Community Update Jan Feb 2023 : simplebooklet.com

We acknowledge the Traditional Custodians of Country throughout Australia and recognise their continuing connection to land, waters and sky. We pay our respects to their Elders past and present. We are committed to working together to address the health inequalities within Aboriginal and Torres Strait Islander communities. We accept the invitation to the Uluru Statement from the Heart.

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2022 YEAR IN REVIEW – OUR IMPACTS3Table of ContentsWELCOMEFrom the Co-DirectorsPHASE 1 CONSENSUS STATEMENTThe Short Horizon 2023 Implementation Actions597PharMIbridge Study - Completedi-LEARN:A Studio inThree Parts1718CURRENT WORKS ACROSS RESEARCH PROGRAMS AND NETWORKS11INTRODUCING WELLMOB RESOURCE2023 FAPMI SURVEY ON CHILDREN AND FAMILY15HIGHLIGHT ON RESEARCH -NEAMI IMPLEMENTATION CO-EVALUATION1316

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5WelcomeWelcome back to 2023 with much already happening leading up to our Annual Symposium. If you haven't registered online to see some of the amazing work in the Top End Larrakia (Darwin) or to hear Joe Williams share “Nurturing the Enemy Within”, see the symposium pages to register.In December 2022, the embedded lived-experience research model was completed with the appointment of Professor Sandra Eades (AO) as a Co-Director to ensure decisions about Aboriginal and Torres Strait Islander people in research are reflected in all levels of Centre leadership. During January-February the Annual Lived-Experience Priorities Survey with ALIVE National-PRATO International launched. The findings will provide a basis to co-design pathways with children and families in the National Roadmap for Mental Health Research Translation.We are delighted to see more than 2500 opens of The Phase 1 Consensus Statement – The Short Horizon 2023 Implementation Actions: https://midd.me/XF2C These expanded our existing priority data set that was gathered when the Centre vision was written in 2020 to obtain funding. These priorities were combined with the ANU ACACIA group's priorities from 2017 in a combined research exercise 2021. Now we are on the road to ensuring research translation matches the priorities of the people most impacted.As we’ve shared before, research activity has commenced in the National Centre that responds to parts of Phase 1 Consensus Statement. Check out the updated research activities diagram on page 11 where we show how the research currently fits with the intended outcomes in ALIVE National–see what you think!February has also seen the Virtual Translation café series re-open for 2023. Victor Montori's impactful work on careful and kind care: patient revolution is an important ways to start translation conversations this year.

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6Check out the Virtual Café Calendar for what’s and if you have not yet re-visited or seen our digital platform, you can now check out some of the revamped pages on: www.alivenetwork.com.auIn the second half of 2023 our Translation Suite will come online and enable further access to the I-LEARN –Integrating Lived Experience Applied Research Nationally modules for completion. It has continued to be a busy time in the mental health service, research and policy sectors. The federal government announced funding ($7M) for an independent consumer and independent carer peak body nationally—we look forward to working with the peaks on translational research agendas and hearing more on the next steps.The announcement came at the Equity and Access meeting in Canberra in early February 2022—the Centre Executive hope that government and representatives start to think about the central role of implementation and translation research andinclude this critical element for changing the mental health care system and addressing unmet needs within these meetings and conversations in 2023.As we head into the final preparations for our symposium, we invite you to grab a coffee and read our update. We've included a brief review of our reach and impact for 2022, re-aligned our diagram of research activities to our model of change outcomes to show how activities are linked with our objectives. We provide some snippets about the Consensus Statement Priorities and a highlight on the research activities underway in our Implementation Co-Evaluation of Neami National delivered services in Head to Health and the Urgent Mental Health Care Centre.The symposium's online hybrid experience will be equally as powerful as being in the room with us --try it out.The ALIVE National Co-DirectorsProfessor Victoria J Palmer A/Professor Michelle Banfield Professor Sandra Eades (AO)

