September 2016 NEWSLETTER Table of Contents Thank You Grace P. 1 World Alzheimer Day P. 2 Door to Door Campaign P. 3 A Daughter’s Memoir P. 4-5 Alzheimer Awareness P. 5 Dementia Friends P. 6 Volunteer Companion P. 7 First Link P. 7-9 Research Surveys P. 9 Thank You Grace! This year we were very fortunate to have UPEI student Grace Wedlake join us as a summer student. Grace has been a great support to the work we do at the Alzheimer Society of PEI and has completed some fantastic projects which we are very excited about! We are going to miss having Grace at the office but we wish her the best of luck as she continues to pursue her degree in Diversity and Social Justice! Brain Booster Have you taken a moment to strengthen your brain today? Give this Brain Booster a try! Exactly how many minutes is it before seven o’clock, if 40 minutes ago it was three times as many minutes past two o’clock?
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September 2016  NEWSLETTER Table of Contents Thank You Grace P. 1 World Alzheimer Day P. 2 Door to Door Campaign P. 3 A Da...
September 2016 Lieutenant Governor Coffee Break Lieutenant Governor Coffee Break® 
 
 
 World Alzheimer's Day September 21, 2016
 The Lieutenant Governor of Prince Edward Island and Her Honour Dorothy Lewis cordially invite you to join The Department of Education & The Alzheimer Society of PEI as they Introduce “Learning About Alzheimer’s Disease and Other Dementias: A Resource for Teachers" on Wednesday, September 21, 2016, 12:00 pm at Fanningbank. Please confirm your attendance by Friday, September 16, 2016 902-368-5325 SERVICES World Alzheimer Day - Coffee Break The Alzheimer Society of PEI is issuing a call for help from local individuals, organizations or businesses to sign up as a Coffee Break® host this fall. Specifically, we are looking for "champions" to help out by hosting a Coffee Break®. We even provide you with the coffee (donated by Mother Parkers)! A Coffee Break® is simply a fundraiser for the Alzheimer Society. Typically, a business or organization will serve coffee for employees or customers in return for a donation. Call the Alzheimer Society of PEI to sign up today! 902-628-2257
 "We know there are many more individuals who are experiencing memory loss and cognitive impairment and thousands of family members who would benefit from our programs & services. We continue to reach out to them in many ways," said CEO, Corrine HendrickenEldershaw. "Unfortunately, our financial resources are not growing as quickly as the need.” Make sure you stop by Kent Building Supplies & Bulk Barn throughout the month of September to support these generous businesses and to make a contribution to the Coffee Break Campaign. 
 
 Thank you Bulkbarn & Kent Building Supplies! Page 2!
September 2016  Lieutenant Governor Coffee Break Lieutenant Governor Coffee Break                 World Alzheimer s Day Se...
September 2016 DidYou Know? 
 Door to Door Campaign Please help us by giving 2 hours of your time to help us canvas during one or all of our Door to Door Blitzes happening in select locations across PEI. 
 
