us for Fun ‘n’ Games every Thursday aernoon at Caldwell Hall. Jigsaws, painng and colouring, dominoes, Bingo and cards. Or bring along your portable cra and join our knit and naer corner.Musical MemoriesMusical MemoriesTime: 15:30 - 17:00Venue: St HelierEvent Cost: Free - refreshments includedBooking in advance is required Musical Memories is a weekly singing group for people with demena and their carers. Join us as we sing well loved songs, play musical instruments and engage in musical acvies.Most of all we have fun and share laughter with an aim to:• Smulate memory• Increase communicaon• Encourage social networks.Rusty voices welcome!ThursdaysFridays

Weekly ActivitiesTime: 10:30 - 12:00Venue: St ClementEvent Cost: Free - refreshments includedBooking in advance is required Join Demena Jersey and enjoy the benets of the great outdoors at our new Forget Me Not Plot allotment gardening club. Our new space has to be seen to be believed!Get your hands dirty or just come and enjoy a tea or coee in peaceful surroundings.Please bring along your own gardening gloves.Gardening ClubGardening ClubFridaysThank You!Thank You!Our acvies programme couldn’t run without generous funding from our partners and the support of over 100 volunteers helping in a range of ways. We couldn’t do it without you.23

The Forget Me Not The Forget Me Not AllotmentAllotmenthas arrived!has arrived!Did you Did you know?know?Listening to or engaging in music, for example, by singing, dancing or playing instruments can help people with demena develop and maintain relaonships with others and improve their well-being.On a hot June day Susie Kelly, Suki Brewer (our designer) and a team of corporate volunteers from Hawksford transformed our new allotment space at Pontac planng trees, hedging and ower beds.

25Featured AcvityOur beauful wooden beds, benches, acvies tables and the hard landscaping had already been built and installed by Sco Le Breton and his fantasc guys. They later returned to construct our sheds as well.Over the summer a small band of volunteer waterers have been down every morning and evening to water and care for the plants. Susie and Helen have been let loose with the strimmer and we will have a focused dy-up before the allotments’ ocial opening on 5th October.We would like to say a huge THANK YOU to Sal Minty-Grave, Suki Brewer, Sco Le Breton and team, Mike at the JFTU, Maillards Funeral Directors the sta at Ransoms Garden Centre, Garden Scene, Vincent Obbard, Andy and Ed at Le Quesne’s Garden Centre, all our corporate volunteers and all our waterers. This is a truly beauful and tranquil seng which will allow us to oer a range of acvies to those living with Demena in Jersey, as well as a space just to enjoy and we now run a weekly gardening club every Friday, 10.30am unl 12.00pm – open to all.Chambord Allotments are situated o Rue de Jambart, St Clement. If you would like to join our green-ngered brigade please contact Susie or Helen for further details.

26Getting to know...

Colin set up and ran Le Rocquier Big Band for many years and organised trips abroad including 3 mes to America where the band played at all the famous theme parks.In the 1980’s Colin learnt to y with Jersey Aero Club and obtained Night Rang and IMC Rangs. He loved the challenge of learning and regularly ew to France with the golf clubs in the back! The furthest Colin ew was to Denmark.Colin has been a member at La Moye Golf for many years, entering (and winning) several compeons both in Jersey and in England.A lover of classical music, his favourite being Elgar’s Cello Concerto, Colin was a teacher of music, being Head of Music Departments at Les Quennevais, Hautlieu and Le Rocquier Schools, and was also Head of the Instrumental Service for Jersey. However, aer a spell of teaching in an all boys school, he worked for a short me as a dustman, but his mother showed him an advert for a job in Jersey he applied for it and that’s how he started the rest of his career in Jersey!A keen cyclist, Colin goes out on his bike 2 to 3 mes a week, normally covering 20 or so miles each me. He recently completed the Demena Jersey cycle challenge, smashing the 100 miles, Colin pedalled 444 miles and raised £364!!you may (or may not) know about Colin:5 Facts27Getting to knowColin has Alzheimer’s disease and lives in St Brelade with his wife Angie, of 51 years. He aends; The Meeng Place Project on a Thursday and Coee & Connect and he enjoys chang with others as well as engaging in the subject material and having fun!Meet activities attendeeColin Amos12345