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10Big news for this update is the release of our Phase 1 Consensus Statement – the Short Horizon 2023 Implementation Actions. We are really excited, as this represents bringing together not only significant lived-experience work within ALIVE National over 2022, but work completed in 2020 for the Centre bid, and priorities gathered in 2017 in separate research activities.Hundreds of people with lived experience of mental ill-health and/or of being a carer/family kinship group member nationwide have contributed their expertise across forums, surveys and massive co-design to identify the issues and implementation actions brought together in the Consensus Statement. As a self-confessed lived-experience priorities nerd, reading the Consensus Statement felt like settling in with a warm, familiar blanket.Read the Consensus Statement here: https://midd.me/XF2CMajor issues such as genuine embedded lived-experience research, holistic care, and the accessibility of services are enduring themes over more than a decade of work.This is both good and discouraging: the consistency demonstrates the importance of these areas for a broad range of people from different networks; however, their persistence over time also suggests we are not making enough progress.The Phase 1 Consensus Statement provides solid direction for research and implementation activities in the ALIVE National Centre. You can see in our coverage in the research activities diagram that there are areas where we have started work that aligns with these priorities.We encourage you to share widely. Most of all we encourage our research sectors, funders and government to read the areas for implementation and reflect carefully on where and how they can respond.Written by Michelle Banfield, The ALIVE National Centre's Co-Director and Lived-Experience Lead

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Highlight on Research – NeamiPhase 1 of the Implementation Co-Evaluation is progressing now that the year is in full swing after the New Year Break.Key meetings in 2023 have focused on discussion about methods that will be used in the Co-Evaluation. The team has discussed qualitative interviewing and how a lived experience perspective can be integrated into a research role.These discussions have been facilitated by our collaborator Mark Loughhead at University of South Australia who is an independent mentor available to discuss research needs.Anoverview and example of emotional CPR was facilitated by Josh Moorhouse and Mark Loughhead as part of the conversations about methodsTo date we’ve met monthly to map the implementation journey with decision makers, governance representatives, clinical staff, and peer and wellbeing staff. We’re using co-designmethods in these conversations and noticing the touch points people are sharing related to implementation areas. This is being undertaken online and facilitated by ALIVE National researchers.The NoMAD survey is also being used in the study to see what can be learned about implementation across stakeholder groups. Normalisation MeAsure Development questionnaire (NoMAD) is a set of 23 survey items. One round of the survey was distributed to staff and decision makers to provide an understanding of how the implementation process currently stands from the perspectives of stakeholders Written by Matthew Lewis, Research Fellow Priority Populations, Longer13

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14This data will be used to inform the design of Phase 2 of the co-evaluation, the survey will be circulated again at a later point in the study.Governance interviews have been commenced with service managers, and chairs and co-chairs of the governance committees at each service. Engagement meetings continue for local site ethics and protocols with Aboriginal and Torres Strait Islander workforces and organisations.Past service guests are being interviewed by phone about experiences and service components. The guests have consented to being offered opportunities to participate in research through their engagement with the Head to Health services and are being invited through Neami to be involved.Site visits continue alongside telephone introductions and service mapping.The eco-mapping is ongoing and will build a picture of the mental health landscape surrounding each of the 5 services and where possible understand the way services are interlinked or not. This will indicate further areas for engagement and the development of implementation strategies to support the embedding of the services within local contexts. Phil Orcher, the ALIVE National Aboriginal Co-Design lead has been meeting with Aboriginal and Torres Strait Islander staff and community-based stakeholders to develop relationships and links that will inform the Phase 2 work with First Nations Stakeholders.Implementation Co-EvaluationHealthier Lives The ALIVE National Centre

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152023 FaPMI Survey2023 ANNUAL Lived-Experience Priorities Survey – A focus on Children and Families (FaPMI)Chief Investigator Darryl Maybery from the National Centre's partner Monash University Department of Rural Health and the PRATO Internationalteam is leading the second National Lived-Experience Priorities survey in collaboration with the ALIVE National Centre.The PRATO International Collaborative is focused on knowledge generation to improve the lives of children, parents and families where the parent has a mental health challenges.This survey will help to set priorities for mental health research with children, parents and families where a parent/s live with mental ill-health ill. It will inform health and social care models for service and how to measure these.We’d love to hear from you if you are a:• family members (16+ year of age) of a parent/s with lived experience• parent/s with lived experience• partners of an individual with lived experienceThe priorities that are established will create the foundations of our children and families pathway within the co-design of the National Roadmap for Mental Health Research Translation. Participation is anonymous but you can decide to share your details to opt-in for prioritization with us online using a Digital Whiteboard for co-design using emotion mapping. This survey will close on 10 March. Please click on the link to the survey here:https://go.unimelb.edu.au/e4qe

