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www.dementia.jeA year of transformationDementia Jersey Impact Report 2023
2We are Dementia Jersey, the only local charity for people with dementia and those who care for them.
2023 has been quite a year. We have been there for families when they have had nowhere else to turn. Through our acvies, groups and one-to-one support we have reached hundreds of families, helping them make dicult decisions and plan for the future. We have also co-authored the rst Demena Strategy for Jersey, for which we have been lobbying over many years.Demena has had a higher prole recently, sadly because it is now recognised as the leading single cause of death in Jersey. This, together with our ageing populaon, means it’s the right me to put the needs of people with demena at the top of the agenda. By co-authoring the Demena Strategy for Jersey we’ve been given a unique opportunity to achieve a step change for people with demena and their families. For too long families have had to put up with a long wait to get diagnosed, endured professional carers with lile or no specialist training in demena and had very few opportunies for respite. We hope by shining a spotlight on these injusces that change is on the way. This change also needs to address the way society views demena. Sgma and discriminaon heighten the already signicant psychological, social, emoonal and nancial impacts that demena makes. Where beer to start challenging sgma than in schools? We have partnered with four schools and six scout groups in 2023 to extend our demena awareness training and are working towards a goal of partnering with every school in the island. We have also piloted a Demena Friendly Business scheme where we audit retail outlets to advise them how their premises and sta can be more demena friendly. We are proud of all that we have accomplished in the last year, and this is thanks to our dedicated sta and trustees, our amazing volunteers and you, our incredible, generous and loyal supporters. As always, we are nothing without you and your life-changing support. Every gi brings us one step closer to a demena friendly Jersey. Welcome from our CEO Claudine Snape,CEO - Demena Jersey3
4With your support we are transforming lives 100%6,3974761,018of attendees said they enjoyed meeting people in the same boat and 75% said they feel less isolated aer attending our eventsWe hadattendances to our therapeutic activitiespeople aented our Dementia Friends trainingWe co-authored theJersey Dementia Strategy people received expert support from dementia advisors
52023 compared to 2022 Overall we had 1,808 more aendances than last year to appointments with Demena Advisors, events for carers and our programme of acvies. This is largely due to the expansion of our programme with the introducon of several new acvies and groups that were introduced mid-way through 2022.AttendancesService 2022 2023 NotesCommunity events 73 162 Arts exploraon 641 972 second session in 2023Musical Memories 1267 1166 Fun & Games 370 866 new in 2022Coee and Connect 1335 1164 Gardening Project 162 new in 2023Splashchat 199 193 Walk ‘n’ Talk 205 396 new in 2022Pétanque 592 new in 2022Meeng Place Project 449 886 new groups in 2023Demena Friends 457 476 Awareness talks 915 670 Appointments with Demena Advisors 478 466 Carer’s Support events 526 552 TOTAL 6,915 8,723 When asked 75% of attendees say the activities ‘put a smile on my face for the rest of the day’
Advice and supportWe made sure that people with dementia and those who care for them got the advice and support they needed to improve their quality of life. In 2023 we:Oered condenal support from demena advisers to over 1,000 aendees to carers group meengs and 1-2-1 sessions. Our advisers helped families navigate life-changing diagnoses and connected them to services that promoted their physical, mental and emoonal well-being.Expanded our volunteer-led therapeuc acvies for people with demena by employing a new acvies assistant, launching a new gardening club and expanding Fun ‘n’ Games. Current popular acvies include art, music, swimming, Petanque, coee mornings and puzzles/games. Grew our community of volunteers to over 152 up from 111 last year. Introduced another group to our Meeng Place Project, which supports people with a recent diagnosis with a mixture of weekly cognive therapy, group work and movement. 6“The friends I’ve made through Dementia Jersey provide the support and understanding that makes life worth living again”.
