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www.dementia.jeA landmark yearDementia Jersey Impact Report 2024 Message
2We are Dementia Jersey, the only local charity for people with dementia and those who care for them.
2024 has been a landmark year for Demena Jersey as we were instrumental in launching the island’s rst Demena Strategy in June and we created our own bespoke oce and facilies at Halke Place, aer years of searching. We’ve now got a regular seat at the table with Government working collaboravely on the implementaon of the new strategy. We’re proud to say that we’ve taken forward work in a number of the strategy’s priority areas in 2024 including:Raising awareness We launched a prevenon campaign called Boost your Brain which saw us turn Broad Street into ‘Memory lane’ complete with artwork which encouraged healthy behaviours linked to proven risk factors. Diagnosing well We worked in partnership with the Memory Assessment Service (MAS) to redesign their ‘About your MAS appointment’ leaet given by GPs to paents at the point of referral. This now includes informaon on what happens aer a diagnosis and gives an overview of Demena Jersey’s services.Supporng people with demena and their familiesWe have introduced free training for up to 120 family carers a year and a ‘carer’s pack’, lled with helpful resources.Supporng Jersey to become a demena friendly islandWe launched our Demena Friendly Business Scheme, working with local organisaons including Hospice and JT to train sta and improve the customer experience for people with demena.We believe in a future where mely diagnosis is the norm; where there is a clear and supporve care pathway; where sgma is eradicated and where every person touched by demena feels valued and understood. Through collaboraon, educaon and innovave services, we connue to aim to empower individuals and their families, enabling them to navigate the challenges of demena with dignity and strength. We couldn’t do this without our wonderful sta and trustees, our amazing volunteers and generous supporters. Together, we are truly making a dierence to the lives of those aected by demena and are taking important steps towards a more demena-friendly Jersey. Welcome from our CEO Claudine Snape,CEO - Demena Jersey3
4With your support we are transforming lives 2,500people heard us talk about dementia awareness 96%of people say attending our activities puts a smile on their faces for the rest of the day6,397We hadattendances to our therapeutic activitiesfamily carers received free training 90500We gave free dementia advice to over 500 people
52024 compared to 2023 Overall we had 4,597 more aendances than last year. This is largely due to the expansion of our programme with the introducon of several new activities and groups in 2024. “The whole family all feel the services and support oered by Dementia Jersey are fantastic and life dealing with this all-round stressful disease would be very much worse and less bearable without that support.”Advice and Support678 more aendances than last year120010008006004002000Appointments with Dementia AdvisorsCounselling Carer’s Support EventsClub UnoNew for 2024Meeting Place ProjectAwareness and Training1,848 more attendances than last year300025001000500250100Activities and Events1,935 more attendances than last year20001600120080040002023 20242023 20242023 2024Community eventsArts ExploraonMusical Memories Fun ‘n’ GamesCoee & ConnectNew for 2024 S Club Gardening ClubSplashchatWalk ‘n’ TalkPétanqueDementia FriendsSessionsAwareness TalksTraining for Family Carers (DIP)New for 20242,595466755250992707858861,1961,7331,0771,0151,0278846715352891,1968661,16497259239616325812019316267047630990
Advice and supportWe made sure that people with demena and those who care for them got the advice and support they needed to improve their quality of life.Trained 90 family carers about how to care for someone with dementia.Launched a ‘Carer’s Pack’ lled with helpful new resources like ‘Aid to Locate’, ‘This is Me’ and others. We worked in partnership with the Memory Assessment Service to redesign their ‘About your MAS appointment’ leaet given by GPs to paents at the point of referral, to include what happens aer a diagnosis and give an overview of Demena Jersey’s services.Added a further two groups to the Meeng Place Project, which now supports ve groups of 10 people with a recent diagnosis with a mixture of weekly cognive therapy, group work and movement. Oered condenal support from Demena Advisers to over 500 people. Our advisers helped families navigate life-changing diagnoses and connected them to services that promoted their physical, mental and emoonal well-being.Oered 707 places across the year at carer support groups in dierent parts of the island. Introduced a new summer programme of outdoor acvies at the allotment including outdoor art and Tai Chi. Expanded our volunteer-led therapeuc acvies for people with demena by launching quarterly tea dances and introducing S Club – a mixture of seated boxing, line dancing and eastern inspired movement. Current popular acvies include art, music, swimming, Pétanque, coee mornings and puzzles/games. Welcomed new volunteers to support the expansion of our programme.In 2024 we:6“Vivien can give you a long list of what she loves about the acvies she aends; the company, laughter, chang, games, music, sta, silliness, support, encouragement and mind boost.”
