Community Update May/June 2022 : simplebooklet.com

Welcome[Featured in the front cover image from left to right: Phillip Orcher, Matthew Lewis, JoshMoorhouse, Victoria Palmer, Jennifer Bibb, Michelle Banﬁeld, Caroline Johnson, EliseDettmann, Glenn Papworth, Caroline Tjung, Dana Jazayeri.]Welcome to our new look May and June2022 bi-monthly Community Update. TheALIVE National Centre Update will now bereleased every second month. All thenews, events, stories, reviews of papersand podcasts, and relevant Centre relatednetwork information can be found on theNational Digital Translation Platformwww.alivenetwork.com.au noticeboards.May 2022 saw Australia welcome in a newLabor Federal government. A signiﬁcantcommitment was made to the UluruStatement from the Heart by PrimeMinister Anthony Albanese in theacceptance speech. It was my pleasure toalso accept on behalf of the ALIVENational Centre and its members, theinvitation to commit to the UluruStatement in all research and translationactivities and play our part in healing thenation at the National Sorry Day May 26thVirtual Translation Cafe Series. Thank youto Muruwori and Gumbayniggr co-designresearcher Phillip Orcher for reading theStatement and invitation.You will see within this issue ourAboriginal and Torres Strait IslanderAcknowledgement of Country illustratedby Kamilaroi and Gamilaraay artist DennisGolding brings the theme of Healing from the Ground forward. In other activities Phillip Orcher also attendedYuat Nyoongar man and InvestigatorMichael Wright’s Aboriginal EldersConference in Perth at the end of May.This two-day event brought Aboriginaland Torres Strait Islander communityElders together to share social andemotional well-being priorities. A VirtualMeet and Greet was held in May with 48Lived-Experience Research Collectivemembers.June now ends and, in this issue, we’reproud to release the ALIVE NationalCentre’s Pocket Map for Mental HealthResearch Translation! We thank ourexperts in attendance at this month’sIndependent Advisory Board for theirfeedback and we note that this is onlyone part of the co-design work that willbe undertaken. There will be a speciﬁcAboriginal and Torres Strait Islanderco-designed pathway undertaken. ThePocket Map provides a quick guide toareas that people with lived-experience ofongoing distress and mental ill-health(consumers and consumer-carers), andcarers/family/kinship group members feelstrongly about across: mental health research, mental health careimprovement and the socialdeterminants causing most impact.These areas will be the focus of ourresearch implementation activities in2022-23 and an accompanyingImplementation Plan for the NationalRoadmap will be released in July 2022.I look forward to meeting withstakeholders, government agencies,community members and researchersabout the mental health researchtranslation goals of the National Centreand how we might collaborate for itsimplementation and the renewal of themental health care ecosystem. We alsolook forward to sharing the results of theNational Lived-Experience PrioritiesSurvey.

Director Victoria Palmer,The ALIVE National CentreProfessor Primary Mental Health Care& Co-DesignThe University of Melbourne

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RoadmapThanks to everyone who is working to synthesise and implement what we heard from prioritisation into the ALIVE National Centre Roadmap for Mental Health Research Translation. You will ﬁnd the Pocket Map within which provides a guide to the areas in mental health research, improvements to mental health care delivery and experiences, and the impacts of social determinants on distress and mental ill-health that we heard consumers, consumer-carers and carers felt most strongly about. The next step will be our Aboriginal and Torres Strait Islander co-design pathways and the completion of the Implementation Plan for the national roadmap. In the plan we will share the touch points for the Phase 1 Consensus Statement (all based on the co-design prioritisation), implementation strategies related to our research programs and targets to guide the evaluation and measurement of impacts. If you have not heard the word touch points before, the term refers to the key moments that are good or bad (positive or negative) that shape people’s overall experience. We look for the negative touch points in experience co-design to guide the areas for change. Touch points enable us to design and implement experience-based systems. In the Massive Online Co-Design Project, we identiﬁed touch points using emotion mapping which we provide a brief explanation for here.About the emotion mapping to identify touch points for ALIVE National RoadmapOver 300 priorities previously shared by consumers and carers with the ANU ACACIA (n=70; 2017) research group and the Co-Design Living Labs program (n=115; 2020) were reviewed and synthesised into 52 priorities. The priorities were grouped into three areas in focus for the ALIVE National Centre: mental health research topics, improvements to mental health care and experiences and, the impacts of social determinants on mental ill-health. The 52 priorities were mapped to a digital whiteboard which had an image of a compass with North, South, East and West positioned on it to organise material. People opted into the Massive Online Co-Design Project on completion of the Lived-Experience Priorities Survey in February 2022 run by ANU and led by Lived-Experience Research Lead, A/Prof Michelle Banﬁeld. Those who opted in were provided with a unique Mural board link and a link to a short video explainer of how to undertake the online prioritisation. People were asked to read around the compass of priorities and reﬂect on how they felt about each priority. If they felt strongly (even if this was positive or negative feelings) people were asked to move bright orange post-it notes to that priority and, where they could, to share the feeling/s the priority invoked. Where feelings were uncertain or there were mixed feelings people were asked to move the paler post-it notes to that priority, and to share the feeling/s the priority invoked on the post-it note. Each individual co-designer board was reviewed by two researchers to identify the strong feelings (including positive or negative) and the mixed-uncertain feelings.