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16shame or stigma about mental health and wellbeing issues.WellMob is easy to navigate. The resources have been grouped under six broad topics: Mind, Body, Our Mob, Culture, Keeping Safe, and Healing. Each of these main topics link to several sub-topics. In three clicks it is possible to find culturally appropriate resources without having to search the web. WellMob also hosts resourcessupporting self-care for workers.There are over 30 Training Resources for health and wellbeing workers to strengthen cultural understanding and safety in practice. This may be especially useful for non-Indigenous staff.The WellMob website is continuously updated as new resources are identified.Sign up for the digital newsletterand stay up to date about the most recent resources.Looking for culturally safe resources to use in your work with First Nations people?WellMob is a digital library of over 260 mental health and wellbeing resources developed by and for First Nations Australians including websites, apps, videos, fact sheets, podcasts, pdfs, and social media.The landing page hosts a video to introduce the website and shows how best to search for a specific resource. There are also videos of five practitioners talking about how they use WellMob.WellMob takes a holistic strength-based approach around Indigenous wellbeing. The resources provide information, stories of lived experience, promote hope, and break downIntroducing WellMob ResourceThis article is authorised by Dr Mim Weber, Senior Workforce Development Officer at WellMob, University Centre for Rural Health Lismore

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17i-LEARN Learning Studioi-LEARN: A Studio in Three Parts – Module 1 of 3i-LEARN is a three-part virtual learning studio that introduces people with an interest in Integrated Lived-Experience Applied Research Nationally to practices, processes and the implementation of a framework to support mental health translation research. Module 2 and 3 will be held in 2023. There were 39 attendees for Module 1 in December 2023."100% of my expectations was met and left me with a lot to ponder (in a good, thought-provoking way)."- i-LEARN participant -"I was so happy to see the Indigenous presenters talk about their inclusion of peer work, lived-experience work and evaluation in their projects as there is so much to learn from this space."- i-LEARN participant -

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18The Bridging the Gap between Physical and Mental Illness in Community Pharmacy (PharMIbridge) Randomised Control Trial (RCT) was a collaboration between Griffith University, The University of Sydney, the Pharmacy Guild of Australia and the Pharmaceutical Society of Australia. The project was aimed at enhancing the way community pharmacists support people living with Severe and Persistent Mental Ill-health (SPMI).Watch the video below that provides overview on why PharMIbridge worked from the perspective of one of the consumer mentors.https://go.unimelb.edu.au/9e6sPharMIbridge Study-Completed"It was interesting because when pharmacists talked with people about their goals, medication was not necessarily at the forefront of what they were saying. They wanted help with social goals, they wanted to connect with families, they wanted to ease their social isolation and they did want to engage in physical activity.""The little things that made Pharmibridge a success—showing hospitality to people, welcoming them in, providing that safe space, remembering people's names and showing respect."

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19The ALIVE National Centre's AnDesert/Walpirit woman and Chance Bonney-Dixon Yanyula/Garrawa person on Day One, the Men's Health Program from Flinders University Rural and Remote Health, Yarnham Co-Designing Social and Well-Being Stepped Care for and with Young People in North East Arnhem by Ollie Black, and the Lived Experience Network NT (Peer Program) by Noelene Armstrong and Noemi Tari-Keresztes.There is also an additional partnership event with the Big Anxiety Research Centre on Day Three. Register for the event via our program flyer at: https://midd.me/J7fUJoin us on 30-31 March 2023, for the second annual hybrid symposium of the ALIVE National Centre in Larrakia Country (Darwin, Top End NT).We are honoured that Joe Williams will open the symposium with his talk “Nurturing the Enemy Within” with some amazing local community-led programs to be shared. Thanks to our new partners in the Centre - Flinders University Rural and Remote Health Discipline for hosting us on Larrakia country with cultural advisor Mr Richard Fejo set to welcome us to country.We will hear some local models including Suicide Story 'Our Story' 'Our Way' by Dorothea Wesley Lajamanu Tanami