7“I feel that when I leave the island, Demena Jersey will ensure that mum and dad don’t drop o the radar. Their services are indispensable. The dierence in mum’s mood is so signicant. She has more of a social life than the rest of us! The knowledge, care and support oered is exceponal.”
8Influence professional practice We used our experse to inuence professional pracce in order to improve island-wide services.In 2024 we:Co-authored the rst Jersey Demena Strategy with Government which launched in June 2024. The strategy makes 5 key recommendaons which tackle the challenges negavely aecng the quality of life of islanders with demena. Connued to grow the Lived Experience Advisory Network (LEAN), (formally Panel) which is a group of up to 40 people with demena and carers who comment on issues relang to their experiences on a monthly basis and reported back to them which of their recommendaons we have taken forward. Worked with a range of partners and working groups for example the Older People’s Living Forum and the Jersey CEO Network to inuence work to improve professional services, training and policies aecng people with demena and those who care for them. We joined a programme sponsored by Lloyd’s Bank Foundaon which builds condence, develops knowledge and shares good pracce in engaging people with lived experience in charity work.“The strategy has been developed through true partnership working between representaves of the Government of Jersey and Demena Jersey and draws strongly on the voices of islanders, parcularly those with lived experiences of demena, whilst drawing on local and global evidence. Deputy Tom Binet, Minister for Health and Social Services
How we have listened to people’s lived experiencesLEAN has now been up and running since October 2021 and over this me many of our clients have joined in discussions on a wide range of subjects that have been important to them.We have noted what has been discussed and published reports on our website making them available for anyone to read. Demena Jersey has aconed many of LEAN’s recommendaons and shared these with other organisaons as appropriate.The following are just some of LEAN’s recommendations that we have actioned:We have extended our Demena Advice and Counselling services and the range of carer support groups so more people can aend meengs at mes to suit them.We now have more Meeting Place Project sessions, enabling more people to aend and benet from these very popular groups.We now oer training for family carers.We are currently developing training for professional carers.We now provide more community-based informaon sessions for the public to help people understand more about demena thus helping to reduce sgma.We have added to the range of acvies we oer for people with dementia for example by adding Pétanque, seated boxing and line dancing.We have launched a brain health campaign to let the public know how they can reduce their risk of geng demena.Our Demena Friendly Business scheme is now well established, making more businesses more accessible for people with demena.9“I’ve really appreciated the opportunity to share my experiences in the hope that it may lead to some posive changes for other people in the same boat.”
10Educating islanders to understand more about dementia and remove the stigma Many islanders are not aware of the approaches which are fundamental to making people with demena feel understood and supported.In 2024 we:Launched a Boost Your Brain campaign to educate people about how to reduce their risk of demena. We used hoarding in broad street to adverse our key messages and promote a Big Brain Challenge across the island. Connued with our popular free Demena Friends programme and trained over 300 people.Delivered school assemblies to over 2,000 school children and demena awareness talks to over 500 people. Launched the Demena Friendly Businesses Scheme, which oers cercaon to organisaons who provide services to people who may have demena, by compleng the pilot with Hospice and going on to cerfy JT. “up to 45% of cases of demena can be prevented or delayed”
Our frontline teams from engineering, retail, our contact centre and HR have deepened their understanding of demena through the Demena Jersey workshop. They’ve learned to recognise the signs and respond thoughully to those living with the condion. We’re always incredibly proud of our people’s interest and willingness to make themselves more aware, all of which benets not only our customers but also their loved ones and the wider community. Each parcipant has truly earned their Demena Jersey badge and we’d really encourage other workplaces to help make Jersey a more demena-friendly place’’.11A dementia friendly business is a business that is aware of the needs and challenges of people living with demena and adjusts its products, services, and environment to accommodate them.A demena friendly business can benet from:• increased customer loyalty• improved reputaon• enhanced sta morale.Becoming a demena friendly business is straighorward, though it may require some adjustments over me to some parts of how a business runs itself. We help any organisaon that wishes to become more demena friendly by guiding them through a process that will improve their services for people with demena and their carers. Contact us to nd out more.Laura Belo, Head of HR at JT, said:2025Interested in your business becoming dementia friendly certified?
12Making it happen To help achieve our ambion of a demena friendly island in 2024 we:Moved into new premises near the library with bespoke counselling rooms, demena friendly features and enough room for our expanding team. Launched a new website with a wealth of new helpful informaon, an online shop and the ability to book appointments. Grew sta numbers to expand services to meet demand. In 2024 we welcomed new facilitators to support the expansion of the Meeng Place Project. Reduced our environmental impact by recycling our oce furniture and using some recycled furniture in our new premises. Improved our governance by introducing a sustainability plan, a business connuity plan and organisaonal risk register.Invested in technology by:Partnering with Codena to connue our use of Donorfy (our CRM) meaning we have a beer understanding of our impact and ability to keep in touch with supporters. Enlisted specialist help on cyber security.