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National Centre Pocket Map>>These were mapped into excel spreadsheets using colour codes for strong feelings and mixed uncertain feelings across the broad three areas in focus for the National Centre. The strong positive and negative feelings were explored and the touch points (that is, key moments good and bad that were shared in the feelings) were identiﬁed. The strong feelings and touch points were used to establish the consensus areas for setting out the National Centre’s mental health research translation goals.These goals can be seen in the pocket map within this issue. The touch points will be presented in greater detail within the National Centre’s implementation plan. Further priorities are expected to be included in 2023 from the 2022 Lived-Experience Priorities Survey and the priorities gathered with children and younger people in 2022-23. There will be a speciﬁc Aboriginal and Torres Strait Islander co-designed implementation and translation pathway formed over 2022.Thank you to all of the Co-Designers who took part and we look forward to the Massive Online Co-Design Project for 2023!Welcome to our new look May and June 2022 bi-monthly Community Update. The ALIVE National Centre Update will now be released every second month. All the news, events, stories, reviews of papers and podcasts, and relevant Centre related network information can be found on the National Digital Translation Platform www.alivenetwork.com.au noticeboards. May 2022 saw Australia welcome in a new Labor Federal government. A signiﬁcant commitment was made to the Uluru Statement from the Heart by Prime Minister Anthony Albanese in the acceptance speech. It was my pleasure to also accept on behalf of the ALIVE National Centre and its members, the invitation to commit to the Uluru Statement in all research and translation activities and play our part in healing the nation at the National Sorry Day May 26th Virtual Translation Cafe Series. Thank you to Muruwori and Gumbayniggr co-design researcher Phillip Orcher for reading the Statement and invitation. You will see within this issue our Aboriginal and Torres Strait Islander Acknowledgement of Country illustrated by Kamilaroi and Gamilaraay artist Dennis Golding brings the theme of Healing from the Ground forward. In other activities Phillip Orcher also attended Yuat Nyoongar man and Investigator Michael Wright’s Aboriginal Elders Conference in Perth at the end of May. This two-day event brought Aboriginal and Torres Strait Islander community Elders together to share social and emotional well-being priorities. A Virtual Meet and Greet was held in May with 48 Lived-Experience Research Collective members. June now ends and, in this issue, we’re proud to release the ALIVE National Centre’s Pocket Map for Mental Health Research Translation! We thank our experts in attendance at this month’s Independent Advisory Board for their feedback and we note that this is only one part of the co-design work that will be undertaken. There will be a speciﬁc Aboriginal and Torres Strait Islander co-designed pathway undertaken. The Pocket Map provides a quick guide to areas that people with lived-experience of ongoing distress and mental ill-health (consumers and consumer-carers), and carers/family/kinship group members feel strongly about across: mental health research, mental health care improvement and the social determinants causing most impact. These areas will be the focus of our research implementation activities in 2022-23 and an accompanying Implementation Plan for the National Roadmap will be released in July 2022.I look forward to meeting with stakeholders, government agencies, community members and researchers about the mental health research translation goals of the National Centre and how we might collaborate for its implementation and the renewal of the mental health care ecosystem. We also look forward to sharing the results of the National Lived-Experience Priorities Survey.Director Victoria Palmer,The ALIVE National CentreProfessor Primary Mental Health Care& Co-Design The University of Melbourne