 One of our canvassers will be entered into an Air Canada Draw for two flights for travel to any Air Canada scheduled destination in North America, including Hawaii, Mexico and the Caribbean.
 For every $100 collected, your name will be entered into the draw for this amazing prize! Did you know there is strong evidence that smokers are at a 45% higher risk of developing Alzheimer’s disease than nonsmokers or ex-smokers? They are also at a higher risk of developing vascular dementia and other forms of dementia. The good news: you can reduce your risk by quitting! Learn more about modifiable risk factors here. We are canvassing: Charlottetown on October 2nd, 2016 Montague on October 9th, 2016 Stratford on October 16th, 2016 Cornwall on October 23rd, 2016 Note: If someone does not knock on your door and you want to contribute, please click here for information on how to donate! By supporting our Door-to-Door Campaign, you are contributing to important programs and services that help people in our province, as well as crucial research initiatives. The Alzheimer Society of PEI needs your help to make a difference in the lives of thousands of Islanders living with Alzheimer's disease or related dementias. 100% of the dollars raised stay on PEI. If you are willing to help us with a one-day blitz in your area, please contact the Alzheimer Society of PEI. Alzheimer Society of PEI 166 Fitzroy Street, Charlottetown, PE C1A 1S1 Direct: 902-628-2257 Toll-Free: 1-866-628-2257 Email: society@alzpei.ca Page 3!
September 2016  DidYou Know       Door to Door Campaign  Please help us by giving 2 hours of your time to help us canvas d...
September 2016 Music Care Webinar and Conferences A Daughter’s Memoir about Dementia If you’d like to learn about the role of music in care, there are several opportunities available through the Room 217 Foundation. Registration is now open for the Music Care Certificate Program offered in Anitgonish, NS, September 16th-17th, and in Saint John, NB, October 14th-15th. If you’d like to learn more about “Quality of life and aging” you can attend a free Music Care webinar on September 14th! Elizabeth Murray wanted to believe that her mother’s actions were nothing more than the normal aging of a sometimes difficult and determined woman. Had Murray not been absorbed with her own ill health, she might have been more concerned about her mother’s memory lapses and unusual behaviour but a battle with cancer, the death of her father, and a strained relationship with her brothers had left her emotionally drained. Contact Deb at dbartlett@room217.ca for more information about these opportunities. Murray’s memoir Holding on to Mamie: My Mother, Dementia and Me chronicles her mother’s decline from dementia and its insidious transformation of a once vibrant woman. 
 
 
 
 
 
 
 
 
 
 
 
 
 “After my mother was forced to move into a nursing home, I found caches of notes crammed into the cupboards and drawers of her house,” explains Murray, who became the target for her mother’s increasing anger and paranoia as dementia took hold. “The notes contained bitter indictments against me for things that I had never said or done.” Page 4!
September 2016  Music Care Webinar and Conferences  A Daughter   s Memoir about Dementia  If you   d like to learn about t...
September 2016 “My story began as a quest for redemption,” said Murray. Her memoir has become more than a personal exercise in healing; by raising awareness of some of the darker symptoms of dementia, her story has helped others navigate their own journey with the disease.
 We need volunteers! Volunteers are the most important resource for our organization - your time and energy are essential to help us support people living with dementia and their families. We would love to have your time and talents to help us create our vision of a world without Alzheimer's disease & other dementias.
 
 Murray’s hope is that sharing her experience will help to normalize dementia and reduce some of the stigma that surrounds the disease. A portion of the proceeds from the sale of her memoir will be donated to organizations dedicated to providing services to families who are living with dementia. For more information about the book go to www.holdingontomamie.ca. 
 Upcoming Opportunities: ADVOCACY Door to Door Canvassers January is Alzheimer Awareness Month! Each year we celebrate Alzheimer Awareness Month with a unique campaign focused on raising knowledge and awareness among Islanders and across Canada. Stay tuned for the reveal of this year’s awareness campaign, and save the dates for our upcoming events throughout the month of January: January 4th: Appearance with “Boomer” on CBC Compass January 19th: 5th Annual Alzheimer Awareness Conference January 28th: Dementia 101 Public Information Session …more to come! Office Volunteers Walk Committee Volunteers Please email Kate S. to volunteer with our Society! Type to enter text Page 5!
September 2016     My story began as a quest for redemption,    said Murray. Her memoir has become more than a personal ex...
September 2016 Interacting with a person who has dementia Be yourself of course! But, there are some simple things to remember when interacting with someone who has dementia:
 