2828Volunteer Spotlight

29Volunteer SpotlightMeet Suki Brewer, Suki generously volunteered her me to design our beauful Forget Me Not Plot allotment earlier this year. Suki explains how she came to get involved with our allotment project:I decided to volunteer completely on a whim, I wanted to oer some of my me to a charity and saw that Demena Jersey were adversing for a garden designer to help design their sensory garden at the allotment site in St Clement.I am quite a newbie to garden designing having relavely recently completed The English School of Gardening garden design diploma based at The Chelsea Physic Garden in Chelsea. It was an absolute honour to be allowed to design Demena Jersey’s garden.I loved the feel of the allotment space as soon as I rst saw it, Darling Buds of May meets the beach. I have loved working with Susie on the project whose can do and will get it done straight away atude has been joyful and energising to work with, as has her lovely happy sense of good humour. I have loved how when ever we asked people to help like Sco Le Breton and the teams at Ransoms Susie’s infecous enthusiasm for the charity and the project makes people want to say yes and join in. I was so happy to help and contribute to the project. As soon as Susie and I sat down and thought about what shape the garden should take; what we would like to grow; conversaons about what we would like to see taking place in the garden, that the space and its look naturally evolved.I have, since having been involved in this project, coincidently found out my father who has Parkinson’s disease also is living with early onset of demena. Funny how things play out in life isn’t it? have now been fortunate to aend one of Dan’s educaon workshops which has proved really insighul for me and my family and given us a good understanding of what my Dad is experiencing, as well as really useful insights for when I have my garden design hat on. I loved working with Hawksford too we had a fun day planng out the garden, aer Sco Le Breton and his team had built the garden out for us. It was a boiling hot June day but everyone put in a hard shi and it quickly took shape, it was a lot of fun. I am so looking forward to seeing the garden blossom and take shape, but I am looking forward even more to see people with demena using the garden. It has seats to rest, acvity tables to get busy in and there will always be watering and weeding to do. I really hope it will be a place where people can meet, sit, chat and just enjoy. The whole allotment area has a great energy and atmosphere, the garden will be a fabulous place to hang in and take some me to be at one with nature. The bees like it too.Meet our activities volunteerMeet Suki Brewer VolunteerVolunteerInterested in volunteering? Please contact our Activities and Volunteer Coordinator Susie Kelly: Email: susie@dementia.je Tel: 01534 723519

Fundraising NewsFundraisingFundraisingnewsnewsWe coordinated a range of fundraising acvies for World Alzheimer’s Awareness Month in September kicked o by our Memory Walk, which took place on Sunday 3rd September. A huge well done and thank you to all those who took part. This year we had over 160 people parcipate, which is incredible. From the sign ups, t-shirt sales and kind donaons, we raised just under £5,000!30

• Darren clocked his 100 miles before 9am on 1st June!Fundraising NewsSummer Cycle ChallengeIn June, we had our 100 Mile Cycle Challenge. The month started o with some prey unfriendly weather, but our wonderful parcipants pedalled through and raised over £5,000. We are so grateful to all those who got involved, and the generous people who sponsored our cyclists. AbseilIn May, we saw 40 brave islanders abseil down Val de la Mare dam to help raise money for Demena Jersey.The event was a great success, raising over £12,000. We are so grateful to all our abseilers for parcipang in the challenge and for raising such a fantasc amount that will make a huge dierence to the lives of people in Jersey aected by demena. We will be organising an abseil for May 2024 so to any daredevils out there, keep your eyes peeled!• Colin cycled 444 miles and raised £364. • Simon & Simon smashed their 100 miles in one day, raising over £1,300.31

• Our stall at NatWest• Ocorian bag packing at Co-op• Margot at our awareness stall • Radisson bucket collecng on the high streetDementiaDementiaawareness weekawareness weekThank you to everyone who supported us during the week whether you donated, volunteered, aended a Demena Friends session or popped by our stall to say hello. Your support really does make a huge dierence in helping us achieve our vision of making Jersey a more demena friendly island.3232

33Fundraising - Doing it for DementiaAerialancs Jersey raised an incredible £1,050 at their White Collar Cabaret event. Well done to all the performers for their great success! Alberto will be doing an island ride on his mobility scooter toraise money for Demena Jersey, in memory of his wife.You can supporthim on hischallenge bydonang what youcan here:hps://www.justgiving.com/page/alberto-rodriguesThe Jersey Bounce Live and Local Event raised a fantasc £1,120. The event was free to aend, thanks to the generous support from our corporate partner Hawksford and Derek Warwick Honda Jersey. Mandy kindly asked her friends and family to donate to Demena Jersey in lieu of her 60th Birthday, raising an incredible £800.We’re so grateful to all those who get involved and help us move closer to our vision of making Jersey a demena friendly island.Aerialancs Jersey – White Collar Cabaret Alberto – Island Ride Jersey Bounce – Live and Local Mandy – donaons in lieu of birthday presentsWe have some amazing individuals and organisaons taking on their own epic challenges and fundraising events to help raise vital funds to support the work we do. Here are just a few of them...