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Prevention Across the Life CourseThe Prevention Across the Life Course program is working to further conceptualise the framework for the prevention program research activities. The group is using the touchpoint consensus statements to work towards identiﬁed priorities using a “dual continuum approach” focusing on promotion and prevention. This will focus on a system wide approach as opposed to an individual one. A core priority setting for people was around School based activities.Alyssa Morse and Leanne Constable will be attending this research program moving forward as the Lived-Experience Lead Group representatives. Alyssa Morse is a postdoctoral research fellow at Australian National University in the ﬁeld of mental health and population health. Leanne Constable is completing her Master of Public Health at the Murdoch Children’s research institute.Stream A - Priority PopulationsThe Centre has had its special acknowledgement of country created by First Nations artist Dennis Golding. This piece highlights the importance of carrying the vision of healing forward across all of the ALIVE National Centre activities and the idea of healing from the ground ﬁts with our participatory vision, ground-up community-led approaches.Stream B - Longer, Healthier Lives by Meeting Unmet Physical Health NeedsThe Stream B research program is also working on relating program aims and objectives into short, medium and long-term goals. One of the longer-term goals for this research program is to re-imagine primary and community care through the implementation of models for physical health care that see all people who live with ongoing distress and serious mental ill-health receive excellent physical health care that results in an experience that is the equivalent of other peoples. This means understanding what excellent physical health means for people with lived-experience and for carers, family and community members, it also means thinking about how we know if experiences are good ones in the primary care and community settings. The Stream B research group will now move to the identiﬁcation of models of care, innovations and approaches that are relevant to the identiﬁed Phase 1 Touch Points Consensus Statement as the next implementation step. There will be a particular focus on holistic models of care and innovations that can address the social determinants impacts on mental ill-health as reﬂected in the Pocket Map.In addition to other regular lived experience attendees, Debra Hamilton will be attending this program as the lived-experience research collective lead group representative. Deb is a PhD student at the University of Sydney in the discipline of Health Science (Occupational Therapy).

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WaterholesHuman andAnimal trail lines,markings on landFootstepsGatherings/Meeting Place/CampsiteHealing From the GroundHealing from the ground explores the connections between land, people and wellbeing. First Nations Artist Dennis Golding has produced a digital artwork that informs how Aboriginal storytelling is shared from markings on Country, and with Country. The artist uses pigments of different ochre tones of browns, greys and whites to reference the deep layers of land. The artist speaks about being connected to land as a healing process, culturally, spiritually and emotionally. Symbols of meeting places, waterholes trail lines form the pathways in which our people use for greater health, wellbeing and understanding of culture.Other elements include footsteps which are human markings on land in which the body and mind is connecting to earth - to our Country.

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Next Generation Researcher Network (NGRN)NGRN are in the process of planning a virtual funding panel event for August. This event will provide an opportunity for early and mid-career researchers to ask questions from researchers who have been successful in obtaining grants in the past and gain insights into the realities of ECR career progression. In this session ECRs and all attendees will be supported to build the foundations for strategy and tips for grant applications in mental health research funding environment. Members of the NGRN and LE Research Collective will be invited to attend once the date is conﬁrmed. Stay tuned to our noticeboard for more information to come.Implementation and Translation Network (ITN) The ITN is in the process of formalising a model with the hub for how and when they will offer implementation and translation support to other ALIVE National Centre groups throughout the life of their projects. Implementation briefs and /or implementation panels will be available through the network to provide advice and enable better translation of projects into practice. To join the ITN network click here: https://itn.alivenetwork.com.au Growing the Next Gen Researcher FundGot an idea? Need some pilot funds to get data underway for your next grant or fellowship proposal? Or, want to undertake co-design for a grant or pilot study? There is an opportunity for four NGRN members (including researcher with lived-experience or carer/family/kinship group researchers) to receive seed funding as part of the National Centre's capacity building initiatives. To support the growth of the ALIVE National Centre NGRN, and to support the career development of its members, we have established the ALIVE seed funding grant scheme.Martina McGrath will be attending the NGRN colead meeting moving forward as the Lived-Experience Lead Group representative. Martina is a PhD student at The University of Melbourne in the discipline of Mental Health.Network Updates