 - Always approach from the front, so you don’t startle them
 - Don’t stand too close to, or over someone when communicating
 - Identify yourself and explain why you’ve approached them
 - Maintain eye contact
 - Don’t correct or be confrontational
 - Keep activities and instructions simple
 - Mind your body language
 - Appreciate the person’s strengths rather than focusing on their challenges
 - Always be encouraging
 - Don’t be rigid, go with the flow Dementia Friends As Canada's leading health charity for people living with Alzheimer's disease and other types of dementia, we know that when someone has dementia, what they need more than anything is understanding and support. That's why we invite you to join the community of Dementia Friends that is growing across Canada. Dementia Friends Canada is a national campaign that's helping Canadians learn a little more about dementia and then turning that understanding into simple actions to help people living with dementia live well. It all starts when you become a Dementia Friend. So please extend the invitation to become a Dementia Friend to as many of your friends as possible. You'll be helping build awareness and broader support for an important issue, while contributing to a growing community of Dementia Friends! The more Canadians know about Dementia, the more prepared they'll be to take actions that make life better for everyone affected by it.
 You can become a Dementia Friend by: • Signing up on the Dementia Friends website OR • Following Dementia Friends on Facebook or Twitter @DemFriendsCA • Attend an Alzheimer's Society event Remember that when someone you care about has dementia, what they need most of all is a friend. Become a Friend today, and encourage your friends to do the same. Page 6!
September 2016  Interacting with a person who has dementia Be yourself of course  But, there are some simple things to rem...
September 2016 PROGRAMS Volunteer Companion Program The Volunteer Companion Program is a one-on-one visiting program for individuals with Alzheimer’s disease or related dementia. Volunteer companions are matched with a person with the disease and visit once a week, during their preferred time, to provide socialization and meaningful activity to the individual. These visits give the caregiver opportunity for respite and assist them in keeping their loved one at home longer. New volunteer companions received training from the Alzheimer Society in May and June, allowing more matches to be made! If you would like more information about the program and being matched with a volunteer companion, contact the Alzheimer Society of PEI. First Link The next First Link Caregiver Education Series will be offered on Tuesdays throughout November, 11 am-12 pm at the Alzheimer Society of PEI. The Caregiver Education Series is a wonderful learning opportunity for family caregivers providing support to a loved one with dementia. A different topic is covered each week through the series: Page 7!
September 2016  PROGRAMS Volunteer Companion Program The Volunteer Companion Program is a one-on-one visiting program for ...
September 2016 November 8th: It's Dementia...Where Do We Go From Here?
 Participants will receive basic information about dementia and the impact this disease has on the individual, caregivers and families. Through an exploration of how dementia affects the brain and behaviour across the progression of the disease, caregivers will learn what to expect throughout the journey of dementia. November 15th: Day-to-Day Living
 Changes in the brain due to Alzheimer’s disease or another form of dementia often appear to us as changes in the person’s behaviour. Caregivers will learn how to understand behavior as a form of communication and explore strategies for determining what the person with dementia might be trying to communicate. Caregivers will explore ways to decrease the occurrence of behaviours that concern us and discuss effective ways of facilitating communication and providing support to the person with dementia. November 22nd: Who Cares for the Caregiver?
 When supporting a person with a chronic illness such as dementia, it is vital that caregivers take care of their own physical and mental health. Participants will gain an understanding of how certain messages, demands or beliefs can contribute to stress and burnout. They will also learn how to recognize the signs of burnout, and discover ways to deal with caregiver stress. Page 8!
September 2016  November 8th  It s Dementia...Where Do We Go From Here     Participants will receive basic information abo...
September 2016 November 29th: Life Has Changed: What's Next?
 Starting to plan for the future as early as possible ensures that the person with dementia can play a role in making important health care and financial decisions. Family caregivers will learn the importance of early planning and review strategies for ensuring that the wishes of the individual with dementia are honored now and in the future. If you would like to register for the Caregiver Education Series, please call 370-3135 or email education@alzpei.ca RESEARCH Research Survey for Caregivers Do you currently care for a family member or friend with dementia? Do you assist this person with managing their medications? If you are, we would like to invite you to participate in our research study on issues that family caregivers for persons with dementia face when they assist with and manage medications. for their care recipient. Participation involves completing an online, anonymous survey which will take about 15 minutes of your time. The study is being conducted by researchers at the College of Pharmacy at the University of Manitoba who are interested in learning more about caregiving and medication responsibilities. The survey is available at: http://fluidsurveys.com/s/medsurvey/ For more information about this study, please contact: Danielle Chu, Research Assistant College of Pharmacy, Faculty of Health Sciences, University of Manitoba, Ph. 204-975-7742 email: umchu9@myumanitoba.ca Page 9!
September 2016  November 29th  Life Has Changed  What s Next     Starting to plan for the future as early as possible ensu...