34Lived Experience Advisory Panel (LEAP)During July 2023 the Lived Experience Advisory Panel (LEAP) meengs aracted 27 people (13 People with demena (PWD) and 14 carers).The LEAP topic for discussion was: “Coping strategies and support for carers and PWD: Exploring various coping mechanisms, strategies and support systems that have been helpful in managing the challenges of caring for someone with demena and a person living with demena”.Coping strategies and support for carers and PWD are crucial in managing the challenges and dicules with this progressive neurodegenerave disease.One of the fundamental coping strategies for carers is to acquire knowledge about demena. Understanding the diseases’ progression, symptoms, and available treatments can help PWD and carers ancipate challenges and make informed decisions. During the panel discussion with carers various coping strategies and support services were discussed, all LEAP

35Lived Experience Advisory Panelagreed that educaon and training, self-care, building a support network, respite care and eecve communicaon were the main topics of focus.Most carers felt they are not respected, heard or seen by the Government of Jersey. During the panel discussion carers agreed that unl the Jersey Government accepts the value of home carers, they will not receive the necessary coping strategies and support that is needed when caring for someone living with demena.A comment from a panel member caring for a PWD: “I have no formal training in care and there is very lile support or training one can aend or is available this makes me very anxious as I am responsible for another person’s health”.The panel members living with demena at the MPP spoke about the importance of person-centred care, engagement in meaningful acvies, like aendance at Demena Jersey acvies, the importance of healthcare professional having the necessary training so they can communicate eecvely with the PWD and community engagement. They also shared that they felt that parish halls weren’t been used to their full potenal like they had been in the past. A comment from a panel member living with demena: “Every Saturday night we would aend a dance at the parish hall, now the parish hall sits in darkness”.All agreed of the importance of collaboraon and partnership between carers, individuals living with demena, healthcare professionals, and community organisaons and the Demena Strategy currently being wrien for the island was a good place to start. All LEAP reports can be found on our website, if you would like to nd out more about LEAP or speak with a Demena Advisor, please contact us on info@demena.je or call 723519.

Support those living with dementia in Jersey by giving monthlyScan this QR Code to visit our donations page£5 £10 £20will pay for new song books for our popular Musical Memories sessions for people with dementia.will pay for plants and owers in our new therapeuc allotment site for people with dementia.will pay for a face to face support session for up to 20 carers run by our Dementia Advisors.a month a month a monthwww.dementia.jeIndividuals that give a monthly gi move us a step closer to achieving our vision of a dementia friendly island. Scan the code to nd out more.DonateDonateBy choosing to donate monthly, you’re helping to make sure we can connue to provide life-changing support to islanders living with dementia. A regular gi means we can rely on consistent support and more eecvely budget throughout the year. Dementia Jersey exists to provide advice, support and informaon to the community as a whole. Our aim is to not only help about 1,600 people living with dementia on the island, but to also raise awareness and educate people to help remove the sgma and make Jersey a truly dementia friendly island. 36

Meet our Team Assistant Creina LangloisWhat I love about my jobI love the fact that I get to see the dierence Demena Jersey does daily to people’s lives. I tell people that we have a ‘Magic Door’ in our oce. I see them coming into recepon looking worried, weighed down with stress and concern. Our Demena Advisors then take them into our quiet room and approximately one hour later they come out of the room smiling and so relieved…hence the ‘Magic Door’. Since working at the charity, I have watched it grow rapidly. Not only in sta numbers but also in the amount of people needing the charity’s services. Being able to assist the team with the day to day running of the oce, fundraising and being able to help such a wonderful charity is an absolute privilege.My favourite part of the job is helping at the dierent acvies, that is when I properly see what a dierence the work of the charity makes to those living with demena and their carers. Making a dierence and seeing how much the charity sta are appreciated by members and carers is wonderful and makes all the hard work, behind the scenes, worth it. Did you knowI love to travel as much as possible. Having been all over the world, I have to say my favourite places so far is the East Coast of Australia and Hawaii. I also enjoy boang with family and friends. Aer spending many years in Property Law, Probate and Educaon, I knew my dream job would be to work for a charity. I’m a ‘people person’ so when I was oered a posion at Demena Jersey two years ago, I was over the moon and haven’t looked back since.Meet the teamHelp us support those living with demena in Jersey with a monthly donaon to Demena Jersey. To donate, visit www.demena.je/donateDonate37