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20"A TERRAIN" a geographic area, a piece of land. Or, the physical features of a type of land and what that land is made from...nual Symposium 2023On Day Three we have a special in-person partnership event with the Big Anxiety Research Centre called Uti Kulintjaku, led by Aboriginal Ngangkarihealers and artists, focuses on mental health literacy from both Western and Aboriginal perspectives.The team has partnered with Big Anxiety and fEEL to create two virtual reality works, including Waumananyi: The Song on the Wind, which will be presented at The ALIVE National Centre for local Larrakia-based attendees (venue details TBC).This is an in-person event. Venue details to be confirmed and registration for local Larrakia based attendees only.Session 1: For general community leaders and service providers (2.00pm -3.30pm)Session 2: For community and partner organisations(3.30pm - 4.30pm)Click here to register:https://www.eventbrite.com.au/e/475110336807

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Highlight on Research – eCPRThe Neami Head to Health Implementation Co-Evaluation Lived Experience Research Collective (LExRC) team learned about a Lived Experience (LE) model called Emotional CPR (eCPR) –explained Box 1 for interviewing.Co-led by me (Josh Moorhouse) and Mark Loughhead, over 90 minutes we covered ways to share our feelings in non-solution-oriented ways, with each other, and as research interviewees. We began with a check-in activity which invited us to share “if I were the weather right now, what would I be?”Written by Josh Moorhouse, Lived-Experience and Co-Design Researcher,Box 1. eCPRDeveloped by peers with lived experience in emotional distress, crisis, and recovery., eCPR has been championed by the National Empowerment Centre (NEC, US) to support researchers to “connect through feelings first. The premise is to respect each other as equally human, enabling us to be together without fixing, judging, or imposing our beliefs, allowing us to explore the unknown together, in the present moment, releasing our power to create new voice, new purpose, and new hope.” (NEC Pg. 3). eCPR is described in Table 1. Table 1 Encourage DiscourageCurrent Approaches ->Assessments, formulation, referrals.Sharing our own feelings in response to a person in crisis for heart-to-heart connection.Emotional CPR ->Sharing our own feelings in response to a person in crisis for heart-to-heart connection.Assessments, formulation, referral.21

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22The ALIVE National CentreAfter naming some cloudiness and electric-lightning-buzzing in the group, some foundational concepts were introduced which included relational safety, social-political perspectives on trauma, cultural empathy, intersectionality, and the importance of holding space for nonbinary, mad, and neurodivergent ways of being.Following this, three nonlinear dimensions of eCPR were introduced as connection, empowerment, and revitalization. An eCPR understanding of crisis and distress was also described as, “[We] often become extremely sensitive regarding [our] safety and self-preservation, [We] then develop creative ways to protect [ourselves] that may look very odd and even ‘crazy’ to onlookers…these seemingly unusual behaviors are protective and adaptive ‘mechanisms,’ (NEC pg. 4).Realplays are an alternative to the more commonplace ‘roleplays,’ and they involve an experience which is has happened for a person in the past or currently. It’s not a made-up story or an acted-out representation of what we think distressed experiences look like, such as in roleplays.For this, we focused on the first three intentions of eCPR which we summarized as:• connect to your feelings first,• hold space for your first feelings, and then,• notice your broader feelings; share your broader feelings, and your thoughts about your own feelings.

