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MECFC 2018 - Developing CF Centers in the Middle East
Wednesday, March 21, 2018
Room
4:00 pm
5:00 pm
MECFC 2019 - Conference Committee Meeting
Room
5:00 pm
6:00 pm
MECFA Board Meeting
Thursday, March 22, 2018
Room
8:00 am
5:00 pm
Registration desk open
Session I: CF internationally
Session chaired by: ……………
Allied Health Program
Room
9:00 am
9:25 am
Challenges of CF Management in the Middle East:
Introduction to MECFA
Adel Alharbi, KSA
Physiotherapy workshop
Room
9:25 am
9:50 am
The Cystic Fibrosis Foundation Introduction,
progress, current program and opportunities for
collaboration.
Preston Campbell, USA
Room
9:50 am
10:15 am
The European CF Society Introduction, progress,
current programs and opportunities for
collaboration.
Isabelle Fajak, Belgium
10:15 am
10:30am
Coffee/tea break
Session II: CF Care Centers
Session chaired by: ………………….
Allied Health Program
Room
10:30 am
11:00 am
The History of CF In Turkey
Elif Dagli, Turkey
Nutrition workshop
Room
11:00am
11:30 pm
Establishing CF Centers, Standards and
Challenges
Bruce Marshall, USA
Room
11:30 am
12:00 pm
Managing CF Centers and Care Teams: The roles
of Clinicians and Allied health
Harry Heijerman, Netherlands
Room
12:00 pm
12:00 pm
Introduction to a Survey of CF Care in the ME
Nisreen Rumman, Palestine
12:20 pm
1:30 pm
Lunch break and prayer
Session III: CF management
Session Chaired by: ………………..
Allied Health Program
Room
1:30pm
2:00pm
Pro and Con debate I
Staph Aureus infection: do we need prophylaxis?
Basil Elnazir and Bulent Karadag
CF Nurse workshop
Room
2:00 pm
2:30 pm
Pro and Con debate II
Nontuberculous Mycobacteria: pathogens or
innocent bystanders?
Yazan Said and Hussein Al-Kindy
Room
2:30 pm
2:55 pm
Pseudomonas infection Detection, approach and
management
TBD
Room
2:55 pm
3:25 pm
Prevention and Treatment of PA and other
infections & complications
Harry Heijerman, Netherlands
Room
3:25 pm
4:00 pm
Symposium
Speaker TBA
Friday, March 23, 2018
2
Session IV: CF Registry and New Therapies
Session Chaired by: …………………………………
Family program
Room
9:00 am
9:30 am
The role of registries in CF Center Care
Alex Elbert, USA
KIFDER - physio and nutrition workshop for parents
Room
9:30 am
10:00 am
Clinical experience of CFTR modulation and New
Therapies in the Pipeline
Preston Campbell, USA
Room
10:00 am
10:30 am
Multi-systemic Nature of CF
Barry Plant, Ireland
10:30 am
10:45 am
Coffee/tea break
Session V: Regional issues in CF
Session Chaired by: ………
Family Program
Room
10:45 am
11:10 am
Social challenges of CF in Palestine: Perspective
of a CF parent (comparison between CF care in
France and Palestine)
Veronique Bontemps, France
KIFDER physio and nutrition workshop for parents
Room
11:10 pm
11:35 pm
Perspective of Mothers: The challenges of raising
a child with CF in the region.
Turkish, Saudi and Palestinian mothers
Nutrition
Room
11:35 pm
12:00 pm
Middle East Experience with CFTR
correctors/potentiators
Asma Nuaimi, UAE
Physio
Room
12:00 pm
12:25 pm
Research and Clinical Trials Middle East road
blocks and potential
Ibrahim Janahi, Qatar
Q and A
12:25 pm
2:00 pm
Lunch break and prayer
Session VI:
Session chaired by:
Allied Health Program
Room
2:00 pm
2:30 pm
Progressive CF disease in adults
Barry Plant, Ireland
TBD
TBD
TBD
Room
2:30 pm
3:00 pm
Genetics of CF in the Middle East
Milan Macek, Poland
Room
3:00 pm
3:30pm
Nutrition in CF: The needs through different age
groups
Dimitri Declercq
Room
3:30 pm
4:00 pm
Fertility and Pregnancy Issues in CF patients
Barry Plant, Ireland
Saturday, March 24, 2018
Session VII:
Session chaired by:
Poster Session
Room
09:00 am
09:30 am
Poster Session
Poster Session
Poster Session
Poster Session
Room
09:30 am
10:00 am
End stage Lung Disease and Lung
Transplantation; KSA Experience
Imran Nizami, KSA
Room
10:00 am
10:45 am
CF grand rounds: Interesting/Challenging CF
Cases
Physicians submit 3 cases: 15 minutes each
10:45 am
11:00 am
Coffee/tea break
Session VIII: Meet the Experts
11:00 am
12:00 pm
Open discussion with the CF experts
Questions and answers
12:00 pm
Closing remarks, Adjournment