38Book ClubWhether con or non-ction, reading can be a great way to increase understanding about demena, as well as providing a useful acvity with people with dementia to help stimulate and maintain connections. This issue we feature two books that are recommended by our friends at Dementia UK.Burnt Sugar by Avani DoshiTelling Tales About Demena: Experiences of Caring Edited by Lucy WhitmanSHORTLISTED FOR THE BOOKER PRIZE 2020: A searing, compulsively readable story of mothers and daughters, memory and madness, love and betrayal. In her youth, Tara was wild. She abandoned her arranged marriage to join an ashram, took a hapless arst for a lover, rebelled against every social expectaon of a good Indian woman - all with her young child in tow. Years on, she is an old woman with a fading memory, mixing up her maid’s wages and leaving the gas on all night, and her grown-up daughter is faced with the task of caring for a mother who never seemed to care for her. This is a poisoned love story. But not between lovers - between mother and daughter. Sharp as a blade and laced with causc wit, Burnt Sugar gradually untangles the knot of memory and myth that bind two women together, revealing the truth that lies beneath.‘A corrosive, compulsive debut’ Daily Telegraph (*****)‘Scouringly brilliant, a blazing debut with words that glier sharp as shards of broken mirror’ Buro.The straighorward language and honesty of the author makes it an enjoyable read for carers and health professionals alike.How does it feel when someone you love develops demena? How do you cope with the shock, the stress and the grief? Can you be sure that you and your family will receive the support you need? In “Telling Tales About Demena” thirty carers from dierent backgrounds and in dierent circumstances share their experiences of caring for a parent, partner or friend with demena. They speak from the heart about love and loss. But they contain hope and opmism too: clear indicaons that the quality of people’s lives can be enhanced by sensive support services, by improved understanding of the impact of demena, by recognising the importance of valuing us all as human beings, and by embracing and sustaining the connecons between us. This unique collecon of personal accounts will be an engaging read for anyone aected by demena in a personal or professional context, including relaves of people with demena, social workers, medical praconers and carers.

A fun simple game designed to smulate conversaon.Noodle Nudges was a game developed in response to Annie Miller trying to nd acvies to do with her mum who had advanced Alzheimer’s and who struggled to engage in pasmes she used to enjoy. “It was a rainy aernoon and I wrote out lots of proverbs and cut o the last word then mixed them up. My mam knew every single one. It was a ‘moment’, and hence the birth of noodle nudges.” The idea is simple, matching the queson cards to the answer cards. No complicated rules.The proverbs are really good communicaon tools, icebreakers and conversaon starters, whilst also being inclusive, educaonal and enjoyable.Available from the Alzheimer’s Society online shop for £12.99hps://shop.alzheimers.org.ukThe Rosebud reminder clock has been developed to help prompt people with demena to do daily tasks and relieve the stress and anxiety that can build up when unknown events occur.It was developed with feedback from people living with demena. Helps with:Time orientaon, Ease and simplicity RemindingAvailable from the Alzheimer’s Society online shop for £69.99hps://shop.alzheimers.org.uk39Consumer CornerIn each issue of Dementia Maers we will providing reviews of products and tech that are designed to help people with dementia.In this issue we have selected items recommended and reviewed by the UK Alzheimer’s Society.Rosebud reminder clock - whiteNoodle Nudges gameForget-me-not garden sculptureAn all-weather, all-year-around happy lile garden blossom!Forget-me-nots, are wildowers known for its masses of ny vibrant blue owers, symbolic of faithfulness and enduring love. This metal forget-me-nots garden sculpture is painted in a striking blue with a yellow centre. Six owers on each stem all made from recycled metals in Zimbabwe. The perfect gi.. Available from the Alzheimer’s Society online shop for £23.99hps://shop.alzheimers.org.uk

Ways you can support usOur running costs are over £500,000 per annum. We therefore rely on the support and generosity of the public and the business community. All money raised in Jersey is spent in Jersey.Donate OnlineMake a donaon online via our website: www.dementia.jeDonate by chequePlease make cheques payable to ‘Dementia Jersey’ and send to our office at the address below.FundraiseRaise money through a challenge event by walking, cycling, abseiling, trekking or skydiving for Dementia Jersey; or pick a challenge of your own. Please contact Nadine for more information. Email: nadine@dementia.jeVolunteerConsider volunteering at our events. For more information please contact our Activities and Volunteer Coordinator, Susie Kelly. Email: susie@dementia.jeContact usTel: 01534 723519Email: info@dementia.jeWeb: www.dementia.jePost: Dementia Jersey, de Carteret House, Hilgrove Street, St Helier, Jersey JE2 4SLHours: 9.00 - 14.00 Monday to FridayJersey Charities Commission number 42 • Patron Dr Karen KydFind, Like and Share us onwww.dementia.je