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Highlight on Research – eCPRI (Josh) then described two ways to listen, the seven intentions of eCPR, and five ways to have a conversation without asking questions or telling a story (NEC pg. 20). Next, we (Josh and Mark) engaged in a heart-to-heart connection through a Realplay demonstration using the first three intentions of eCPR which focus on connection.23Other participants, called resonators, turned their video screens off to watch and listen, and through suspending beliefs and judgements or desires to label, they instead wrote an emotion or describd an image about what they were feeling or visualizing in the chat box. At the end, resonators turned screens back on and shared more with each other.Image by Josh MoorhouseTo check-out, we checked-in with our feelings using an emotions wheel, and by each naming one thing we could do for ourselves when we get a chance to do so. Our next steps will be to explore the question of “How might we shape our Lived Experience Practice in ways which build upon the intentions of Emotional CPR?” I’m feeling hopeful for ways we could do things differently by seeking mutual connection during research if distressing things are expressed.

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24Network UpdatesNext Generation Researcher Network & Lived Experience Research CollectiveDon't miss the 2023 annual e-networking event on March 29, where members of the Next Generation Researcher Network and the Lived-Experience Research Collective will meet, discuss common interests, and plan collaborations for the upcoming year. It's a great opportunity to connect with others in the field.During the event we will be holding a "Pitchathon" which will be short 3minute grant pitches from members.The best two pitches will be matched with an ALIVE chief investigator mentor to assist with development of an application for the 2023 Seed Funding Grant round.We are also looking for posters that will be shared on the digital platform at the annual symposium, three $200 gift vouchers are up for grabs.For more information and to register click here: https://midd.me/eLWN or email alive-hub@unimelb.edu.au to register for the pitchathonor to submit a poster by 10 March.

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25Network UpdatesCo-Design Living Labs NetworkWe recently welcomed our three successful applicants for The 2023 Alex McLeod Co-Designer Training Award! This award provides yearly support for Co-Design Living Labs members to be appointed to a training position for a year. The aim is to foster co-design skills development, and grow the capabilities within the membership base of the Co-Design Living Labs Network.The training program will involve 40 weeks of structured learning divided into 4 learning modules. Co-designers will have the opportunity to gather more experience about co-designing for service improvement and systems change and to become engaged in leading co-design research, convene and facilitate groups, and research activities, and learn about the operations of the ALIVE National Centre Co-Design Living Labs Network. Welcome to our three successful trainees and colleagues!Some of our Co-Design Living Labs members at the Victorian Collaborative Centre Creative WorkshopRose ButinarJosie BriandGregor McDonald

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26Network UpdatesThis month we are featuring an introduction to Josie. Josie brings her background in nursing to the role as well as lived expertise of mental ill health and being a carer. Josie lives in Queensland with her family and joined the Co-Design Living Labs Network in September 2021. Josie shares with us her thoughts about what she is looking forward to in starting the role.We look forward to working with Josie and all the co-designer trainees this year!Congratulations to Jennifer Bibb on her recent appointment as Lead of the Co-Design Living Labs network! This is a tremendous achievement and a testament to her expertise in co-designand her leadership skills.As Lead, Jennifer will be responsible for overseeing the network's activities, including developing and implementing co-designprojects, fostering collaborations, and promoting the network's mission and goals.We have no doubt that Jennifer will excel in this role, and we look forward to seeing the innovative and impactful work that she and the Co-Design Living Labs network will achieve under her leadership."I am excited to learn about co-design and to develop strategies and tools that will enable me to make valuable contributions towards the future of mental health research across our country. This will be very important for me in terms of my personal and professional growth."- Josie Briand -

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Digital Translation Platform27The ALIVE National Centre's digital platform has recently been updated! Check it out at:www.alivenetwork.com.auA reminder that the Next Generation Researcher Network and Lived-Experience Research Collective Forums are still active on the platform.The forum is a space that you log into and discuss research topics and explore issues related to mental health research and lived-experience research roles or carer/family roles.We are looking forward to dialogue and conversations about lived-experience research topics, skills, knowledge sharing, research and implementation for improving mental health care across Australia.The guide on how to use the forum (once you have your login details) is available here: https://go.unimelb.edu.au/yu6shttps://go.unimelb.edu.au/bu6sSee more about the suggested forum topic here:https://go.unimelb.edu.au/wu6shttps://go.unimelb.edu.au/cu6sIf you don't have access to these forums and would like to contribute your thoughts –please contact the HUB team at: alive-hub@unimelb.edu.auComing in 2023 – The National Centre's Virtual Translation SuiteWe are planning to have a virtual translation suite on the platform where we will host virtual learning studio modules like i-LEARN and other training workshops and also hosting a searchable priorities database. Stay tuned!

