Return to flip book view
Marsali Hancock and Elinela Perez LL.M, CIPP/E.TRANSPARENCY, CHOICE, AND PRIVACY
EMPOWERING PEOPLE WITH PRIVACY & PERSONALIZATIONOur mission is to improve health, education, and wellness by empowering people with privacy and personalization. We believe that new data paradigms, architecture, and technologies offer actionable data. It is possible for individuals and communities to find and aggregate, comprehensive data. New privacy-preserved networks bridge data silos and ensure compliance while also giving people data intelligence to make decisions that improve our health, education, and wellness outcomes.Attribution 4.0 InternationalEP3 FOUNDATION 2
“Hiding within those mounds of data isknowledge that could change the life of apatient, or change the world”- Atul Butte, UCSF.“Information is the oil of the 21st century,and analytics is the combustion engine.”- Peter Sondergaard, Gartner Research
PROMISE OF ANALYTICS“Big data is not about the data,”
-Gary King, Harvard University,making the point that while data isplentiful and easy to collect, the real value is in the analytics.
Stanford MediaX Distinguished Visiting ScholarChair, IEEE Standards for Child and Student Data governance Working Group and editorial advisor IEEE for policy newsletter.Chair, Adaptable Security, Nonprofit only security assessment and social platform designed to empower consumers and small nonprofit and businesses.MARSALI HANCOCKEP3 Foundation CEO & President Chair, Family, Adolescent, and Children Sub committee on Santa Clara County Behavioral Health Board.Commissioner with Global Information Infrastructure commission.Mhancock@EP3Foundation.org703.678.3848Info@EP3Foundation.org
PRIVACY-PRESERVED DATA LIQUIDITYPROTECTprivacy and confidentialityVERIFYidentity & roles across many networksLINK privacy-protected data at granular levelsSHAREinformation only when allowedENFORCE policies automaticallyAttribute data governance unleashes the value of the cloud to:
1-in-5 youth currently have or at some point will have a serious mental disorder. Over 75 % of mental disorders begin before the age of 25.Maria, a 12-year-old, is depressed and anxious over her school performance. She self-medicates. While intoxicated, she is sexually molested by older teens.1-in-4 teens contract a sexually transmitted disease in the U.S. every year.PROTECT PRIVACY & COORDINATE CARE1-in-4 teens contract a sexually transmitted disease every year. The U.S. has the highest rate of STD infection in the industrialized world.
HEALTHCARESUBSTANCE USE MENTAL HEALTH EDUCATIONHOW CAN WE OVERCOME DATA SILOS TO IMPROVE OUTCOMES?
The internet was designed for two-way, global communication in self-healing, decentralized networks. It was never designed for to be private or secure. The EP3 Foundation and our community of industry, policy and compliance leaders create the additional trust- protocols and credentials required to protect data and establish vendor-neutral, trusted networks. TRUST PROTOCOLS “The internet is a design philosophy and architecture expressed in a set of protocols..” - Vint CerfProtocols are the rules and standards that allow people to use the network and talk to each other.
The Hancock Privacy Pattern provides use-case frameworks to ethical data governance, standards and accreditations for data models that protect privacy, comply with laws, and improve our ability to make choices. The internet is a design philosophy and architecture expressed in protocols. It was not designed to be secure or private. The architecture was designed to keep two-way communication open without a centralized network, even during disasters. Protocols are the rules and standards that ensure we can connect, communicate, and participate. Information and content about our location, device, application, and behaviors are transmitted via data packets. The data we create while online is combined with the data created by others such as social networks, schools, banks, and governments. These data are shared (duplicated) and used by many types of organizations. How data is used and by whom have life-long implications.
UNLOCKDATA SILOSPOPULATION HEALTHIncrease patient and healthcare system rights and privacy. Public Data Improving the CommunityGive the right people the right information at the right time to improve health, safety, and education outcomes. Existing, legacy systems receive and exchange privacy-protected, actionable data. RESEARCHEmpower communities with decision intelligence. PUBLIC SAFETYImprove community outcomes.
EDUCATIONBetter use of and increased access to quality, privacy-protected, and comprehensive data. While Protecting Individual PrivacyACTIONABLEDATAEstablish open framework and trust models to unlock data silos and provide real-time, actionable information. Give the right people the right information at the right time to improve patient safety and health outcomes. EP3 Beta deployments provide new, open frameworks, data architectures, and technologies that support privacy preserving data exchange.PUBLIC HEALTHImprove core public health reporting, Meaningful Use, situation awareness and surveillance.EMERGENCY RESPONSEProvide first responders and clinicians access to lifesaving health information and personalized decision support, and contribute timely information back to public health systems.
EDUCATIONINDIVIDUALS PUBLIC INSTITUTIONSPAYERS PUBLIC HEALTHEDUCATION AND WORKFORCE RESEARCH INSTITUTIONS DEPLOYMENT PARTICIPANTS
LOCATION BEHAVIORNETWORKDEVICEAPPLICATIONProactiveandReactiveMeasures
oooo
○○○○○○○
oooo○○○○○○○○○○○
○○○○○○○○○○○○○○○○○○○○○○○○○○○○○○○○
○○○○○○○○○○○○○○
Trust BlockProcess
Future Proofed DataProtocols TRUST BLOCK
HEALTH, SAFETY, EDUCATION & PRIVACY NETWORKSTRUSTBLOCKCRITERIAENFORCEMENTCREDENTIALSRESOURCES
The TNAP aligns with the 21st Century Cures Act, andaddresses the ONC's requirements to provide third-party accreditation for healthcare stakeholders, including HINs, HIES, ACOS, Data Registers, Lab, Providers, Payers, Vendors,and Suppliers.Opportunities:● Enable interoperability● Support easy onboarding● Assure trusted environment where privacy and security requirements are maintainedWe set the rules that automate data governance andcomply with policies, licensing, privacy and cybersecurityrequirements.TRUSTED NETWORK ACCREDITATION PROGRAMNational Framework for an Interoperable Health SystemFOUNDING MEMBERS
WHAT MEMBERS ARE SAYING“..The new accreditationprogram will continue themuch-needed focus oninteroperability as well asassure a trustedenvironment whereprivacy and securityrequirements aremaintained”Lee Barrett, EHNAC Executive Director“SAFE-BioPharma ispleased to be a part of thiseffort to leveragestandards in healthcare,which will lead toimproved patient safety,privacy and, a better userexperience.”Matt King, Director of SAFE-BioPharmaAssociation“This program alignsclosely with the efforts ofWEDI members andworkgroups to facilitatesecure and trusted dataexchange throughblockchain and otherenabling technologies”Charles Stellar, WEDI President & CEO.Quotes for illustration purposes only
EP3 COALITION ORGANIZATIONSJIM NASRTechnical Fellow