13Fantastic fundraisersWe’re so thankful for your support throughout the cost-of-living crisis. With Jersey facing unprecedented nancial pressures, we were delighted to raise £736,461 during 2024. We’d like to thank our generous individual supporters, as well as those corporates who have partnered with us.It was parcularly emoonal to see people take part in our Kilimanjaro trek, with parcipants raising an incredible £47,000. Another highlight was the abseil raising over £10,000, cycle challenge which raised over £7,700 and the fantasc Jersey France swim. We also enjoyed generous support as Charity of the Year partners to BCR Law, Carey Olsen, Corbe Le Quesne, Gen II, Digital Jersey Tech Awards, HSBC, Jersey Royal Company, JFSC, Rawlinson & Hunter, Rotary Club and RBC. Funding from the charitable trusts and foundaons named overleaf also meant we were able to connue supporng families through our acvies programme with support from our demena advisors. “I never expected to get as much out of the trip as I did. From the guides to the porters and everyone in between – we really couldn’t have done it without them! The whole experience, whilst challenging at mes, was made easier by the wonderful group of people I met and I truly feel that I’ve made friends for life”.
14Our wonderful volunteers We’re lucky enough to have the support of over 100 volunteers who help in a variety of ways including making tea, registering aendees at our events, manning informaon stalls, watering our allotment, helping with our oce move, counng cash and preparing Christmas card packs. Our thanks to every single one of you!“Volunteering for any activity is a pleasure and a small thank you (to the charity) for their support when I needed it. To be able to interact, chat, see the smiles and at mes laughter from people who aend makes volunteering so worthwhile”.
Our partners and fundersGovernance and Finance Thank you to our range of partners and funders. Together with are greater than the sum of our parts and improve the lives of people with demena. Associaon of Jersey Charies, Chadwick Charitable Trust, CSC, Government of Jersey (Community Compass), Greville Bathe Fund, Hawksford, Jersey Community Foundaon, Jersey Freemasons, JT Community Fund, LGT Wealth Management Jersey, Lloyds Bank Foundaon, Orchid Care, Ogier, Praxis, Radisson Blu Waterfront Hotel, Scoo Trust, Sir James Kno Trust, Spring Investment Management, The Ellis Foundaon, The Talisman Foundaon, The Roy Overland Charitable Trust, The Rotary, Timothy and Mary Clode, WO Street Charitable Foundaon.Board of trustees Our Trustee Board governs the charity and had 9 trustees during 2024, all volunteers. The majority of our trustees have family members with demena. Trustees can serve on the Board for a maximum of nine consecuve years. Huge thanks to all our trustees for their service over the last year:Chris Renouf (Chairman)Ryan Knight (Secretary) Simon Perchard (Treasurer) Nick BeanyLauren Perchard-ReesDr Ma DoyleTom Noel Victoria ClohesyJohn Doublard(stepped down December 2024)15Annual Report and accounts The 2023 annual report and accounts were approved by the Trustees and signed on their behalf on 16 September 2024. Auditors RSM Channel Islands (Audit) Ltd gave an unqualied audit report on the statutory nancial statements on 2 October 2024. You can get the full trustees’ report, statutory nancial statements and auditors’ report online at www.demena.je
Ways you can support usOur running costs are circa £820,000 per year. We therefore rely on the support and generosity of the public and the business community. All money raised in Jersey is spent in Jersey. Donate OnlineDonate OnlineMake a donaon online via our website: www.dementia.jeDonate by chequeDonate by chequePlease make cheques payable to ‘Demena Jersey’ and send to our oce at the address below.FundraiseFundraiseRaise money through a challenge event by walking, cycling, abseiling, trekking or skydiving for Dementia Jersey, or pick a challenge of your own. Contact Nadine for more informaon on nadine@demena.jeCharity of the Year PartnershipsCharity of the Year PartnershipsChoose us as your business’s charity of the year. Please contact Nadine for more informaon on nadine@demena.jeVolunteerVolunteerConsider volunteering at our events or acvies. For more informaon please contact Susie Kelly on susie@demena.jeContact usTelephone: 01534 723519Email: info@dementia.jeWeb: www.dementia.jePost: Demena Jersey, 74 Halke Place, St Helier, Jersey JE2 4WHHours: 10.00 - 16.00 Monday to FridayJersey Charities Commission number 42 • Patron Dr Karen KydFind, Like and Share us onwww.dementia.je