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Community Exchange ProgramPlanning for the community Exchange Program is also underway. The Exchange Program is part of our overall in-residency mod which intends to provide a two-way learning opportunity for ALIVE network members to be placed for a short or medium-term with service provider members of the ITN. The purpose is for researchers to gain on the ground experience of the service provider sector, and knowledge of how research is conducted and used in practice or policy settings. These in-residence opportunities are also available within policy settings too.Patricia Cullen will be attending this network meeting moving forward as the Lived-Experience Lead Group representative. Patricia is a postdoctoral research fellow at the University of New South Whales in the discipline of Public Health and Psychology. Co-Design Living LabsIn May, members contributed to co-design with our partner organisation NEAMI National. We have been exploring what is important to include in an evaluation of the national Head to Health service. We look forward to continuing to support this evaluation as it progresses and thank members for contributing to this important work. This was a great opportunity to reﬂect on the program and its achievements since its inception in 2017. The network also hosted the June Ready, Set, Translate – Virtual Café Series with social enterprise Wicked Labs, detailed below. SANE Australia Digital Service ModelIn June, SANE launched their new digital service model: https://www.sane.org/referral.The service connects participants who have complex mental health issues, or those on waiting lists, with support. The model was co-designed by people with complex mental health needs, through the partnership between the ALIVE Co-design Living Labs Network and SANE Australia. Codesign conveners Jennifer Bibb, Phillip Orcher and Victoria Palmer conducted 18 codesign sessions with 62 people. The codesign process involved asking co-designers a range of questions about their visions for the mental health system as well as technology use. Co-designers then worked together to prioritise the values and concepts they hoped to underpin the service. From this, a conceptual design was made that was used to inform future stages. Some of the priorities raised were a model that is: culturally safe, trauma informed, recovery oriented, that collects personals stories ahead and is clear to navigate. The service is now being piloted Australia-wide through select primary health networks (PHNs). For more information about the process and ﬁndings visit the ALIVE website: https://alivenetwork.com.au/sane-launches-a-new-digital-service-model-for-greater-reach/.A big thank you to the ALIVE National co-designers and community partners involved!

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48 people attended the ﬁrst Lived-Experience Research Collective Virtual Meet and Greet in May. We will have the next Collective meeting in early August. A database is currently in development to be able to match researchers with skills and interests in common with members within the Centre’s activities. We are also looking for four new people to join our Lived-Experience Research Collective lead group:• One Lived-Experience Lead Co-Chair• Three Lived-Experience Lead Group Members – one currently undertaking a PhD, an early career and mid-career representative.For more information see the noticeboard: https://alivenetwork.com.au/invitation-for-expressions-of-interest/We are working towards the embedded Lived-Experience Research Collective Model. Lived-Experience Co-Leads are attending research programs and network meetings to ensure a Lived-Experience perspective is embedded across Centre activities. The diagram shows how all the research programs are connected in this embedded new Collective model.

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In our recent virtual translation series, we heard from Emily Humphreys (Chief Executive Ofﬁcer) and Dr Sharon Zivkovic (Chief Innovation Ofﬁcer) from Wicked Lab – a social enterprise with a complexity-based approach to systems change, and who are ALIVE collective partners supporting our ecosystem mapping.We began with acknowledgements of country, and Victoria Palmer announced that ALIVE accepts the invitation of the Uluru Statement from the Heart, which was then read by Phil Orcher. First, Sharon guided us through different types of problems and solutions. Sharon shared that whilst simple problems need best-practice linear solutions, (logic models and standardized procedures); complicated problems need good-practice guides such as blueprints. We then explored the non-linearity, interconnectivity, and interdependence of complex problems to prepare us for understanding wicked problems as a type of complex problem that interacts with policy. Hearing “we must address variety with variety,” Sharon then explained how Applied Complexity Practices should aim to understand a situation through social-contextual enquiry rather than implementing pre-determined solutions and seek to create the enabling conditions through which solutions might emerge as a natural consequence of many interactions within and between many diverse parts. This was described through a process known as Phase Transitions, which support non-linear, whole-of-system movements from our current state of reality to new (and hopefully more desired) futures.Sharon then shared some theories and practices which focus on building conditions for phase transitions such as Complex Adaptive Systems (CAS), Social Entrepreneurship, Systemic innovation (Si), Systemic investment, Collective Impact, and Complex System Leadership Theories such as Leadership of Emergence, Generative Leadership, Tools for Managing a Complex Context, and Complexity Leadership Theory. Building on this, Emily then explained how the Wicked Lab Framework uses a (CAS) and (Si) approach to support Solution Ecosystems to undergo a phase transition using the Ecosystem Map and Transition Card features of the Wicked Lab Online Tool for Systemic Change. Solution Ecosystems can be understood as a complex adaptive system comprised of all the initiatives which are addressing different parts of a wicked problem, and all the organisations which a partnering on those initiatives. Ecosystem Maps enable the visualization of solution ecosystems, along with a Betweenness Centrality Metric (BCM), which is a mathematical equation from graph theory used to calculate the shortest number of paths to the greatest number of parts in a system. The BCM can help to determine which partners have the strongest capability to assist with information ﬂows. Transition Cards enable the assessment of a solution ecosystems suitability for phase transitions using 36 Characteristics for Changeability which are based upon the complex system leadership theories and Wicked Labs focus areas which are Create a Disequilibrium State, Amplify Action, Encourage Self-Organization, Stabilize Feedback, Enable Information Flows, and Strengthening the Interface between Government and Community-led Innovation.