7“Delighted to see my Dad so happy with his medal! He was a great runner and footballer in his youth and so has many medals and trophies to his name. I know from chang with him that pétanque is something he enjoys - he talks about it most days - and somehow that it connects to his memories of him being a sportsman for most of his life”.“Thank you for giving him this weekly joy”
8Influence professional practice We used our experse to inuence professional pracce in order to improve island-wide services.In 2023 we:Worked in partnership with the Government of Jersey and co-authored the rst Jersey Demena Strategy which will be launched to the public in 2024. The strategy makes 5 key recommendaons which tackle the challenges negavely aecng the quality of life of islanders with demena. Connued to grow the Lived Experience Advisory Panel which is a group of up to 40 people with demena and carers who comment on issues relang to their experiences on a quarterly basis, and whose recommendaons are shared widely to inuence improvements (and followed up). Worked with a range of partners and working groups for example the Older People’s Living Forum and the Jersey CEO Network to inuence work to improve professional services, training and policies aecng people with demena and those who care for them. We joined a programme sponsored by Lloyd’s Bank Foundaon which builds condence, develops knowledge and shares good pracce in engaging people with lived experience in charity work.“I really enjoy the Meeng Place on a Friday (which hosts the LEAP topics). Always puts a smile on my face”.
9Rachel McBride, co-author of the Jersey Demena Strategy said:“Working in partnership with Demena Jersey on the islands’ rst demena strategy has been truly valuable and has added a richness and depth that would not have been achieved if the strategy had been developed alone. Drawing on skills, experience, networks, and knowledge held by Demena Jersey and by the Government has enabled us to create a set of challenging yet pragmac strategic commitments which will make a real dierence to islanders. Our shared passion and determinaon to ensure that people with demena and those people who support them are valued and supported well, has given us a common purpose, and has shown what can be achieved by working in partnership”.
10Educating islanders to understand more about dementia and remove the stigma Many islanders are not aware of the approaches which are fundamental to making people with demena feel understood and supported.In 2023 we:Expanded our free introducon to demena awareness sessions into four primary schools and six scouts groups with the ambion that all schools become demena friendly by the end of the strategy. Connued with our popular free Demena Friends programme and trained 476 people.Ran a pilot with Jersey Hospice Care for a new chargeable Demena Friendly Businesses Scheme, which oers cercaon to organisaons who provide services to people who may have demena. This programme will be rolled out in 2024. Finalised the training materials that we plan to oer to carers in Q2 next year, ensuring the training is praccal and meets the ‘real world’ challenges carers face on a regular basis. Researched and prepared an excing new campaign focused on ‘Brain Health’ partnering with Alzheimer’s Research UK which will launch in 2024. 70% of islanders don’t realise they can reduce their risk of developing dementia
11Interested in your business becoming dementia friendly? A dementia friendly business is a business that is aware of the needs and challenges of people living with demena and adjusts its products, services, and environment to accommodate them. A demena friendly business can benefit from increased customer loyalty, improved reputaon and enhanced sta morale. They will also know that they are doing the best that they can for the residents of Jersey who are living with demena.Becoming a demena friendly business is straighorward, though it may require some adjustments over me to some parts of how a business runs itself. We help any organisaon that wishes to become more demena friendly by guiding them through a process that will improve their services for people with demena and their carers. Contact us to nd out more. Mike Palfreman, Chief Execuve, Jersey Hospice Care said :“Jersey Hospice Care were delighted and proud to have the opportunity to become Demena Jersey’s rst Demena Friendly business. We found the process both smooth and informave, and this exercise has been really useful in helping us idenfy how we can provide even beer support for paents and all our stakeholders with demena”.
12Making it happen To help achieve our ambion of a demena friendly island in 2023 we:Grew sta numbers to expand services to meet demand. In 2023 we welcomed a Demena Project Manager and an Acvies Assistant, both of which were new roles. Created a team manifesto which arculates what good teamwork looks like. Moved to new interim premises which allow ample space for our sta while we connue the search for long-term accessible premises. Reduced our environmental impact by recycling our oce furniture and using some recycled furniture in our new premises. Invested in technology by:Partnering with Connuum to introduce a new CRM meaning we have a beer understanding of our impact and ability to keep in touch with supporters. Developing a new website which enables users to book events and beer showcases our work and impact. Using an app for our Demena Friendly Business assessments signicantly speeding up the reporng process.