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Ready, Set, Translate29In February 2023 we are kickstarting the Ready, Set, Translate - Virtual Café Series again, with our special international guest Victor Montori speaking on the topic Careful and Kind Care: Patient Revolution.This talk will be hosted by the Co-Design Living Labs Network on Tuesday 28 February 2023.Read more information and click here to register!https://go.unimelb.edu.au/4wmeThere will not be a virtual café series in March 2023 as we will be having our Two-Day Annual Symposium. The virtual café series will resume in April 2023 with more exciting presentations to come!See the 2023 calendar and watch previous recordings here:https://go.unimelb.edu.au/fc6s

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30Welcome to Gina Arena who has started a new role as a Data Research Fellow working closely with David Preen, our Lead Data and Linkage.Dr Gina Arena is an epidemiologist with a background in lecturing and research for the past 20 years.Gina’s current position as a Research Fellow in the School of Population and Global Health and lecturer in the Medical School at the University of Western Australia embraces a wide range of public health topics including mental health. She has published in injury epidemiology, oral health, non-communicable disease and higher education.She has held roles on the Injury Control, the WA Chapter of the Australasian College of Road Safety and the Medical Program Curriculum. Gina supervises several medical students and postdoctoral students.It is apparent that Gina harboured a natural inclination toward data analysis, even in her early years, as evidenced by her tendency to meticulously scrutinise the white pages in order to uncover obscure telephone patterns and frequencies of surnames. This innate curiosity and drive eventually led her to pursue various academic degrees, several of which featured components of mathematics and statistics. Today her passion for data remains, as she continues to work with diverse datasets and enjoys the challenge of uncovering hidden trends and insights.Outside of her professional pursuits, Gina balances her life with her family, exercising and trying to attain best mum-taxi-driver award for her teenaged sons.People Across ALIVE National

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People Across ALIVE National31Meet The ALIVE National Centre's Research Fellow and Associates!Rebecca MoranLived-Experience Engagement ResearcherALIVE National's Creative Engagement ProgramIn partnership with Big Anxiety Research Centre UNSWRebecca.moran@unsw.edu.auMatthew LewisHealthy Hearts Study & Neami Co-Evaluation LeadStream B Longer Healthier LivesUniversity of MelbourneMatthew.lewis@unimelb.edu.auLaura HemmingLived-Experience ResearcherLived-Experience Research Collective & ACACIA Program | Lived-Experience Research UnitANULaura.hemming@anu.edu.auMonika RanitiResearch Fellow & Program CoordinationPrevention Across the Life CourseMurdoch Children's Research InstituteMonika.raniti@mcri.edu.auJennifer BibbCo-Design Living Labs Network Research LeadUniversity of MelbourneBibb.jennifer@unimelb.edu.au

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32Justin ChapmanResearch Fellow & Program CoordinationMental Health Care at ScaleImpact Evaluation of the Co-Designed RoadmapGriffith UniversityJustin.chapman@griffith.edu.auJoshua MoorhouseLived-Experience and Co-Design ResearcherMental Health Care at ScaleEcosystems Mapping Lead | Co-Design NetworkUniversity of MelbourneJosh.moorhouse@unimelb.edu.auPhilip OrcherAboriginal and Torres Strait Islander People Co-Design Pathways LeadStream A Priority PopulationsUniversity of MelbournePhillip.orcher@unimelb.edu.auWendy HermestonSenior Program Lead Co-Design PathwaysStream A Priority Populations Aboriginal and Torres Strait Islander PeopleUniversity of MelbourneWendy.hermeston@unimelb.edu.auGina ArenaResearch FellowData in ALIVE NationalUniversity of Wester AustraliaGina.arena@uwa.edu.auIf you want to contact them on specific projects, here they are and what research programs or networks they are connected to.

Community Update Jan Feb 2023

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