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Conversation Touchpoints highlighted some general curiosities regarding power, privilege, and partnership.This afﬁrmed the importance of setting co-leadership and capability building as enabling conditions for systemic innovation in the context of mental health care at scale, along with the thoughtfulness required to ensure that critical Lived Experience perspectives are embedded throughout our applications of the Tool for Systemic Change.Written by Josh Moorhouse, Lived Experience Co Design Researcher – ALIVE National Centre for Mental Health Research Translation, Co-instigator in the partnership with Wicked Lab, and Co-lead in the Systemic Innovation work alongside Aboriginal Researcher, Phil Orcher. The event was co-hosted by the Co-design Living Labs Network (CLL), with support from CLL Co-lead, Gregor McDonald. The presentation can be viewed here https://www.youtube.com/watch?v=bEnJEVx8qmQ

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Sorry Day 2022Sorry Day was on the 26th of May 2022. We marked the occasion with our commitment to the Uluru Statement from the Heart https://ulurustatement.org/the-statement/ and acknowledge the ongoing trauma and need for focus on healing with the Stolen Generations.Wear It Purple Day 2022In support of young gender diverse or LGBTQ+ persons, we will be wearing purple on August 26th. For more information or to donate, visit: https://www.wearitpurple.org Ready, Set, Translate - Virtual Café Series #4 and #5In June we heard from Lisa Brophy, Catherine Brasier, Bridget Hamilton, and Carol Harvey on Community-based social interventions for people with severe mental illness: a systematic review and narrative synthesis of recent evidence.If you’ve missed it, ﬁnd out how to watch the recording here:https://alivenetwork.com.au/community-based-social-interventions-for-people-with-severe-mental-illness/In July we look forward to hearing from Grant Sara on Harnessing system-wide mental health data to support research and translation. Click here for more information on how to register:https://alivenetwork.com.au/harnessing-system-wide-mental-health-data-to-support-research-and-translation/Check out the 2022 Virtual Café Series calendar here:https://alivenetwork.com.au/ready-set-translate-the-alive-mental-health-research-translation-virtual-cafe-series/Events

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NGRN and Lived-Experience Research Collective ForumOur digital translation platform is a translational space that includes activities to help get people engaged. The Next Generation Researcher Network and Lived-Experience Research Collective forums are a place for discussion to take place amongst network members; each forum is unique to the membership group of the networks. Planned monthly forum topics have been put together based on collected data and will be kick started by ALIVE team members each month, for network engagement. In addition, members will be able to login and dialogue about existing posts, or start new post of interest, at any time. We hope to start some engaging conversations over the coming months and encourage all to get involved! We look forward to hearing from you.View forum topics here:https://livedexperience.alivenetwork.com.au/lived-experience-research-collective-forum-topics/https://nextgen.alivenetwork.com.au/next-gen-researcher-network-forum-topics/Start some engaging conversations on the forum here: https://livedexperience.alivenetwork.com.au/forum/https://nextgen.alivenetwork.com.au/forum/FORUM TOPICS // Next Gen Researcher Network2022Note: These forum topics will be kick started and engaged in each month but people will be able to log in and dialogue about any of them at any time by clicking on a post.MonthMayJuneJulyAugustSeptemberOctoberNovemberDecemberTopicsWorking in academia vs industryTips for obtaining research fundingUsing social media for your career (Twitter/LinkedIn etc)Imposter syndromeAccessing and sharing data setsEngaging politicians and working in governmentInnovative research methodsConsumer-led research

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Our writer-in-residence program has launched in June. The writer-in-residence program is a capacity building and career development initiative of the ALIVE National Centre for Mental Health Research Translation. This by invitation program sees writers appointed for 16 weeks to work with the ALIVE National Centre to develop their capacity for research translation activities, develop and hone public communication skills and support wider public and community engagement with mental health research, policy, and practice.Our ﬁrst appointment will be consumer consultant Rachel Tindall, who started on 20th June and is a member of the ALIVE Lived-Experience Research Collective.For more information about the program visit our website: https://alivenetwork.com.au/the-alive-national-writer-in-residence-program-is-now-live/ and to register your interest email Caroline at: ctjung@unimelb.edu.au.Rachel is a mental health nurse employed as the Program Implementation Manager at Barwon Health Mental Health Drugs and Alcohol Services. She has clinical, research, project management and senior management expertise and is a strong advocate for lived experience participation at all levels of mental health service reform, design and delivery.Writer-In-ResidenceTHE ALIVE NATIONALWRITER-IN-RESIDENCEPROGRAM

Community Update May/June 2022

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