13Fantastic fundraisersWe’re so thankful for your support throughout the cost of living crisis. With Jersey facing unprecedented nancial pressures, we were delighted to raise more than £700,000 during 2023. We’d like to thank our generous individual supporters, as well as those corporates who have partnered with us.It was parcularly emoonal to see people take part in our Inca Trail Trek, the rst in recent mes with parcipants raising an incredible £40,000. Another highlight was the abseil which raised over £12,000 and the Jersey France swim which had to ulmately be suspended due to bad weather but sll raised over £20,000. We also enjoyed fantasc support from corporates, including Hawksford, Radisson and IoD Jersey. Funding from the charitable trusts and foundaons named overleaf meant we were able to connue supporng families through our acvies programme with support from our demena advisors.“The coordinaon and the support during the whole experience was gold standard. If you’re looking for a chance to see the world, challenge yourself, make new friends, and support a great charity then I see no beer place to do so than on the next Demena Jersey expedion!”
14Our wonderful volunteers We’re lucky enough to have the support of over 150 volunteers who help in a variety of ways including making tea, registering aendees at our events, manning informaon stalls, watering our allotment, helping with our oce move, counng cash, and preparing Christmas card packs. Our thanks to every single one of you!“Tuesday mornings at Splashchat are up there on my highlights of the week. I really value the support and advice received from my fellow volunteers”
Our partners and fundersGovernance and Finance Thank you to our range of partners and funders. Together with are greater than the sum of our parts and improve the lives of people with demena. Associaon of Jersey Charies, BCR Law, Chadwick Charitable Trust, Carey Olsen, Elizabeth Voilet Annie Rouse Selement, Government of Jersey (Community Compass), Greville Bathe Fund, Hawksford, Instute of Directors, Jersey Community Foundaon, Jersey Freemasons, Lloyds Bank Foundaon, Langham Hall, Scoo Trust, Spring Investment Management, Sir James Kno Trust, The Radisson Blu Waterfront Hotel, The Roy Overland Charitable Trust, Timothy and Mary Clode, Trust Quay, WO Street Charitable Foundaon.Board of trustees Our Trustee Board governs the charity and had 10 trustees during 2023, all volunteers. The majority of our trustees have family members with demena. Trustees can serve on the Board for a maximum of nine consecuve years. Huge thanks to all our trustees for their service over the last year:Chris Renouf (Chairman)Ryan Knight (Secretary) Simon Perchard (Treasurer) Nick BeanyJohn Doublard Lauren Perchard-ReesDr Ma DoyleTom Noel Kelly Flaguel (stepped down in 2023 aer 5 years in post) Felicity Freeman (stepped down in 2023 aer 11 years in post)15Annual Report and accounts The 2022 annual report and accounts were approved by the Trustees and signed on their behalf on 13 September 2023. Auditors RSM Channel Islands (Audit) Ltd gave an unqualied audit report on the statutory nancial statements on 15 September 2023. You can get the full trustees’ report, statutory nancial statements and auditors’ report by emailing info@demena.je.
Ways you can support usOur running costs are over £600,000 per annum. We therefore rely on the support and generosity of the public and the business community. All money raised in Jersey is spent in Jersey.Donate OnlineMake a donaon online via our website: www.dementia.jeDonate by chequePlease make cheques payable to ‘Demena Jersey’ and send to our oce at the address below.FundraiseRaise money through a challenge event by walking, cycling, abseiling, trekking or skydiving for Demena Jersey. Or pick a challenge of your own. Contact Nadine for more informaon on nadine@demena.je Charity of the Year PartnershipsChoose us as your business’s charity of the year. Please contact Nadine for more informaon on nadine@demena.jeVolunteerConsider volunteering at our events or acvies. For more informaon please contact Susie Kelly on susie@demena.jeContact usTelephone: 01534 723519Email: info@dementia.jeWeb: www.dementia.jePost: Dementia Jersey, Osprey House, Old Street, St Helier, Jersey JE2 3RGHours: 9.00 - 14.00 Monday to FridayJersey Charities Commission number 42 • Patron Dr Karen KydFind, Like and Share us onwww.dementia.je